Nov 14, 2013 - 9:19 am
I'm glad that our cancer is so rare that there aren't very many of us out in the world, but it is frustrating in some ways because it's difficult to find and maintain connections on boards like this one. I check here frequently, but it seems as though the members from the past are either recovering well, or have lost the fight and don't come here anymore (not that I blame the family members at all). It's just tough because I beleive it helps each and every one of us to stay connected and talk to each other - after all, who knows better than us what we are going through? I am hoping we can forge some tight bonds and continue to help each other out. I personally have a WHO grade II diffuse fibrillary astrocytoma that was 99% resected this past July 11th. My last MRI was in October and was clear for any regrowth. I'm scheduled for another MRI and an EEG this coming April. I see an NO at Mayo Clinic in Rochester, MN.