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graviola -any users

arunadevineni
Posts: 4
Joined: Oct 2013

my mom is a breast cancer survivor.operated in 2006 stage IIb -node positive-er ,pr +ve her neu negative.recieved chemo,RT anastrazole for 5 yrs.mets in bronchus rt lung in 2012. Started on T.Exemestane SINCE 1YR..after remaining stablefor 9 months the growth progressed obstructing the whole rt bronchus+lymph nodes + pleural effusion.she does not want chemo and started on faslodex injections..searching for alternative therapies is there any role for graviola-the fruit extract or leaves?

cinnamonsmile
Posts: 1052
Joined: Dec 2010

For alternative treatments, you may want to try breastcancer.org. 

They have two sections that may interest you,

Complementary and Holistic Medicine and Treatment

 or

Alternative Medicine

I wish you and your family the best.

arunadevineni
Posts: 4
Joined: Oct 2013

thank you so much..vey helpful links.

CypressCynthia's picture
CypressCynthia
Posts: 4017
Joined: Oct 2009

I would talk first with your oncologist and a reputable alternative medicine physician.  I would be very nervous about starting this alternative because of the link to a Parkinson's like permanent neurological disorder.  I don't mind trying harmless alternative meds, but this one scares me.

Some limks:

http://www.nutraingredients-usa.com/Suppliers2/Toxicology-expert-raises-alarm-over-potential-neurotoxins-in-graviola-soursop

http://www.webmd.com/vitamins-supplements/ingredientmono-1054-GRAVIOLA.aspx?activeIngredientId=1054&activeIngredientName=GRAVIOLA

http://www.emedicinehealth.com/script/main/art.asp?articlekey=169775

http://internettheories.blogspot.com/2012/09/soursop-and-cancer-cures.html

arunadevineni
Posts: 4
Joined: Oct 2013

thank you so much..for sharing the links.

my mom had seen hell with chemo ,had almost all the complications. she is mortally scared of chemo and radio therapy..and at this stage the consensus of her medical oncologists was there is no added benefit of chemotherapy. we talked to her primary consultant a renowned oncosurgeon who agreed to its use along with hormonal therapy.now the options in the modern medicine seem to be exhausted and doctors reaching that sate of nothing much is really heipful.and yes i have gone through the lancet article about toxicity but then whichconventional treatment in cancer isfree from toxicity? we have finally started graviola yesterday and will really watchout for both good and bad effects.wish me all the best

CypressCynthia's picture
CypressCynthia
Posts: 4017
Joined: Oct 2009

I wish you the very best and am praying for you.  I have had mets for 8 years, first in lung and ribs and now in liver.  I appear to be in remission again today.

My mets was re-biopsied both times.  Both times the tumor changed: original ER and PR pos, her2 not available (1987); ribs ER+, PR neg, her2 neg; liver ER and PR neg, Her2 pos.  Go figure!  I wonder if your mom had another biopsy?  

It is much easier to treat a known vs an unknown.  I didn't want chemo again, but, when I found out about the her2 + status, I went for it.  My markers and liver enzymes are normal and last PET scan was free of liver mets activity.  I will be on herceptin and perjeta as long as they work.  Taxotere was hell for me; I hit many ugly side effects, including having to be hospitalized. But it is done and I am getting better.  

Sending big hugs and prayers to you both.  

 

 

arunadevineni
Posts: 4
Joined: Oct 2013

thank you so much for the really useful info.and congrats for being such a fighter.the lung mets were biopsied and it was ER POSITIVE AND PR NEGATIVE HER2 NEU EQUIVOCAL. SHE has responded well to faslodex and i hope for the best.

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