Dec 04, 2013 - 4:29 pm
Hello! Yes, I am back. I joined this discussion board in late January, 2011. I had just been diagnosed with prostate cancer. At that time I wrote: "I was diagnosed with prostate cancer on 12-30-2010. I am 53 years old in otherwise good health. My psa was 4.3. My last psa was 1.2 in 2007. Gleason score was 6 (3+3) but a review of the slides by another institution says Gleason score is 7 (3+4) with perineural invasion. 8 out 12 bioposy cores positive, 4 on each side. 75% of volume of biopsy from right side has cancer, 25% on left side. 2.0 x 3.0 x 1.0 mass shown on ultrasound. no seminal vesicle involvement. Stage is estimated to be t2c."
I had robotic prostectatecomy on Feb. 10, 2011. I decided to go this route because I was scared about the extent of the cancer. And if the cancer came back, I wanted to have radiation as an option. I was also hoping that the surgery would spare both nerve bundles. The patholgy report confirmed my worst fears: epe with focal positive margins on the right side. With the cancer outside of the prostate, the right nerve bundle could not be saved. Diagnosis: Gleason 3+4, p3ta, perineural invasion, positive margins, negative seminal vesicles, negative lymph nodes. But I was not offered adjunct radiation at that time. My surgeon said that I "should be okay."
After surgery, I actually was ok, for awhile. I regained continence after about 4 months. My psa went to below .1, and that was the way my lab reported the findings: <.1 But sexual function was another matter. I have never regained full sexual function, and the oral agents are no help. Injections are some help, but a hassle and so I have just lost interest in sex.
In July 2012, my psa was .05. I was told not to worry since it was below .1. But then my psa jumped to .1 in March, 2013, and to .12 in September , 2013, and a recheck of the psa showed up at .13 in November, 2013. My worst fears have been apparently been realized: a biochemical recurrence. Now I have been referred to a radiation oncologist. I am scared and I am really comcerned about the side effects od radiation, especially sexual side effects. I would appreciate any thoughts, suggestions, or comments.