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Post op/ pathology

aussieqld
Posts: 13
Joined: Sep 2013

 

I had left nephrectomy ( lap)  October 10. surgery went well I was up and walking 24 hrs after my surgery and I was home 48hrs after surgery. still recovering getting better but the day.lots water and walking around. Got my pathology result

Kidney, left, nephrectomy  9cm chromophope stage2  no renal vain invasion. No perirenal fat involvement.  No sarcomotoid. Tumour totally contained. negative margins. 

angec's picture
angec
Posts: 664
Joined: Mar 2012

That sounds like a GREAT report!  Glad you are doing ok! Wishing you all the best!Laughing

bcbigb
Posts: 31
Joined: Sep 2013

that is great news im still waitng on my results went in on the 20 sept.get the news on visit to doc on monday ,my tumor was15cm by 8cm.hopefully my results r as great as yours .take care.

brian

TillieSOK's picture
TillieSOK
Posts: 246
Joined: Jul 2013

That is as close to perfection as you can get!  Go out now and buy a lottery ticket! ;)

aussieqld
Posts: 13
Joined: Sep 2013

its seems u all think it's a good path report. would like to acknowledge everyone for their support. fox,ice,Todd,sbrile,cran nano Brian and my apologize if I forgot to mention ur name. i will go back to see the surgeon/urologist in 2 weeks collect my report and arrange to see rcc oncologist.

 

srbelle1
Posts: 123
Joined: Jul 2013

I assume the pathology was not the surgeon's impressions but the actual results; a grade 2 with clean margins and no mets is excellent.

my husband was dx with stage IV because of spinal met; his path report after nephrectomy was 10 cm clear cell (more aggressive than chromophobe) but stage 2 with clean margins. 

We felt much better after than before because stage 2 is less aggressive and has likely been in the kidney a long time before going to the spine. That met was surgically removed before the nephrectomy. We journeyed from "at most a year" to "need to watch how it behaves for years".

your report was much better so it is excellent news!

sarah

aussieqld
Posts: 13
Joined: Sep 2013

It is the actual pathology results.  

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cran1
Posts: 129
Joined: Mar 2013

Great news Aussie

Ritchy
Posts: 2
Joined: Sep 2013

 

 

My husband just had his Left kidney removed 4 days ago. He had a 7.39 centimetre tumour removed and had to lose his adrenal gland as well. He is home recovering now but very sore and very bruised. He has been prescribed 5 days of morphine to help get him through the pain( he also had his Gall Bladder removed at the same time so is sore on both sides of his body We are waiting now for Pathology tets to determine what Stage his tumour was and are hoping for good results. Congratulations on your good news by the way !

DonMiller's picture
DonMiller
Posts: 101
Joined: Feb 2013

Hi Ritchy

 

Stay calm no matter what!  I don't want to brag but I was 11CM Stage 3 high grade and I am still very much alive and NED over a year later.  It takes a while for the body to heal but it does.  It takes even longer to recover your strengh but you do.  

icemantoo's picture
icemantoo
Posts: 1653
Joined: Jan 2010

Richy.

 

Even with a perfect repot they are going to classify it stage 2 because it is a tiny bit over 7cm. As you ca see already many with tumors larger than yours are doing fine.

 

 

Icemantoo

Ritchy
Posts: 2
Joined: Sep 2013

Thanks for the encouragement Don. We go back to the Urologist in about 2 weeks and will find out more. I do have a question regarding bruising though. My poor hubby has deep violet bruising totally up and down his left side right down to and including his privates. I have never seen bruises as dark or as much as that ! Our Doctor did say he would have a lot of bruising but this is unreal ! He is also feeling bloated and sore. I know it will get less painful everyday but I think I will call the Doctor about his deep bruises. The side where the Gall Bladder was removed is just fine. Thanks again.

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Well, remember his body got beat up pretty badly... but you may want to ask the Dr.  I never had bruising but I sure hurt for a while...  I bet he is glad it is over with..!

Good Luck..

Ron

aussieqld
Posts: 13
Joined: Sep 2013

quick update I met the the urologist who did the op. We went thru the pathology results. he says my type is very rare and it has better outcome. he says 90% to 95% get cured with surgery alone in stage1&2. I know his very experience with rcc but am not sure about the %%. Am going to have scans every 6 months for 2years & yearly after that for 10yrs. Am going to see rcc oncologist for second opinion. What do u guys think about the %% 

NanoSecond's picture
NanoSecond
Posts: 603
Joined: Oct 2012

Is incorrect.  But meaningless anyhow.  I had a very similar prognosis as you.  The only difference is that my tumor was 11cm vs. yours at 9cm. I have chromophobe histology.  My tumor was fully encapsulated in my left kidney.  There was no spread - even the adjacent lymph nodes were clear.  I was declared NvED for 2+ years after my nephrectomy.  But I am now stage IV with bone mets in 3 locations.

Don't listen to any statistics - they are all based on a bell curve.  The problem is you don't know where you stand on that curve.  You should be scanned every 4 months for the first 2 years.  Only after being consistantly NvED for that time period should you consider any longer intervals.

aussieqld
Posts: 13
Joined: Sep 2013

Sorry to hear it came back after 2 yrs. I know they are just stats. i am going to be vigilant & make sure I get scans/MRI regularly. I have been reading studies done on chromophobe( not many out there). they all seems to predict btw 85% to 90% recurence free rate. this type is very rare am in australia they told me less 3% are dxg as chromo rcc. 

NanoSecond's picture
NanoSecond
Posts: 603
Joined: Oct 2012

Yes, chromophobe is relatively rare.  Although if you search this website you will find that there is a thread dedicated to tracking information about us chromophobers - and there are quite a few of us around here.  The "good" news is that it "normally" is very slow growing and indolent as compared to clear cell and other forms of RCC.  However it can, again on rare occasion, become extremely aggressive when/if it morphs into displaying a percentage of sarcomatoid cells.  That is why it is worthwhile to do those scans more frequently the first year or so.

This is not a cancer to take for granted.  No matter what one's surgeon or urologist may claim.

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grnsammy09
Posts: 16
Joined: Sep 2013

I was stage 2, ChRCC with a 17.5 x 13 x 11.5 cm tumor on my right kidney that was removed and no mets.  My oncologist told me 20% chance of reccurrence and I also have to get scanned every 6 months for the next 2 years, and then yearly up to 5 years after that. 

aussieqld
Posts: 13
Joined: Sep 2013

your tumour was 17cm & its  still stage 2.  That's wonderfully I hope we all stay NED for very long longtime. are u going to see a kidney oncologist for second opinion?. 

grnsammy09's picture
grnsammy09
Posts: 16
Joined: Sep 2013

I consider myself to be very lucky because that tumor was so big, it literally rearranged the organs in my abdominal cavity (for example my liver now sits on the LEFT side of my abdomen!). My oncologist was a kidney specialist so I didnt feel I needed to look any further. But a second opinion is YOUR choice and a lot of doctors actually recommend it! 

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