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Obamacare and cancer....keeping your doctors

Marynb
Posts: 1134
Joined: Aug 2012

This oped in the Washington Post about the impact of ObamaCare on cancer patients. For those of you who don't think this applies to you, because you are covered by your employer......wait until the law applies to you next year. The Obama administration delayed applicability of the law to employer based insurance until next year because they knew that would delay the biggest impact. It will happen.

http://online.wsj.com/news/articles/SB10001424052702304527504579171710423780446

mp327's picture
mp327
Posts: 3120
Joined: Jan 2010

I think this country is going to see a big shift in who is uninsured.  Employers are NOT going to foot the bill for all of these things, so employees will be stuck holding the bag.  As Delta Airlines and UPS has already done, full-time employees who have had good jobs and good insurance for themselves and their dependents and have not been any kind of burden on society when it comes to their medical bills will suddenly find themselves with a part-time job that does not make them eligible for employer-based ins. plans.  Either that or the only person eligible for coverage will be the employee and not any of his/her dependents.  I see this as an avalanche of problems yet to come.  Well done, Mr. O.

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Lorikat
Posts: 566
Joined: Jul 2011

Amen.

 

Marynb
Posts: 1134
Joined: Aug 2012

I am pulling my hair out at this point. The prices have jumped so high, I just can't afford it. For the first time, I feel like I might die because I can't afford these new prices with the high deductibles. Also, they have really narrowed the network of providers. I am thinking I may have to sell my home.

What a situation. I am so, so sorry that I voted for him. I actually believed him when he said it would lower the cost !!!! Not true at all for anyone who doesn't qualify for government subsidy.

I don't know what the heck I am going to do. I did not need this stress.

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mp327
Posts: 3120
Joined: Jan 2010

I am so sorry you now find yourself in this position.  I know it is so very stressful and it really doesn't help to know that many others are going to find themselves in the same boat.  It only makes me sick to my stomach.  This is such a disaster, but what I can't believe is how it's still being touted as a good thing.  Political spinning is way out of control on this one.  They need to just pull the plug on it.

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sephie
Posts: 544
Joined: Apr 2009

i am so sorry for your stress..... is there any way that you can send what has happened to you to Obama???? i know that sounds crazy but someone needs to get your email....or a lot of folks in washington need to get your emails......i am still not sure about my insurance because they still have time to drop me, i guess.... i already pay a huge amt.  per month with $5600 deductible....i guess they feel since i pay this much now that i must have money to throw out .... at this time , it is my most expensive bill to pay.... hope you can handle this...... sephie

Marynb
Posts: 1134
Joined: Aug 2012

Well, I am just one of many MILLIONS of people being effected by this debacle. I am a private and proud person. I have never taken one penny of government aid and I don't want to start now. Trust me, they just do not care about what they are doing to people . I have just learned that insurance companies are dropping coverage for some of the best cancer hospitals.

Marynb
Posts: 1134
Joined: Aug 2012

Another thought. Anyone who thinks they will keep their coverage as it is, is fooling themselves. Next year there will be more cancellation notices for those insured through their employers.

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mp327
Posts: 3120
Joined: Jan 2010

Exactly!  There has been much discussion about ACA on Facebook, with many people almost bragging that their current coverage is not changing.  I hate to have to remind them that most, if not all, ins companies make changes prior to new enrollment periods, which usually take effect at the beginning of a calendar year.  While coverage may not change for 2014, ins companies will be busy during that year coming up with ways to keep more money and pay fewer benefits.  That will all add up to less coverage, higher premiums, higher deductibles and out-of-pocket amounts, and fewer in-network providers.  Employers will also be taking a hard look at the health benefits they pay all or a portion of for their employees and dependents and many people will suddenly be ineligible for health benefits.  I hate to be gloom and doom about this, but I don't see how it will unfold any other way. 

Marynb
Posts: 1134
Joined: Aug 2012

Actually, it is even more cynical than that. Seeing what was coming, Obama administration delayed the Employer mandate until 2015, after the 2014 elections! The same thing is going to happen to those covered by employer plans...in 2015! Most people are covered by employer plans, so they are dismissing those of us in the direct market as, "only 5% of the population". This is millions of people being dismissed. Unless something is done, the same thing will happen to the rest of Americans after the election. Funny, how people only seem to care about what effects them personally.

Lorikat's picture
Lorikat
Posts: 566
Joined: Jul 2011

I have argued this point with people from day one!  Nothing is free and NOTHING is safe!  Employee offered insurance has and will change.  people with government insurance (retired And survivors) need to watch out as well.  I have always had health insurance for me and mine, and my kids now have health insurance for their families.  But tomorrow?  One can only hope!  I was told that everyone felt the same way about social security when it came into being.....   I can only pray That eventually this will "shake out".  I just hope it doesn't kill us in the mean time!

 

Phoebesnow
Posts: 453
Joined: Apr 2011

Well said Lorikat!  Change is scary for all of us.  The change I am afraid will be more than a financial burden.  But it has to be done.  I remember losing my job and health insurance. In my early twenties.  I was 3500 miles away from home collecting unemployment, paying for my apartment, car payment, car insurance  and some credit card bills.  Barely making it in the real world.  I did a breast exam occasionally, I found a lump, a hard one.  I called every government agency, no assistance was available to me.  I waited several week before I discovered the LA FREE CLINIC who did the biopsy for me, which was benign.  If I had needed further treatment, my only recourse would have been my parents.  If I didn't have parents, I don't know what would have happened to me.

I am afraid that for the average person like myself will suffer long waiting periods for appointments, more rushed appointments, and less granting of requestsfor scans MRI's and blood tests.  I am still trying to find out what kind of ataxia I have and what is my main condition as ataxia is just a symtom.

 

My insurance has gone up 80 dollars for this year with the policy remaining the same.  Grandfathering they call it.  I trust this company and believe it will be the same in the future.  I hope they open more facilities.

 

I am happy for all the people who will now have insurance and yet I am sad for all the people like Mary who are at this time being hurt by this.  

Marynb
Posts: 1134
Joined: Aug 2012

I believe in health care reform. This is not a good answer to the problem. I am also a person who embraces change, if it is for the better. This is not for the better. The Massachusetts plan works very well. That was a bipartisan effort between Republicans and Democrats. There are NOT long waits, the cost has not sky rocketed, and almost 100% of Massachusetts residents now have insurance and they like it! The difference? There are MANY companies competing on the health care connector. It worked well in Massachusetts.

The problem in many states is that there is not enough competiton, so the prices have gone up. Also, the new requirements of Obamacare on all policies has raised the cost to everyone. If the cost only went up 800 dollars, that would be fine. It has gone up Thousands of dollars for many.

That being said, there is one thing that is great for cancer survivors. That is we can no longer be denied for pre existing conditions.

Here is a link put out by Livestrong Foundation on what the ACA means for cancer survivors. I have not read it all yet.

http://www.livestrong.org/aca/?utm_medium=email&utm_campaign=advocacy-updates&utm_source=november-email

Marynb
Posts: 1134
Joined: Aug 2012

Social Security and Medicaid are not comparable to this mess. A single payor system would be comparable. This new plan is government mandating that we participate in the private insurance sector, where the private insurance companies set the price and make the huge profits! Very, very different. This is not a government program. The government has no control over the price!

Lorikat's picture
Lorikat
Posts: 566
Joined: Jul 2011

Marynb, I DO realize this is very (VERY) different.  The point I was trying to make is that EVERYONE will be affected.  I have heard people assure each other that THEY will not be affected. They will.  Wish we could really discuss this, as I need to know more, but this is probably not the place.  I guess I wI'll have to go back to the sixties and join with sit ins and rallies....

Marynb
Posts: 1134
Joined: Aug 2012

Lol. I do remember those sit ins! I think one of the problems with this big change in the health care system is that there has been a lack of information, a lot of misinformation, and deliberate misleading information....aka, lies.

We should know what we are getting, but we don't. The website lacks information about network providers, coverage, etc. As we all know, price is not the most important information. Lots of plans are narrowing networks so that major cancer hospitals are eliminated. Not good.

I think this is the forum. Cancer patients and survivors are dependent on health insurance that allows us to go to the specialists who can help save us. Healthy people may not be aware of all the pitfalls of limited insurance coverage.

kihonkumite
Posts: 14
Joined: Oct 2013

I am in a similar position. So, today just to vent I went on the White House website. There's a place on there where you can write to President Obama. I did.

Hope he listens.

Trew
Posts: 892
Joined: Jan 2010

As I understand it, all new exchanges mandated by ObamaCare are administered and sold through private insurance companies now  operating under new government mandates- laws- regulations-  which means more costs for us as we are seeing everywhere.

 

 

 

Marynb
Posts: 1134
Joined: Aug 2012

Hi. I am not sure what your point is. I do agree that it is important to live a healthy lifestyle. I was a very healthy 58 year old when I was diagnosed with The first cancer. I am not dependent on any prescription drugs now or ever. I rarely even take a tylenol, yet, I have had cancer twice now. I always ate healthy and have exercised all my life. Up until now, the insurance companies have profited from me because I never got sick before now. So, what exactly is your point? I do think that the public needs to put more pressure on the uSDA to label foods, such as GMO's. I don't want to eat genetically altered foods.

Marynb
Posts: 1134
Joined: Aug 2012

Good post and I agree with everything you say. However, at this point in time, what do you expect a cancer patient to do when there is a diagnosis? I too have lost family and friends to this disease. I do what I can to eliminate the known toxins in my enviornment. However, when I accepted the treatment that was offered at the best cancer hospital I could get to. Sadly, there is not the amount of money spent on research on the effects of diet on the body. I shudder everytime that I go to the grocery store and see all of the fake food on the shelves and in the baskets of uneducated people. At this time, all we can do is try our best to eat whole organic non GMO foods, eliminate chemicals as best we can, lobby for clean air and clean water, exercise, sleep well. We live in a polluted, chemical world.

Marynb
Posts: 1134
Joined: Aug 2012

There are many here who will attest to the fact that the treatments work to cure anal cancer. Easy for you to say you would not accept treatment! Until you walk in the shoes of a person with cancer, you should not advise anyone to reject treatment.

You are right about prevention and avoiding toxins. The sad truth is that organic clean foods are not available in many parts of this country. The large food chains carry very little organic produce because people just can't afford it. I do believe we have to do more to educate people about toxins. Telling cancer patients to reject treatment is WRONG!

eihtak
Posts: 887
Joined: Oct 2011

........the most effective method of controlling people is to instill fear in them????????? Not always!!

Are you trying to instill fear? Are you afraid yourself maybe?

Anyway, this is a place welcome for cancer survivors and others to inspire, encourage, and support each other and to ease the fear we face with cancer, treatment, and recovery. Everyone reacts different, and I'm sorry that right now you only see the negative side, but we here are LIVING proof of the positives that have come out of the hard work and research of many people. I am thankful for that.

Be well..........

z's picture
z
Posts: 1273
Joined: May 2009

Why are you posting on a cancer site since you don't have cancer.  I was cured of anal cancer with the standard tx.  I don't appreciate you coming on this site and telling survivors how you wouldn't do what most of us have done.  Go preach at your drs office and let them know how you feel. 

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mp327
Posts: 3120
Joined: Jan 2010

I question too why you are on this site telling all of us who have had the conventional treatment that we should have gone another route--that our treatment did us more harm than good.  Well, let me tell you, I am a 5-year survivor and I am so very thankful that such treatment exists for people with anal cancer.  For someone who has never had cancer to come on this site to dispute that just plain pisses me off.  You may have seen cancer secondhand when someone you knew or loved went through treatment, but to say that you would never submit to said treatment when you haven't had to make that choice is ridiculous.  Yes, this treatment is brutal and perhaps even barbaric, but it's all we've got currently that has results that will mean many more years of life for most of us.  I do not welcome your comments. 

Alexandra's picture
Alexandra
Posts: 1271
Joined: Jul 2012

Jbahama was a mentally-unstable man, attacking both CSN Anal and Ovarian cancer boards. Thanks to Greta it was taken care of and he is not coming back. Here is his apology post http://csn.cancer.org/node/264530.

z's picture
z
Posts: 1273
Joined: May 2009

Thank you, for letting us know.  Lori

mp327's picture
mp327
Posts: 3120
Joined: Jan 2010

Thank you for your post on this board letting us know.

Marynb
Posts: 1134
Joined: Aug 2012

Maybe I missed something? Although I disagreed with him about whether or not to seek treatment, he had some very good points. As cancer survivors, it is really important for us to be aware of how to prevent this disease in the first place. Just my opinion.

pializ
Posts: 308
Joined: Nov 2012

I felt that the poster was someone who was recently bereaved and going through the grief process. Anger is a part of grief & in fairness,  when treatment fails, it is so distressing. I am sorry for their distress.

Whilst I hope the traditional treatment for anal cancer has worked for me, I am not happy that it is so barbaric.

I have wondered what made me more vulnerable to its development, but whatever it was, I can't change that. I believe stress in the preceding years as contribuatry, & maybe pollutants are also a factor. I really don't know.

The poster raised some valid points & maybe someday their point will be proved.

Liz

mp327's picture
mp327
Posts: 3120
Joined: Jan 2010

I believe everyone has  right to their own opinion, but I felt that that poster was trying to tell us we were all idiots for going through the traditional treatment.  I don't think fear-mongering should be a part of cancer support.  That said, the anger I understand.

Marynb
Posts: 1134
Joined: Aug 2012

H Martha,

There are many people who say they would not accept chemo and radiation. It is a different opinion and I personally don't give it much weight unless the person expressing the opinion has had a cancer diagnosis. There have been others on this board who have expressed dissatisfaction with the traditional treatment.

I may have missed the post where he called us idiots. The opinions about the environment, diet, and toxins were well stated and true. Oh, well.

eihtak
Posts: 887
Joined: Oct 2011

I think maybe this is just another example of how technology can fail us, as it does not have the ability to truely express emotion and is so easy to misinterpret. Obviously it would have been great to have had this conversation and many others in person or at least over the phone but then we loose some other things, like easy access to the wide range of opinions from all over the world in one place at one time.

The poster may have been well intended with an opinion meant to help, but for own personal reasons it wasn't taken that way by all.  There may have been some hurt or anger on both sides but when dealing with cancer from several perspectives it just plain sucks!!

I think we all intend to support each other without judgement as we move forward in health and but sometimes its difficult to put in words.

I hope this finds you well.........

 

 

 

 

RoseC's picture
RoseC
Posts: 513
Joined: Jun 2011

He made some very nasty comments to the ladies on the Ovarian cancer forum. Those comments have since been deleted.

mp327's picture
mp327
Posts: 3120
Joined: Jan 2010

That poster did not use the word "idiot" to describe anyone on this board and I should have not used that word, but I felt like that was what he/she was inferring.  I just think it's very cruel for someone to come on here and tell a group of cancer survivors that they wouldn't go through the cancer treatment that we did when they have not experienced a cancer diagnosis for themselves.  It's true that chemo/rad was not my only option.  I could have just opted for surgery to remove the cancer and lived with a colostomy.  I also could have told my doctors to go jump in the lake and buy myself 500 pounds of apricot pits (as one person on another website told me would "cure" my cancer), or I could have chosen to do nothing.  I think if that poster would have been faced with those choices, they probably would have been doing the chemo/rad too.  As for the other stuff that they posted, I was so angry after reading part of the post that I just couldn't absorb the rest.  It's true that our environment is killing us, I totally agree with that. 

Marynb
Posts: 1134
Joined: Aug 2012

I did not know about the nasty comments on the other Board. That is a different story!

mp327's picture
mp327
Posts: 3120
Joined: Jan 2010

From what was posted above on this thread, apparently there were comments made on the Ovarian and Anal cancer boards by this person that have since been deleted by the administrator. 

Trew
Posts: 892
Joined: Jan 2010

I hang out over in the Prostate Cancer secton and came in here to see how folk in this catagory of cancer are doing.  This topic has not yet come to us discussing PCa but I would guess it will ow that Obamacare is hitting with full force.  I think every one of us with cancer of one type or another are somewhat anxious about health care changes and so far what I am seeing is frightful.  Sarah Palin warned us about death panels in the bill- and even Obama told us in one of his debates that sometimes just take a pill and die, or close to that.

I am not interested in death panels or just dying. 

I had stage iv prostate cancer.  surgery, radiation, hormone shots, more surgery, wow!  cancer can be expensive.  And my old insurance served me very well.  I hope it survives.  I am moving on into medicare now.  With fear and trembling.....   

 

 

 

Marynb
Posts: 1134
Joined: Aug 2012

It has been disclosed that many major hospitals, including cancer hospitals, are being dropped by Insurance companies Networks due to Obamacare. This especially effects cancer patients. Places like Mayo Clinic and Cedars Sinai, etc. are no longer in Network for many major insurance companies.

Cancer patients need to see what is happening, before it effects them. This is NOT unique to me.

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