Nov 15, 2013 - 8:43 pm
Hi! I've been to this message board many times in the last 5 months. Thank you for posting your experiences and advice to let us know we're not alone.
Over a year ago I started losing my voice and was being treated for allergies and GERD. Finally in June 2013 I had a day where I couldn't breath. Long story short, a biopsy revealed I had cancerous tumors on my larynx. Big enough to obstruct my airway the ENT did a trache. I barely had a voice before but since June I've had NO voice at all. Only recently I can make a scratchy voice but mostly whisper.
Two tumors were idenitified right on my larynx. One a little tricky because it curved around it. I did the 35 radiation treatments and 3 chemo. They zapped the lymphnodes too just in case although the pet scan didn't show anything. I did ok through the treatments. Plenty of tired days, felt weak, very sore throat but managed to go without a peg tube, Lost 30 lbs though. The worse was the coughing and mucus that never seem to end.
I finished the treatment the last day of august 2013. So it's been 2 1/2 months. That first month was when fatigue really hit me, could barely walk! Now I feel stronger even doing some yard work but the trache is driving me crazy!!!! The mucus isn't bad anymore but the ENT says there is still too much swelling around my larynx. He can visibly see one of the tumors is gone and says the other looks like a little scab. I go next week for another petscan to see if the tumors are gone.
Anyway back to the trache. I HATE IT. Now I have a hard bullfrog looking swelling under my chin and it hurts. I am trying to massage it and read up about lymphnode massage techniques. Under the trache itches like crazy. I have a dry cough that makes it hard to sleep. Just this past week I am getting blood streaks through the inner cannula so I bought a humidifier hoping it will help. Good news is I can eat just about anything now (Just in time for Thanksgiving) but my throat is still a little sore.
Still no voice. Pretty miserable since I am a music teacher and performer. I haven't called my family for a year, but some have visited. I feel like once the trache is removed I finally will start to heal. Very depressing for me.
I am also an artist and made an altered collage book using actual vintage images about my cancer. It is on pinterest. It is a kinda commical and was therapeutic for me. It's not done yet :)