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Smitty65
Posts: 11
Joined: Nov 2013

Hello All,

 

I was diagnosed in May of this year with a pretty large growth in my right kidney (2a I think).  The tumor was contained within the kidney no lymph nodes, viens, or anywhere else by the ct scans and pathology post surgery. I was very blessed to have caught it so early.  My 3 month scans, chest xrays, blood and urine tests all came back negative as well.

But now my problems have begun.  I am a 36 year old father of 2 wonderful little girls and I cant stop thinking about dying.  I constantly battle with thoughts of cancer in other parts of my body.

I think that the anxiety has caused me to lose a good bit of weight and develop some digestion problems. Which in turn cases me to believe that I have other types of cancer. 

 

I hoping that I am not the only one that has gone through this and just need support from people that have gone though the same.  I feel like everyone I talk to has no idea what I'm going through so I tune them out when they say everything is going to be fine (even my doctors). Prayer is about the only relief I get and sadly that is often short lived.

 

Thanks for listening it feels good just to get it out.

Jan4you's picture
Jan4you
Posts: 200
Joined: Oct 2013

Sorry for all you are going through. Losing weight due to anxiety is not uncommon and shows us just how powerful our mind-body conneciton truly is. Thinking of dying is also a sign of anxiety. There is help for this. I would suggest you may start with telling your primary doctor and seeing if you may need an anti-anxiety med for awhile.

Remember too this word: F.E.A.R=False Evidence that Appears REAL! CHOOSE not to allow fear to rule your thinking!

Maybe see a therapist for awhile. Also do not forget we all are fighting off cancer cells, even those who never get cancer. So you ARE fighting this and winning.

My last recommendation is that our brains NEED the proper nutrition to function optimally. Make sure you are getting proper food and rest. No sugar, processed foods and do a gentle detox to assist the liver/kidneys in ridding your body of toxins.

Yes, our bodies react to our thoughts. Change those thoughts and use your faith to guide you through this too. Your children will continue to be your inspiration. See your doctor ok?

Warmly, Jan

icemantoo's picture
icemantoo
Posts: 1592
Joined: Jan 2010

Smitty,

All of us here are ready to support you. All of us are either Kidney Cancer Survivors or caregivers. Myself 11 years last August,

You state that they caught it early and the sucker was pretty large. Others and myself would feel more comfortable trying to help if you told us the size of the little sucker (tumor). That way we can give you a helpful and honest basket of support.

 

Icemantoo

Smitty65
Posts: 11
Joined: Nov 2013

Sorry it was 10 cm.

 

Thanks so much for the quick responces.  Im seeing a therapist although I think that I may need to switch. She deals more with teenagers and I just went to her because she could get me in.  I live in the Cleveland area so if anyone has a recommendation it would be very welcome.

Bellweather
Posts: 47
Joined: Jun 2013

Smitty, most of here have experienced these thoughts, you are not alone.  Your diagnosis,  while unfortunate, is not a death sentence.  there are others here witn much more experience than me, but your future has good odds of disease free living.  Keeping a good check up schedule is imperative as there is always a chance for future issues.  There is no good that comes from dwelling on the unknown,  there will be plenty of time to worry WHEN and IF something occurs.  Please take the time to live in the moment with your two beautiful daughters.  I have three beautiful daughters and work hard every day to stay in the moment with them and everyone else that is part of my life.

Prayer is always a great calming factor in the life of a cancer survivor.  There are meds that your doctor can prescribe for your anxiety as well.  I am keeping you in my prayers.  As hard as it may seem now, you can begin to manage your thoughts better as time passes.  keeping yourself busy to avoid idle thought helps.  Hang in there buddy, we are all here for you.

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

Also remember that you undoubtedly have a schedule of follow ups. Kidney cancer is very slow growing, so if you keep all your follow up appointments, you can catch it when it's teeny tiny and an esay fix. But most likely this is now safely tucked away in your history. Cleveland has some of the best medical care and support communities in the world! It may also help if you join an in-person support group and help some of the newbies navigate the road you already traveled.

Smitty65
Posts: 11
Joined: Nov 2013

I have to admit I have been stalking this Web page for a while now. The support  I saw in this group is amazing. So many cancer websites I saw were negative and dealt with the initial diagnosis as opposed to living positively after treatment. 

Today for some reason has been worse then most.  My back and my surgery scars have been aching since the weather turned so I currently have myself convinced I have pancreatic cancer despite the ct scans,  xrays and blood tests to the contrary.  I have to start believing the science and stop listening to the crazy thoughts in my head.  

icemantoo's picture
icemantoo
Posts: 1592
Joined: Jan 2010

Smitty,

The Cancer free guarantees go up to about 6cm. At 10 cm their is a slight risk over the years, but any problem should be caught in the bud and taken care of with regular scans. There are many survivors with 10 cm and over and with regular scans you should be here for a long time to come. The aches and pains from that initiation (surgery) that will cintinue for a few more months are normal and are not Cancer If you felt Cancer they would be able to do away with the scans and bloodwork. If RCC does not usually go to the Pancreous so stop worrying about something you do not have.

 

 

Icemantoo

Smitty65
Posts: 11
Joined: Nov 2013

My doctor gave me a 90% 10 year survival rate for my type of RCC (clear cell really slow growing). I truly can't thank you all enough. Knowing that I am not the only one going through this is a god send.  I'm feeling better already. 

a_oaklee
Posts: 174
Joined: Nov 2013

It's certainly normal to think every pain and ache is something to do with cancer.  That is our new thought process also.  My husbands shoulder was aching and we thought for sure it was cancer.  He had an MRI and it turned out to have a diagnosis of arthritis.  What can I say?  We are scared.  It has gotten better with time, but I think we will probably always have the fear.  The thing is...it doesn't incapacitate us and we can still enjoy life.  It's only been six months for you and things will improve.  I'm really glad you are here talking about your concerns. 

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

Smitty listening to you is like looking in the mirror at the moment but the only difference is I am a woman!!!  I totally know where you are coming from and I suppose we both need to get out of this place and try to move on.  I am thinking that its just because it is a year ago today for me that I was told (out of the blue) that I had cancer!!!  We are all here for you to vent or whatever!!!

Eims 

Smitty65
Posts: 11
Joined: Nov 2013

before I found this place I thought I was crazy.  that I was the only one feeling this way. it is so great to know that there are other people out there like me completely bad s*** crazy. I love all you guys

adman's picture
adman
Posts: 267
Joined: Jul 2012

 

Smitty65,

Thanks for reaching out, you're in a safe, non-judgemental environement amongst people and caregivers fighting the fight.

I was very lucky w a Stage 1/ Grade 1 RCC tumor last year. I am like you. Very nervous a lot of the time, although getting better. When follow up testing time comes around every 4 months I'm also a nervous wreck.

Just remember to try and live in the moment as much as possible and be kind to yourself.

God Bless!

 

mean56
Posts: 11
Joined: Nov 2009

Smitty,

Your thoughts and fears are totally normal for a cancer survivor. I am a 58 year survivor and I still get anxious when I have a skin cancer lesion removed or an abnormal anything, any little thing. I've gotten very good at not dwelling. It is what it is and I cannot control it. My wish for you is to be able to live in the moment. When I do that I see what is in front of me and I am never disappointed. You survived to enjoy life and to fullfill your purpose on this earth. It's taken me many years to get there - I hope you can do it now. Congratulations and enjoy.

Mary

 

 

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Smitty, I completely understand what you're going through!  I can't tell you how many times a day cancer is in the forefront of my thoughts.  Too many to count!  I don't know how to turn my mind off it, in terms of thinking every ache and pain is cancer.  It's kinda funny, not haha funny, but, while seeing my doctor 2 weeks ago for my first set of post op tests, I could not fight back tears.  I think the whole memory of that day in May, sitting in that same office, when he told me I had cancer, came rushing back to me and tears just ran down my face.  I'm pretty sure my Dr thinks I'm loco!  He suggested I seek counseling.  At the time, it made me laugh realizing that he probably thinks that's all I do is sit around and cry about having had cancer.  Quite the contrary. Other than the episode of PTSD induced by returning to his office, for the most part, I'm fine.  And I remain fine...until a new ache pops up.  I can't find a common thread as to why some of us react this way while others never give it a second thought. 

But, God forbid we face recurrence or a new primary tumor, odds are excellent it would be caught early.  For someone like me who has lost both parents and numerous family members to cancer, I am alllll too happy to be so closely monitored. Still, even knowing that, I can't help but worry.  I think the fact that you are still raising your girls explains much of your anxiety.  My children are 28 yrs old and no longer need my parenting but, they still need their mama!

Hang in there, Smitty!  If we believe it will get easier with time, it will.  Think happy thoughts Laughing

Did I read you're in the Cleveland area?

Sindy

   

Darron's picture
Darron
Posts: 224
Joined: Jun 2013

Please take a moment to read my info. I would give anything for your diagnosis.

I can tell you 1st hand that time helps. A day doesn't go by that I don't think about my cancer, but I try to make that motivation to make sure I make the most of the day that I have been given. I know several peiple my age that were not given the time I have already enjoyed since being diagnosed. i try to enjoy every day, not because I am worried I am dying, but because I am happy to be living.

Hug your kids, kiss your spouse, smile at a stranger. we should all have a different appreciation for every day. If you don't share it, your wisdom will be wasted. Let everyone see how much you love life, it is amazing how good it makes you feel.

hope I didn't ramble, sorry if I did. You will be OK, and now you are in a group where people do understand what you are going thru. 

Hope you are doing better now And know that you can share....

 

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Darron, I have read your info and I totally get that my diagnosis is much preferred to yours.  I do not doubt that if I were in your shoes, I would not have handled the situation as graciously as you have.  I have nothing but respect for the bravery you demonstrate. 

I try to never lose sight that there are countless people who'd give anything to walk a mile in my shoes.  Being one of the lucky ones has definitely taught me a whole new appreciation for what matters in life and, maybe more importantly, what doesn't.

Having said all that, try as I might, I can't keep cancer from creeping into my thoughts.  But, I am going to work on making those thoughts motivate me to make the most of my day, like you do.  I'm ready to be back to my happy go lucky kind of style, maybe this will help!

This place is the best!!  Thanks, Darron and Merry Christmas!!

Smitty65
Posts: 11
Joined: Nov 2013

Thanks for chiming in. I was just sitting here feeling sorry for myself and got on for Some good vibes I was so glad to see new responses to my original post. Things are getting better but there always crazy thoughts in the back of my mind. I do in fact live in the Cleveland area.

 

thanks again and Merry Christmas to everyone

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

sindy i am in shock!!!!  there is nooooooooooo way you have a 28 year old!!!!  you look amazing....i have whatever you are having please.... Smile

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Thank you, Eims! 

I had my babies young, just 20 years old at the time.  Sounds young, I know.  But, considering I'd been married almost 4 years at their birth, I didn't feel too young.  Still don't...feeling everyone of my years.  In June, I'll celebrate the 10th anniversary of my 40th birthday and thanks to cancer, I am soooo looking forward to it and every year thereafter.

Merry Christmas!!

MMondi1
Posts: 11
Joined: Jun 2013

Smitty,

 

You are def not alone.   I was 37 with a 2 yo and 3 month yo at home when I was rushed off to surgery with what turned out to be a stage 3 grade 3 tumor. The thought of leaving those two fatherless is very tough to take.  It has gotten a little easier but its never easy. As my scans approach the anxiety hits real hard but I will say between scan I have also come to have some normalcy too.  Hearing high risk at every dr appointment hits me hard.   I still think about the boys growing up fatherless but Ive also learned to appreciate each moment with them.

 I just celebrated my litle ones 2nd birthday and now get to enjoy my oldests 4th birthday.  There is also a lot of inspiration on this board.    I view most of the people on here as needle movers.  The have taught me that the stats you read about are being beaten consistently.  The are changing the number in our favor.  They are a great inspiration to us all.  

I would also like to add we are in a time that some scientist call the era of discovery.  We are finally figuring things out. Our knowledge is doubling every two years. Soon it will be every year.  Once we start to implement these discoveries the number of long term survivors and cures for all stages will be real impressive. 

Jojo61's picture
Jojo61
Posts: 407
Joined: Oct 2013

Smitty

You did the right thing reaching out to this forum. They are knowledgeable, compassionate and can help you find hope and even give you a laugh.

Hang in there and remember we all have our dark days - we just pray that they few and far between. And that you can get back to savoring the good things life has given us.

 

Jojo

Darron's picture
Darron
Posts: 224
Joined: Jun 2013

Don't get me wrong, I struggle too. Time helps, but we all have bad days.

the hand we have been dealt in life really stinks, but we've got to play the hand out.

I didn't mean to come across like I did. It is OK to have a bad day, but at some point, it is a day we have been given.

 

Merry Christmas back at you! Hoping and praying your tomorrow is better than today!

 

brea588
Posts: 116
Joined: Jul 2012

Smitty is good that you came on here and talked to us about your problems and thoughts.  Its good to have people who know where you are coming from.  I fear cancer everyday and probably with good reason too.  I had RCC last year.  This year on my colonoscopy I also had Adenocarcinoma in one of the 6 adenoma polyps that was removed.  Again i was blessed that the cancer had not spread.  I started having pain in my right hip about 5 months ago.  My Pcp sent me to an oncologist because these are primary tumors.  Me PET scan lit up in the iliac crest of my hip  this scan was sept 28  so onc wanted to wait and do another pet scan in Jan 14 due to cancer being slower to show in bone.  Due to increased pain i had a ct scan last week that had even the radiologist confused.  He could fine only sm amt of arthritis in hip and said pet scan and this ct did not match up.he can find nothing where the cancer cells are showing.  So my onc is sending me the university hosp to see bone doc that only takes care of pts with bone cancer.  Im scared to say the least to go next week but this needs to be found and treatment started.  They now have me on strong dose of pain meds that helps.  Just need your thoughts and prayers as I go to new onc next week.  I am feeling very afraid.   thanks

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

Hi Brea, 

I can understand how fearful you must be at the moment, cancer is so unpredictable. I remember when my Father had a PET scan I was advised that problems other than cancer can also cause areas to light up on the scan. I hope that this turns out to be nothing more serious than inflamation! All the best with your appointment I will be thinking of you next week. Let us know how it goes!

 

Djinnie x

Jojo61's picture
Jojo61
Posts: 407
Joined: Oct 2013

Brea,

This sounds scary, but you will be in good hands. Stay strong. You are in my thoughts and prayers. Please keep us posted.

Jojo

Renee1128
Posts: 3
Joined: Dec 2013

Smitty, your strength and courage have inspired me to put pen to paper (so to speak) Thank you!   I am 46 and had surgery on Nov 4th to remove a 3cm RCC mass from my right kidney.  I too have been told how blessed I am to have found the mass so early and am finding it easier day by day to accept this.  I am definitely waging a war in my mind between feeling very blessed and extremely scared.  I was able to have surgery using the Davinci method leaving me with 6, small incision areas.  I am back to work and feel great most of the time but still feel a soreness in my kidney area.  I am certain that this must be normal only 6-7 weeks post surgery but my mind goes to that deep, dark place when I allow it.  It is a daily, sometimes hourly, struggle to remain positive and thankful BUT....I can look back over the past 8 weeks-since hearing the "C" word, and can see that I am making progress. I am a Christian and I have experienced a closeness with God that I never knew was possible.  Prayer is a very powerful tool for sure.  I am also seeing a therapist to help with the doubt, fear and anxiety and this is helping as well.  I am sooo thankful to have found this forum as I am having a hard time finding support groups in my area for SURVIVORS-that is what we are-of RCC.  I have approached my Urologist about starting a support group with his practice...it is a very large practice and they currently only have a support network for prostate cancer.  I would appreciate any advice/words of wisdom on how to proceed with starting a support group.  May God bless us all!

Renee

icemantoo's picture
icemantoo
Posts: 1592
Joined: Jan 2010

Renee,

Like you I had a small tumor and felt like the world had come crashing down when I heard the big C word. That was 11 and 1/2 years ago. Everything you are feeling physically and emotionally is normal. You just had major surgery,'' As time goes by you will put all that worry in perspectine and it will go away.

As far as the support groups I have seen from the Kidney Cancer Association, they seem to be addressing the concerns of those with ongoing cancer issues which luckely we do not have with small tumors except for nervousness around scan time.

Every so often us surviors add a little humor about our journey. A little of mine and a lot from garym litters this website. Just so you understand my name Icemantoo has nothing to do about my gang affiliation, but reflects the fact that both my father and grandfather were in the retail Ice business.

As for the Prostate Cancer survivor group, you do not sound like the type of Renee who woukd benefit from that.

 

If you chimed in where you are from maybe one of our survivors on this board in your area could reach out to you.

 

Icemantoo

Renee1128
Posts: 3
Joined: Dec 2013

Thank you Icemantoo!   I LOVE that you are an 11 year survivor...Praise God!  I am looking forward to the time when I will be able to see the humor in my situation as I love to laugh.  My diagnoses came in October with surgery 2 weeks later.  It has taken some time to wrap my head around the whole thing.  It was like a whirlwind and I am sure everyone here understands that feeling.  I live in Midlothian, Va which is about 20 minutes south of Richmond Va.  I am looking forward to seeing what support groups are out there.

 

Have a great day!

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

Hi Renee, 

If you go to www.kidneycancer.org you should be able to locate a support group, if there is not one in your area they will help you organise one. I see it is still quite early days for you in the recovery period, I had the same operation back in March. I have no problems at the surgery sites now, I just have a little pouch where the muscle was cut, it's not a problem though. 

There is no doubt about it, being diagnosed with cancer is tough. I have had it four times, oral, bowel and kidney twice. I also lost both my parents to cancer so I was no stranger to it. Remaining positive can take some doing in the aftermath of such a life challenging experience. The negative thoughts can become like a self inflicted form of torture, sadly our minds can produce them in abundance with little effort. It is a challenge to accept what has happened, but we have to in order to move on. Although we may never view our lives in quite the same way again, we are fortunate that we were given a second chance to live it:)

I hope your search for a support group proves successful:)

 

Djinnie x

Renee1128
Posts: 3
Joined: Dec 2013

Thank you Icemantoo!   I LOVE that you are an 11 year survivor...Praise God!  I am looking forward to the time when I will be able to see the humor in my situation as I love to laugh.  My diagnoses came in October with surgery 2 weeks later.  It has taken some time to wrap my head around the whole thing.  It was like a whirlwind and I am sure everyone here understands that feeling.  I live in Midlothian, Va which is about 20 minutes south of Richmond Va.  I am looking forward to seeing what support groups are out there.

 

Have a great day!

foxhd's picture
foxhd
Posts: 1951
Joined: Oct 2011

The fact that everyone here has reached out for some kind of support or reaffirmation is a tribute to the understanding and compassion of our members. Most of us have been in this situation. Fear and the unknown prognosis is frightening. Once we are diagnosed with cancer, it is a label we can't shake. Not much worse can be thrust upon us. We are mortal and if we never thought about it before, we sure do now. I have thought about my cancer every day now for nearly 3 years. I can't even count how many times a day I think about it. Maybe it is only once a day. But for 16 or 20 hours at a time. I believe that when I find myself concentrating on another task it only is temporairily displacing my cancer thoughts. How come I am not chronicly depressed or completely nuts? It is because I deal with this as a challenge and I don't concede an inch. I will fight this with the tenacity of the Terminator robot. I have setbacks. But also victories. At this time 2 years ago I was in much pain and had difficulty walking due to bone mets. Percocets were like M&M's. I would nearly pass out from chest and back pain. Giving up was not an option. Couple that attitude with the good fortune of finding a doctor who cared, and was able to provide access to the trial drug MDX-1106, I prospered. Returned to weight training, running, golf and riding my Harley. Challenges have continued. I was eliminated from the trial due to some new mets. I have given IL-2 a chance. There has been some effect but I doubt if it will be the cure. It decimated my body. Strength loss, weight loss, mental changes. Now 2 months out, I again have returned to full exercise. Mind is clear and focused. Not a single person who sees me has any idea that I have metastatic cancer. Especially since I remain in better shape than most all other 61 yo's and those much younger. Currently pain free. I feel at least as good as I did many years back prior to diagnosis. I have future plans. (although they are relatively short term of 1-2 years). I am a realist after all. I have no bucket list. I am living it. I do everything I enjoy. I have a wonderful wife and family. You just gotta love grandchildren. That right there should be  enough to motivate anyone.

So for everyone who doesn't know where to turn, is frightened to death, and wonders if the battle is worth it, take control. Seek confirmation from others with this dreaded disease. Then do something about it. Look at those of us who are living. Many here with stage one or two will be cured with surgery. Good for them. Some of us with stage 3 or 4 may also live for a long time. Some won't. That is sad. RIP Tex. He taught us all how to fight, to learn, to do everything in our power and not give up. (I have heard through the grapevine that it was 2 days after Tex passed away that they got him to stop compiling data and to lie down.) He did this for ALL of us. Don't let that effort be wasted. How much more support can there be? Take your diagnosis and deal with it. Ride the emotional roller coaster. Then get off, live, love, and fight. The cure is just around the corner. But we must be here to benefit. We have cancer. We do not give up. We live. No one is alone. Share the Karma.

Smitty65
Posts: 11
Joined: Nov 2013

Lymphoma really expected this thread to go away after like a week. But everyone keeps adding to it.I was having a really bad day yesterday and I came on to see what everyone was talking about and was amazed to see that this was going still. Renee I'm really happy that I could help you.it is so nice to know that other people feel the same way you do.

Although I'm doing better I still deal with the hypochondria that comes along with that diagnosis (I'm currently fighting the thought of having lymphoma because of a small bean size growth that may or may not be a lymph node) I just have to keep reminding myself that all my scans pathology and blood work has come back negative. 

we all have to remember that science is on our side and even if something comes up they will catch it before it gets bad. I love you all so much and pray for you everyday. God is great there is a reason for everything.

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

OK, around here you will find "ears" that will listen... "shoulders" to cry on... "hugz" of understanding, "knowledge" to bring hope and move forward..  And every now and then a "Swift" kick in the back side to help you move forward.  We all care about each other and will not sugar coat the bad stuff and help celebrate the good...  Kind of like life, don't you think..?

Ron

Rosie5511's picture
Rosie5511
Posts: 6
Joined: Sep 2013

Oh its so difficult for me right now ..........I have been in my journey for 3 and half months, I have good and bad days, but when fear creeps in it takes control of my whole day.  I start feeling pain, my abdomen gets swollen, the BULGE gets bigger, and I cant concentrate at work, I feel like if I was fresh out of surgery.  Saying the word CANCER is painful.  My tumor was 4.5 cm (clear cell) and contained to my right kidney no metastatis to the sourranding tissue, I know I have a positive future and will do fine, but I must beleive this truly believe it and accept this with bravery and continue on this journey, I know that I am not broken, that this is happening for a reason, I am looking at life with different colored glasses, everything that would bother me before is so trivial and small.  I have not joined a support group cause I find that when I talk about my cancer I cry and cant speak, I have tears in my eyes as I write this.  I know the day will come when I can speak about it without a tear.

I log in and read these pages and I find confort in your words...thank you.

icemantoo's picture
icemantoo
Posts: 1592
Joined: Jan 2010

Rosie,

It appears you are a little bashful. You joined in September and waited until today to talk about that beautiful little bulge. Don't worry it should go back to normal within a year and by next summer you should be back in that bikini.

 

My comments to Renee above are equally applicable to you.

 

My neighbor Faye across the street had her surgery when she was 64 and has 18 years to go before she hits 100.

 

 

Icemantoo

Jojo61's picture
Jojo61
Posts: 407
Joined: Oct 2013

Glad to hear that I can get into a bikini by summer, Icemantoo! Between what you and Ron have been telling me, I think I will end up looking better than when I started!

I must say that my incision is still quite swollen - it has only been 11 days, but I was starting to worry that it is kind of slow in going down. I still have my staples in. 6 holes....one of them really big. I did panic in the hospital a bit. They were trying to go through an old incision but couldn't. First time I looked in the mirror, after they took the surgical tape off and informed me that they couldn't go through the existing incision, I went to the bathroom to have a look....I came out and told my hubby that they did 2 large incisions. I didn't have my glasses on. I showed my hubby and he burst out laughing. What I saw as an incision was just the magic marker line that they drew on. LOL!

But I am going stir crazy. So, a couple of days ago we went grocery shopping and 1 1/2 hours later I was hurting. Lesson learned.  I am doing light laundry and cooking. Not too much, is it?

Not on any meds at all. Not sleeping great though, either. (getting to excited to see Santa, maybe) I am going to my family doctor on Monday to get the staples removed - I think I will talk to him about it. Even gravol isn't helping. I think I need to tire my body out or something.....vicious circle.

Cheers!

Jojo

 

 

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

Hi Jojo,

 You sound like you are doing very well all things considered! Don't try to do too much too soon though, definately no stretching, bending or lifting. They have had to cut through some thick muscle and your body needs to do a lot of repair work, you don't want to risk any herniation. As it is that swelling will take a while to go down.

 In the first few weeks, I used to go for a walk twice a day, I sufferred a lot from fatigue, which is normal, so I would sleep in the afternoons. I can remember having problems sleeping through the nights though, I used to pace around the house quite a bit. Around the five to six week mark I got back into swimming, that helped a lot in improving my energy level and mobility. 

I know it is frustrating having to take it easy, you just want to get things back to normal. Just remember to take things slowly:)

 

Djinnie x

 

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

Hi Rosie, 

Snap! I also had a 4.5 clear cell right kidney, the tumour was evicted in March. It is hard I know but maybe a support group is exactly what you need right now. The fact that they have walked in your shoes you will find nothing but empathy. If you are not quite ready to talk that will be ok you can just listen, it will help you feel less isolated with this. You know that crying is very healing you should let yourself have a good cry, in fact why not push the boat out and have several. A support group is exactly what it says on the box, whether you talk or just cry:)

We are all here to support you whenever you need it!

 

Djinnie x

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