Oct 24, 2013 - 6:33 pm
I have been quietly screwing around interviewing oncologists and fighting with Cigna and now have a plan of attack. Going for TOMO/IMRT mask (just in time for Halloween) fitting and simulation tomorrow. Read the posts about some kind of mouth guard that can protect the mouth from scatter radiation. Asked my dentist and other dentists and they do not know about this and said, people must be mixing up the flouride trays and using them during radiation. Can anyone shed some light on this? I have teeth whitening trays which may work the same as flouride trays.
The other question I have is has anyone on this site with this EXACT (or close to) scenario : SCC tongue base T1N1M0 p16+ status post TORS surgery and neck dissection clear margins by 2mm., no perineural invasion, no lymph vascular invasion, no bony/cartilage invasion ever had radiation only?
3 out of 5 oncologists I interviewed recommended chemo(2 Cisplatin 1 C225 Erbitux) but the 2 that said I did not need chemo were convincing and quite sure based on my margins and path reports.
All but 1 agree that a reduction (de-escalation) of IMRT radiation was in order (remember I have no tumors currently) due to the surgery and clear margins.
Currenty, Dr. Bruce Haughey at Wash. U Barnes Jewish Hospital in St Louis is conducting clinical trials on this currently with IMRT 60GY for 30 fractions + cisplatin 40. The other arm of the trial is IMRT 60GY for 30 fractions, no chemo. This is just an FYI if anyone cares to look for the trial It began Jan 2013 and is recruiting currently.
Enjoyed the photos of those who are computer savvy.