Oct 29, 2013 - 4:32 pm
I first want to say that I considered for a long time whether to post here or not. I know many of you are going through very real battles with lymphoma and I respect that. I have lurked the web for a long time on various forums trying to find information that would help guide me, but this is by far the group that is most welcoming of people like myself, who don't have a diagnosis but are scared and looking for answers. So that's what led me to finally join so that I could pose my question.
What I'm really looking for more than anything is just a piece of advice, a "what would you do" from people who have experience. So here's the background: This past summer I visited my GP to have her check a little lump at the base of my neck. She sent me for an ultrasound and they found multiple enlarged lymph nodes in various parts of my neck. I was then referred to an Hem/Onc and he sent me for a CT for neck, chest, abdomen, which came out clean except nodes in my neck. The largest was 1.1 cm x 9 mm. Next stop was ENT surgeon since Hem/Onc recommended biopsy. ENT examined me and looked at CT and felt there was no need for biopsy because the node was still so small. I had also had a persistent fungal ear infection for months prior to this, but it had been resolved for a couple months before all of this happened. The ENT and GP agreed the node was probably due to the infection.
Fast forward a couple of months and I was feeling my jaw (I am a chronic Bruxer or teeth grinder) and I ran across a new small node under my chin, in the submandibular area. I contacted my GP who felt it was probably due to a bad canker sore I had at the time but recommended that if it didn't clear up in a few weeks to follow up. Well it didn't clear. In the meantime my anxiety has risen and led to acid reflux type symptoms and increased pain in my neck and shoulder (maybe due to stress and my pre-existing scoliosis). Anyway, I haven't been feeling quite right for a couple of weeks now.
So today I went to see the ENT again to have him check the node and discuss whether to biopsy now. He still seems unconcerned and feels a biopsy is unwarranted. I have scheduled an ultrasound through my GP so I can have a better idea of what to do. At this point I kind of want to follow through with a biopsy so I can get a definitive answer, but I don't want to go through (or pay for) an unnecessary surgery either.
So...what would you do in this situation? And thanks so much in advance for any advice.