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What worked for you?

Loewenhart
Posts: 26
Joined: Nov 2013

Hello friends,

I'm looking for survivors of aggressive ovarian cancer and would like to ask:  What drug treatments/alternative therapies/foods worked for you?

Thank you for your time and sharing.

2timothy1 7's picture
2timothy1 7
Posts: 345
Joined: Jan 2012

Hello,

i was dx nov2011, 3c,grade3. 6 rounds taxol/cisplatin IV&IP: 7 months remission. April 2013 clinical trial with olaparib, 7 months stable and counting, ca 125 is 16 now

What have you been treated with?

Lisa 00
Posts: 122
Joined: Jul 2009

Hi there,

Part of my ovarian tumor was clear cell, an agressive type.  I had taxol and carboplatin, 6 rounds plus 5 weeks of external radiation.  The only thing I really do differently now is drink a large glass of green tea every night.  Depending on how much I want to make, I'll brew 3 to 5 tea bags in a 2 cup pyrex measuring cup for 19 minutes.  Then I mix in ice, fresh lemon juice, agave and maybe a little water.  An oncologist said you shouldn't drink lots of green tea during your chemo treatment period because it somehow interferes with the chemo, so I started after treatments were over. 

Anyway, I just made it to 5 years cancer free!  I wish you the best. 

Loewenhart
Posts: 26
Joined: Nov 2013

Thank you LIsa

The carbo/taxol didn't work for me. I asked about the radiation and the oncologist just shook her head. I've now been referred for possible clinical trials. I wait....and wait...I will try the green tea--can't hurt. 

Loewenhart
Posts: 26
Joined: Nov 2013

Hello

Sounds llike you are doing well.

I have advanced ovarian cancer . I received 3 rounds of Carbo/taxol, then surgery, then another 3 ounds of Carbo/taxol. I've been referred for possible clinical trials ant Princess Margaret Hospital in Toronto and so I wait....

Glad to be done's picture
Glad to be done
Posts: 563
Joined: Jul 2012

I was diagnosed January 2012 with Stage 3c grade 3 after my hysterectomy.    I did six rounds of cisplatian/taxol IV/IP...  My CA level was in the high 200's before surgery.  The day I started chemo it was 19.  Today it is 5.8...  17 months cancer free so far.....

Loewenhart
Posts: 26
Joined: Nov 2013

That's wonderful news. Thank you for sharing

kikz's picture
kikz
Posts: 1300
Joined: Jun 2010

Three rounds taxol/carbo needed to shrink tumors enough for surgery.  Then complete hysterectomy,  oophorectomy and salpingectomy.  I then had eight more chemo infusions (too sick for 9th).  I had 5 taxol and 3 cisplatin  I was in remission for 18 months.  Completed 4 taxol/carbo this past spring/summer and am in remission again.  I have my first CA 125 next month and am scared of course.

We all pretty much share the same journey.

 

Karen

Alexandra's picture
Alexandra
Posts: 1301
Joined: Jul 2012

I am very sorry about your sister-in-law's suffering and death. May she rest in peace.

However I don't see how having a sick relative qualifies you to dispense questionable at best health advice to a roomful of ovarian cancer patients and survivors. I don't wish you any harm. But if god forbid you get diagnosed with cancer, put your money where your mouth is: fire your greedy and ignorant oncologist, refuse chemo / radiation, throw out your microwave and deodorant; and then come back in 6 months and update us on how it worked out for you.

Regards,

Alexandra

PS.  TROLL definition from Urban Dictionary: One who posts a deliberately provocative message to a newsgroup or message board with the intention of causing maximum disruption and argument

seatown's picture
seatown
Posts: 262
Joined: Sep 2012

Good for you. But you have no idea of what's good for anyone else.

scatsm's picture
scatsm
Posts: 267
Joined: Apr 2013

BOOM!

you are too much (of a good thing).

Jbahama...best of luck to you.

JoWin615's picture
JoWin615
Posts: 144
Joined: Feb 2011

scatsm, you beat me to it!

 Alexandra, you rock.

Loewenhart, I'm a lllC. I tolerated Carbo/taxol pretty well, recurred after seven months, then went on Carbo/Gemzar, which worked beautifully and was easily tolerated. It's been four months since I've had any chemo, and I am cautiously optimistic. Chemo saved my life.

Karen, I love your profile pic!

Even though I don't post here much, I feel as though I know you all. 

Cheers, to remission!

Jo

 

lovesanimals's picture
lovesanimals
Posts: 1331
Joined: Sep 2011

Whatever treatment you decide on, I'm praying that it kicks your cancer's butt!

Hugs,

Kelly

Loewenhart
Posts: 26
Joined: Nov 2013

Feeling your hugs Kelly, thank you!

Mwee's picture
Mwee
Posts: 1331
Joined: Nov 2009

diagnosed May 2006, 3C. Been through the surgery, initial round of chemo and then I enjoyed a 3 year remission. I've been on several kinds of chemo and what works on one of us may not be the silver bullet for another, but carbo/taxol did the trick for me the first time and cisplatin/gemzar is my best friend right now. It keeps me stable and if you saw me in the grocery store, I'll bet you've never guess. I eat lots of healthy foods because I always have, but I don't do any alterntive therapies. I do enjoy yoga and I listen to audiobooks while drifting off to sleep to quiet any "what if" thoughts.

We're here to help in any way we can.      (((((HUGS)))))   Maria

Loewenhart
Posts: 26
Joined: Nov 2013

Hi Maria 

You are an inspiration. Do you get cisplatin/gemzar on an ongoing basis? 

I work hard to keep those negative thoughts out of my mind but sometimes it's a struggle. I love this board as it connects me to people who totally understand.

Hugs back to you

Mo

Mwee's picture
Mwee
Posts: 1331
Joined: Nov 2009

There's nothing like being understood! I get cisplatin/gemzar one week and gemzar the next. Then I get 2 weeks off. I know how scary that sounds, but it is doable. I can take time off when I wish, but I try to stick to the routine as best as I can.

Those negative thoughts are with all of us. Sometimes they whisper and sometimes they scream. I hesitate talking about being on long term chemo. Most here will not have to do that, but I want you to know that I'm here.... 7 years after diagnosis..... loving every minute that I'm up and around!

                                              (((((((HUGS)))))))   Maria

lovesanimals's picture
lovesanimals
Posts: 1331
Joined: Sep 2011

It is so good to hear from you.  I think about you often because I know you are on chemo for the long term.  Clearly, you are as strong and supportive as ever to all of your teal sisters!

Wishing you and all of these strong women the best, especially as we head into the holiday season.

Hugs back,

Kelly

seatown's picture
seatown
Posts: 262
Joined: Sep 2012

Please peddle your voodoo elsewhere. Sealed

NoTimeForCancer's picture
NoTimeForCancer
Posts: 775
Joined: Mar 2013

Jbahama, no one is denying you the right to say what you want, but no one here is buying, so please just move along. 

Sandy3185's picture
Sandy3185
Posts: 62
Joined: Oct 2013

Jbahama, we all know that what you eat, breath, touch can affect your health. But to jump from that to saying that medical treatment is useless is an enormous leap. Medical treatment offers the best possible outcome. Your suggestions mAy make a great adjunctive treatment but certainly cannot be relied on to destroy a cancer lurking and growing in your body! Your personal experiences are all things that are known to improve with the loss of excess weight a healthier lifestyle. You have NOT walked in our shoes!

Cafewoman53's picture
Cafewoman53
Posts: 742
Joined: Jul 2010

I am glad you are healthy and I hope you stay that way. But whatever drives you to think you can tell us what we are doing to save our lives is wrong is going to get you in the end.

Colleen

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