Nov 02, 2013 - 4:32 pm
Hi everyone, my name is Jamie (male) and I'm glad to have found this forum.
In September, I was diagnosed with Stage 2 right tonsil cancer, HPV16 positive, spread to two lymph nodes that are side by side. My tonsils were removed (not fun) and the biopsy of the tonsil showed a 2.2 cm tumor that was completely encapsulated within the tonsil that had not spread to surrounding tissue or salivary glands - confirmed with CT scan and biopsy of surrounding tissue. When I healed from surgery I was sent to Mary Bird Perkins Cancer Center and was told that I had to have ALL of my teeth removed, which I did (not fun, either). So, here I am, fixing to begin a treatment plan of weekly low dose cisplatin and 35 rads over 7 weeks.
Since I have had to wait for all this time due to healing from surgeries, the two lymph nodes have enlarged quite a bit. At the first CT scan, the lymph nodes were 3cm & 2cm. Now they are probably 4cm and 3cm (just had another CT scan and the mask made on Thursday, so I don't know the results yet). I had a follow-up with my ENT and I discussed a lump sensation in the back of my throat. She checked me out and said there was no evidence of any tumor re-growth in the area or at the base of the tongue and said what I was feeling was the enlarged nodes pressing in against my throat. Now, a week later, it isn't as tolerable of a sensation as they are pressing in more.
So, my questions or this:
How long does it take for the SCC-HPV tumors to reduce in size?
Is the nausia well managed by the time the throat is burned up from the radiation? (The idea of vomiting stomach bile into a burned throat is horrifying to me)
The treatment table seems to hurt my back (discovered during my mask making experience). Is there anyone that has dealt with this?
What is the most common long-term affects of treatment?
How has the treatment journey been for those of you with treatment plans and diagnosis simlar to mine?
Sorry for the long post and thanks to anyone that replys to this.