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ADULT Diffuse Intrinsic Pontine Glioma

Sammiesdad
Posts: 9
Joined: Sep 2013

Hi, anyone out there dealing with this rare insideous monster?  Was diagnosed 9 years ago with waitful watching due to location.  Looks like it finally woke up.

Would like to swap stories, symptoms, treatments, etc. 

Thanks

Sammiesdad
Posts: 9
Joined: Sep 2013

So there is no one in cyberspace that has this cancer?   Would really appreciate some feedback.

 

Thanks

Trent

Sammiesdad
Posts: 9
Joined: Sep 2013

So there is no one in cyberspace that has this cancer?   Would really appreciate some feedback.

 

Thanks

Trent

LeslieLand's picture
LeslieLand
Posts: 49
Joined: Feb 2012

Trent,

I remember almost 3 years ago now when my husband was diagnosed...I had a helluva time finding anyone else with DIPG. Are you to start radiation therapy soon?

 

Leslie

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