Dec 04, 2013 - 9:12 am
Hanging in after a second g-tube placement Monday that caused my BP to drop so low they could not get a reading on 3 BP machines and they kept me until 6 pm Monday so I missed my XRT that day. I was really leaning towards just having an NG tube placed for 4 weeks but the MD talked me out of that.
The pain level was a 10 and my stomach was in spasms most of the night. Slept in recliner and took Rpxycodone 5ml. which took the pain down to about a 7. Could not move without pain so this time I took the pain meds and phenergran so I would not throw up. Took a tylenol last night and went to bed at 9:30 sitting up in bed with hot water bottle on stomach. Woke up at 7am in the exact same spot! It was like I froze in place, wierd. After about 10 minutes, I managed to get out of bed and of course with nothing for pain it hurt like crazy. At least the spasms are gone. I am bandaged and do not want to look at it this time as 2 weeks ago it was loose and I had to go to the er and be admitted and tortued.
So, now the latest is that they are supposed to bring me supplies and a nurse from home health is to come change the dressing and teach me how to care for the tube. Yesterday, I had to call the Md's office several times to get this going and then the company called me back to say Cigna does not cover the nutritional supplements and the hospital's home health agency does not participate in Cigna! Our healthcare system has gotten more and more fragmented and difficult to negotiate than ever. If I had not worked in hospitals and hospice, I would have had no follow up basically.
Hopeful that this tube is intact and will help me get through the rest of XRT and beyond. I am supposed to be finished Christmas Eve. That will be my big gift this year.
Thinking about all of you and wishing you 0 pain and peace.