Nov 09, 2013 - 10:28 pm
Hi everyone. I have been reading a lot of the posts on here for the last few days. I was diagnosed in September 2009 with Diffuse B cell NHL. I went in for rutine surgery to remove my ovaries and woke from surgery cut from hip to hip instead of the four one inch incisions that I was expecting. They had found that one of my ovaries was 14 cm and the other was 3 cm. The lynphoma had completely taken over my ovaries and there was no ovarian tissue left. It was all large B cell lymphoma. After CT and Pet scans thet found involvolment in my hip and in my abdomen behind my heart. They also did a bone marrow biopsy and there was involvement there. I was in stage IV. My first thoughts were of my family. I have been married 38 years and we have four grown children and 12 grandchildren. I received four rounds of R-CHOP with the Neulasta shot the following day. After the chemo I was in remission in February . During my treatment I was also taking a study drug called Enzataurin. In October they thought there had been some growth in the spot beHind my heart after a CT scan. He ordered a PET scan and a needle biopsy of the node behind my heart which had to be done under a CT scan with me awake. They both came back good and I was still in remission. I had another scare the following year that turned out to be fine also. I went in June for another CT scan and he was concerned about a node in my groin area. He had me come back in three months to check for growth. This scan showed another gland on the other side that had conciderable growth. He ordered a PET scan and a few places lit up. He sent me to a surgeon to do a biopsy on the node but the surgeon was afraid to do it because it was in an extremely venous area. So he did the biopsy on the one on the other side. It came back possitive for Follicular Lymphoma. After that he sent me for a needle biopsy on the larger node which had to be done under a CT scan because of the area it was in. He also did a bone marrow biopsy at the same time. He was unable to get enough of the node for a conclosive result, but the marrow was clear. He is sending me to Vanderbilt Ingram Cancer Center on Monday to speak with a doctor about Stem cell or bone marrow teansplant. I am absolutely terrified. My husband and my children all do not want to talk about it and I just don't have anyone else but the Lord to talk to. Any info would be greatly appreciated.