Nov 21, 2013 - 8:30 am
My son is 9 years old and was recently diagnosed with a grade II diffuse fibrillary glioma (astrocytoma) in the mid brainstem. He has suffered migraines since kindergarten and now they have developed into status migraines lasting for weeks at a time. His tumor is in the Mesencephalon. We have been told by his NO that these tumors are normally found in the pons. He has no physical deficits besides general weakness and fatigue at the end of the day, but has significant cognitive deficits. We have been told it is inoperable and are taking a wait and see approach. As this type of tumor is normally found in the PONS, it has been a challenge to find any information regarding expectations for the future. We have been given no prognosis or disease progression other than a list of symptoms to be aware of. Is there anyone that has experience with this type of tumor in this location that can give us some insight on what we can expect going forward?