Nov 14, 2013 - 7:50 pm
It has been awhile since I have posted, sorry. My prayers go out to those struggling. Thanks to those that are leading the way in trials. I am very happy to read that some of you are having success.
My run on HDIL2 came to a halt as my kidney and liver could not take the stress. Doctors stated that if I continued and levels rose 3 times above norms, it could possibly preclude me from many future treatments. It was really disapointing as the follow up CT showed that the lung nodules were reduced in size to some degree. The good news is that the nodules were reduced in size, no growth.
I am now on Sutent 50mg, two weeks on, one week off. Side effects have been minimal and manageable. Dry mouth, diarrhea, no taste, tired. I am still working full time with travel, playing a little golf (if you can call it that), walked my daughter down the isle and many other enjoyabe moments. I scan again after a few morevrounds and will keep the board posted.
The nivolumab trials are very incouraging, thank Darron, Fox and the rest for leading the way.
A good friend fighting breast cancer with mets to her lungs recently said it best:
"Yesterday is the past, tomorrow has never been a guarantee, make sure you make the most of today".
I will take her recommendation and hope you all do as well. Thank you all for being here when I have needed it the most, you regulars are serving a great purpose imho.