Nov 17, 2013 - 6:38 pm
Was not expecting this reaction so soon. I have seen photos of mucositis and now am afraid I am headed in that direction. Both sides of my tongue are sore and have lots of small red spots on them and I have only had 7 treatments out of 33. This is not good. I had asked the R/O RN 2 weeks ago to see about getting me some Mugard or Caphosol which many of you have recommended. I did let her know that these need to be used as a preventative and not to wait until one already has sores. Well, here we are. I received a call from the Caphosol co. Friday, they have the script and said that it would cost $1000! My ins. Cigna pays 0. Wow, and I thought the Mugard was high.
I have been doing mouth care religiously, and swishing with the saline, baking soda and water several times a day. Also use Biotene to rinse with. I really do not know what else to do at this point.
Which do you all think works best Mugard or Caphosol for mouth/tongue sores? Do they work if the sores have already begun?