Nov 22, 2013 - 9:56 am
I am new to this forum and am using another username until I can figure out how to register. I have a few questions:
i am going to a leading cancer hospital For treatment . They have put me on a strong dose of harmonies , and a new drug called Xtandi,
i am concerned because I am so tired all the time and my bones heart me so bad that I am phiscaly unable at time to move.
i brought this to my doctors attention and he said he will remove me from the drug. My issue is that it took three months to get approved from my insurance company that I'm afraid if I am removed off the drug that my insurance will take another three months to approve another drug. As well as harmonies will only prevent the growth for 6 to 12 months. It is stage three prostate cancer, and I'm in to this 4 months already.
when I was diagnosed the cancer was wraped around my Collen and around my blatter, it didn't penetrate ether, but did affect my sex glans.
Last month they did do a PET scan and found that it is staying ideal but a new grown was found in my lymph notes.
I have a lot of concerns on stoping the drug, I don't know how long it will pro long my life. Or even if it will shrink the cancer enough to do surgery.
has anybody tried this drug and what can I really expect. Is it worth the pain to stay on the drug?
there is a lot of open questions.
i asked the doctor and his response is we can't tell till we have our next PAT scan on what our steps are. This is putting me in phiscall and emotional destrut.