Am I nuts?

wholfmeister
wholfmeister Member Posts: 315
in Ovarian Cancer #1

This morning, before leaving for work, I swear, I read a posting from an 18 year old woman asking from advice.  I had some good thoughts I thought would be helpful to share, but needed to get to work.  Now that I have time to respond...the posting is no where to be found!  What's the deal?

I know I'm nuts...I a Buckeye...but this is crazy nuts.

Comments

  • greta
    greta Member Posts: 237
    #2
    My bad...

    I apologize.  I removed it in error, but was able to restore it. Sorry for the confusion!

    Greta

  • syn
    syn Member Posts: 11
    #3
    greta said:

    My bad...

    I apologize.  I removed it in error, but was able to restore it. Sorry for the confusion!

    Greta

    that was my posting...

    And it doesn't even say it's been deleted. I was wondering why nobody had responded to it. Should I repost it? I'm unfamiliar with how this site works.

  • wholfmeister
    wholfmeister Member Posts: 315
    #4
    syn said:

    that was my posting...

    And it doesn't even say it's been deleted. I was wondering why nobody had responded to it. Should I repost it? I'm unfamiliar with how this site works.

    It might help to repost

    You may get more responses if you repost.

    I just wanted to tell you that of course, you are entitled to complete honesty from your physician.  Unless you have signed a specific consent to allow your health care provider to share information with your family, they should not be doing so.  It is possible in all the paperwork we sign without really reading, that you did sign such a consent.  No matter!  You can easily revoke such consent by telling the provider you want to revoke it.  Make an appointment and go by yourself.  Be calm and non-hysterical.  Ask for a complete expanation of all tests, procedures, surgery and treatments so far.  Ask about ALL treatment options for the future.  (Having such a conversation is not unusual.  For many of us, the cancer diagnosis was shocking...we couldn't breathe, let alone think what questions we should be asking.  After it all sinks in, then we went back and could ask and discuss.)  Insist your physician and his office provide information to YOU so YOU can make decisions.  Judging from the way you write, I think you can do this!!

    The problem isn't just that the physician isn't being completely honest with you.  The problem is that everyone treats you as a delicate flower who can't handle the very difficult information/situation.  So, you need to have a similar calm, non-hysterical conversation with your family.  They need to hear from you clearly that you need and want to know all the facts so you can make decisions.

    Cancer, ovaarian cancer in particular, brings lots of uncertainty.  Don't be surprised if your physician doesn't have a definite plan...he is "waiting to see" how your cancer reacts or how the test results turn out.  It may seem like trial-and-error.  That is the nature of the beast.

    Welcome to the discussion board.  Cancer sucks, and I am so sorry you have to deal with it.

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