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New here,had Open radical nephrectomy on 10-1, 10cmX11cm

craig59
Posts: 8
Joined: Oct 2013

Had Open radical nephrectomy on 10-1,back to work on the 27th so that part is going pretty good,I am woried about what happens next.

the oncologist said we would do a ct scan in Jan of 2014. Does that sound about right? 

icemantoo's picture
icemantoo
Posts: 1655
Joined: Jan 2010

Craig,

 

From your bio it seems like you went thru the same shock and awe as each of us did. Not fun.

Three (3) months is normal for a CT, chest xray and bloodwork. The objective being to catch anything new in the bud. At 10cm by 11cm there is a chance for recurrance. Many on this board are doing well with tunors that were initially that size even in cases of recurrance.

 

 Lets hope the surgery was a total cure.

 

Icemantoo

craig59
Posts: 8
Joined: Oct 2013

Thanks Iceman, this site is full of good information.

This wait and see stuff is rough on the nerves.

angec's picture
angec
Posts: 664
Joined: Mar 2012

Craig, why are you back to work so soon with a radical? Who's idea was it to return to work so soon?  I guess you are doing well, physically but I would have taken more time. Be sure to take it easy, no heavy lifting, drink plenty of water etc.  You sound like a trooper!

If you can in January, see if you can get a whole body /pet ct scan.  Instead of different tests you can have it all in one!  That is the best way to go. But three months is right on schedule.  You are seeing an Oncologist right?  Is he an RCC specialist?  Let us know what your path says if you care to share or need anymore help! Like Iceman said, hope the surgery was the cure!  Be well!

 

HarleyMom117's picture
HarleyMom117
Posts: 27
Joined: Oct 2013

Hi, Craig -- My name is Terri.   I'm a 46-year-old wife & mom who was completely healthy before being hit over the head with the news that I had cancer.   My 4cmx4cm mass was removed in an open radical on 10/2.   I have surgery follow-up next week (11/6) -- just to check my 10" incision, I suppose.   Then I have appts with my urologist and oncologist in January.

I am also suprised that you are back at work already.   While I feel pretty good, my doctor wants me out until after my follow-up (probably 11/11).    How are you feeling??  

craig59
Posts: 8
Joined: Oct 2013

I am a little sore when I bend all the way to the floor but otherwise I feel good.

 

It was my idea to return to work so soon,got to pay the bills.My wife and daughters say that I have a "George Jetson " job,I am in a control room using a mouse to help operate a paper machine.The Urologist first balked but relented when he found out what I do.I am a 54 year old male with 34 yrs at said papermill,not working didn't seem like the thing to do.

 

I don't have a copy of the path report but my Oncologist said that I have positive margins in the vein.I will try to get a copy in Jan.

HarleyMom117's picture
HarleyMom117
Posts: 27
Joined: Oct 2013

I'm not sure what that term means.   If someone can clue me in, I'd appreciate it!

craig59
Posts: 8
Joined: Oct 2013

I am not for sure but I think it is the tissue left behind after all the cuting is over.

Maybe someone with a little more knowledge can clear it up for us.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

means they found cancer cells there and it puts you at a higher risk of recurrence, this does not necessarily mean that it has already spread.  Going forward you will most likely be monitored more closely in case it does pop up and you may be asked to consider drugs and/or trials to reduce the odds that it will.

Skagway Jack's picture
Skagway Jack
Posts: 91
Joined: Oct 2013

I had a right radical nephrectomy on 15 Oct and I am planning to work part time starting 4 November.  I dont expect to engage in my full course of normal duties for about another month.  I am 53 and since surgery I have been walking every day.  I dont have full motion flexibility yet but its improving daily.  Strength will take a while, but I plan to start swimming next week and hope to restore full strength within a couple of months.  I went into this procedure in excellent physical health (with exception of the right kidney tumor).  I hope I am not pushing it too hard, but frankly as a former athlete I find it very hard not to push myself. 

I just had my post op this week and I am scheduled for a follow-up with a blood test in 6 weeks.  Follow up test will very based on individual circumstances but I am told that I will have a CT scan in 6 months and then again at one year. 

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Not a good idea to get back to work so soon...  Does not matter how good you feel, your insides got severely mollested.. nerves and muscles got cut.. .they all need time to heal.  You risk getting a hernia at the incision site if you do too much too soon... wanna see my hernia..?  Rest up, you need it... but keep up the daily walks...

Ron

foxhd's picture
foxhd
Posts: 2059
Joined: Oct 2011

Are you saying that your Dr. has no plans for treatment because radiation and chemo doesn't work? Then why even bother having the surgery? Sounds as if he thinks you have a death sentence. As you should know by now, we are here because of new drugs which are doing great things. You need to push for an oncologist who knows what to do for you.

NanoSecond's picture
NanoSecond
Posts: 604
Joined: Oct 2012

Hi Fox.  Great to have you back with us, so to speak.

I read what Craig wrote too.  But I suspect that his doctor was just referring to the fact that Craig did not have any evidence of further spread and, if so, what he told him was completely true.  There is no proven adjuvant (preventive) chemo or radiation prescribed for RCC patients in that situation - unless or until they develop metastases.

Skagway Jack's picture
Skagway Jack
Posts: 91
Joined: Oct 2013

GSRon,  I took your advice and took another week off.  I will be starting back part time next week.  I feel much improved and have started swimming as my low impact way of slowly getting back my strength.  I have noticed a significant improvement just in the last 4 days espeically in my flexibilty.  As a former competitive swimmer it is very relaxing to get back in the water.  I have noticed I am not needing to take afternoon naps which I take as a sign that my healing has progressed as I dont feel as tired as I did only a week ago. On the subject of hernia's, I asked my doctor if I was at increased risk of that due to the surgery and he said not in the long term.  How far from surgery did you experience yours?  Thanks Jack

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

OK, so I waited 6 weeks to go back to work... then I waited about 5 months to go on my first real motorcycle ride... hit one large bump and rip...  My biggest mistake (other than not waiting long enough) was that I should or worn a kidney belt.  That extra support is helpful.. You can get one at places like Home Depot.  Oh yes, my navel is now off center... funny...

Ron

izzycohen
Posts: 64
Joined: Aug 2013

Craig,

Wow, you really went through a whirlwind.  Sounds like you're recovering well.  The prescribed follow up is basically the same as mine.  I had a CT scan and chest x-ray at two months post-surgery (both NED).  We will do it again at the 5 month mark.

Good luck.

Izzy

 

craig59
Posts: 8
Joined: Oct 2013

It is like what Nano said, no cancer for right now so just watch close and treat it if it comes.

craig59
Posts: 8
Joined: Oct 2013

I have the pathology report now it says under the diagnosis section:clear cell carcinoma,10dm in diameter,nuclear grade 2,invading the perinephric soft tissue. Renal vein margin involved by tumor.

under the gross description it says tumor is present within large vessels within the parenchyma,ureteral margin unremarkable.

I have noticed a hard knot at the lower end of the scar,cant see it but can feel it. anything to worry about??

bcbigb
Posts: 31
Joined: Sep 2013

im 51 year male ,diagnosed sept 3, surgery sept.20. 12cmby 9cm everything removed including 14 lymph nodes.You seem to be back to work too early my doc has me off till next scan in late dec. early jan.good luck

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