Oct 29, 2013 - 10:04 pm
Hi. Eighteen months ago I had uterine and cervical cancer. I was treated at Sloan but never had any follow-up scans, even though I went to all my follow-up appointments. In the last week of August, I was having some diarrhea and a doctor in Jersey ordered an abdominal scan. The results showed that there was a 2 mm nodule in one of the lower lobes of my lungs and a 7 mm nodule in the other. Because the scan was not a chest scan, the Jersey doctor told me to go for a full chest scan. Two weeks after the first scan, the second scan showed I had 16 bilateral nodules, and the 2 mm nodule had grown to 3 mm, and the 7 mm nodule had grown to 8 mm...in just two weeks!! It also showed a nodule on my thyroid and one on a lymph node near my pancreas.
I went for a PET scan two weeks after that, then this past Wednesday, October 23 rd, I had a biopsy of my lungs from a thoracic surgeon at Sloan. The surgeon said the nodules are malignant. I have a post-operation conference with the thoracic surgeon this Friday. I am not sure what to ask him, though. When we met before the surgery, he said if the nodules were malignant, surgery would not be an option because there were too many nodules and they were of so many sizes. He said they would have to cut out too much of my lungs and he would worry they might miss some smaller ones. He said that the treatment would most likely be chemo. He also said that the gynecological oncologist would be calling the shots because, even though the cancer is in my lungs, it is still uterine cancer.
I don't know what questions to ask the doctor this Friday, so if anyone had any suggestions, please let me know. Obviously, one question is prognosis. I know that may seem maudlin, but everything I have read says that metastasized uterine cancer to the lungs has a very poor prognosis. I know we can read too much sometimes, but I don't know where to turn! I have questions about chemo...what kind...how often do you have to go...how sick will you get?? I just don't know what I should be asking the doctor this Friday. Any help would be greatly appreciated!
Also, has anyone heard anything about Cancer Treatment Centers of America? I am kind of losing faith in Sloan for several reason...including not having any scans after my surgery, even though it was 19 months!! Also, they tested four lymph nodes and they were clear, but there was cancer in the lymph ducts. Why did they only do radiation and not chemo??
Any feedback would be greatly appreciated!