Nov 22, 2013 - 1:11 pm
Hi, just wanted to check in with an update and good positive news.
Ruben completed treatment in June, (tonsillectomy, G-tube placemnt, 35 rads, 3 concurrent chemo's) and was declared NED approx. 6 weeks later.
Progress has been slow, but pretty much steady. Stamina is low, but improving; he's starting to eat with the help of Megace, but the majority of his nourishment is from he tube; wt. is down 50 lbs, but we 'fattened' him up before treatment (plus he was overweight to begin with), so all is well there; his swallowing is intact; taste buds are sparking at about 50%, food tastes like cardboard... mostly due to the lack of saliva; saliva is about 25%; no nausea; no sore throat; occassional sore pops up on his tongue, but is managed by a trouch or chloraseptic spray; no teeth issues to date, which is a concern, so he's faithful with flossing, using Biotene products and drinking water; his throat has some 'radiation' changes that look similar to the puffiness on the inside of his cheeks, which coincided with the return of his sleep apnea; I notice he is not a sharp as he was before treatment, but I'm attributing most of this change to lack of proper nourishment and sleep (I'm aware of 'chemo' brain, which is also a possibility), but he's more alert when he does receive enough sleep (due to a V-pap machine) and the proper amount of nourishment.
There you have it in a nutshell from a huge tree! Jamie wrote a beautiful prayer I hope most of you have read. We are not alone, we have eachother, and best of all, we have a loving God who cares.
Take care my friends. God Bless.
Big heartfelt hugs.
(Ruben and) Jude