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pathology report

Hiberniangirl
Posts: 19
Joined: Sep 2013

Had my post-op pathology report today. The consultant told me my tumour was a metanephric adenoma, incredibly rare, and benign... Having been told that it was 98℅ likely to be rcc I was so surprised and thrilled, I think even the consultant was in shock.  Thanks to everyone on here for your support, an invaluable help on many occasions. Hib x

donna_lee's picture
donna_lee
Posts: 438
Joined: Feb 2009

Just when we think we've learned "lots" about the kidney, you came up with something new.  And it's good news.  Way to go...as if you had a choice.

Best wishes and relax a while.

Donna

Djinnie's picture
Djinnie
Posts: 912
Joined: Apr 2013

That is fantastic news Hib! I am so pleased for you! You can recover now with an easy mind:)

 

All the best:)

 

Djinnie x

Hiberniangirl
Posts: 19
Joined: Sep 2013

Thank you Djinnie, certainly am celebrating. Just have to complete recovery but without the additional stress my previous diagnosis entailed. Very pleased about your news too. Hope you are keeping well. Hib

TillieSOK's picture
TillieSOK
Posts: 246
Joined: Jul 2013

WAAAAAAAAHOOOOOOOOOO!!!!  I would be so happy, they would be peeling me off the walls if I was you!  I'm sorry you lost a kidney, but....DANG!!!  Benign!  YES!!!

Hiberniangirl
Posts: 19
Joined: Sep 2013

Thanks Tillie,  only lost around a third of a kidney, still recovering from that, but yes, really thrilled and relieved! Hope all is well with you. Hib

mrs_blkjak's picture
mrs_blkjak
Posts: 92
Joined: Apr 2013

Awesome news!!!

garym's picture
garym
Posts: 1651
Joined: Nov 2009

go out and buy that lotto ticket while you are on a hot streak... CONGRATS!!!

Bettie7752
Posts: 14
Joined: Oct 2013

That is wonderful!  I hope you plan on celebrating.

God Bless you,

Bettie

Bettie7752
Posts: 14
Joined: Oct 2013

That is wonderful!  I hope you plan on celebrating.

God Bless you,

Bettie

donna_lee's picture
donna_lee
Posts: 438
Joined: Feb 2009

My best friend had a lumpectomy last month-positive.  Yesterday she underwent a double mastectomy...and the sentinel nodes were clean.  So we all have something to cheer for.

Donna

Hiberniangirl
Posts: 19
Joined: Sep 2013

Excellent news. Very happy for you and your friend. Hib

Skagway Jack's picture
Skagway Jack
Posts: 91
Joined: Oct 2013

T1B  Clear cell carinoma M and N are 0.  Margins were 100 percent clear.  As good as news as I could possibly hope for.  the tumor was 7x5x5 cm.  my concern is that I had two incidences of gross hematuria prior to discovery and surgery, does this increase the chance that the carcinoma has spread microscopically and if so, what odds that I will see a recurrence despite the apparent good news so far?  Any thoughts are appreciated.  Thanks,  Jack

NanoSecond's picture
NanoSecond
Posts: 603
Joined: Oct 2012

No, it does not mean your risk is increased.  Nor is it decreased.  We all have CTC's (microscopic Circulating Tumor Cells) in our systems regardless of whether or not we had any incidences of hematuria.  Only a very small percentage of these cells are potentially capable of seeding a metastasis.  They can "bury" themselves and hide away staying dormant for years or decades and then cause their mischief.  That is why regular CT scans are essential.

todd121
Posts: 641
Joined: Dec 2012

I'm agreeing with Neil, so I won't say what he said. I was told also by my oncologists that they've seen no coorelation between gross hematuria and recurrence. The stage/grade and type are more important and what has been seen to coorelate more closely with metastasis.

Being Stage 1 by definition means you didn't have vascular invasion. This really decreases your chance of it coming back. Your tumor was large for a Stage 1, right on the border of Stage 2, but still there's a big difference between Stage 1 and Stage 3 (vascular invasion or otherwise growing outside the kidney), and you have something like 90% chance of it not coming back (maybe better). You didn't mention the Fuhrman Grade.

Still you need follow up care. If you didn't see a medical oncologist with experience in RCC, you might want to be followed by one. They will be up to date on the latest and will know how best to follow you, and also if any symptoms pop up later, they will be best to evaluate you.

Hope you fall squarely in the "never get another tumor" camp.

Todd

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