Oct 18, 2013 - 3:18 pm
For the past year, I have had little stuff going on. Headache around my left eye and then fatigue at various times. Of course, I called but didn't get much info. My gyn/onc did order an MRI/MRA because I had complained about it the last time I was there - It was good. That doctor has left and is now in Texas. In February, I started to have the lower back pain again. Went to chiropractor. It took 3 times to get some relief. This was also on my left side. And I was starting to get the sciatic stuff down my left leg again with pain and some numbness. I went to my PC and she ordered a back x-ray (I had also called my gyne/onc but the RA said that recurrences don't start there and go to the PCP for x-ray???). I did get the x-ray and it only showed I have bone spurs along my spine. Nothing else. The PCP said she couldn't get me a CT Scan (I hadn't had one for several years) unless I did physical thereapy and she just wrote a script for Steroids and Pain Pills (Neither of which I took). This was February. Shortly after, I gained 10 pounds for no apparent reason. In June, I got to see the new Gyne/Onc. He ordered a CT Scan - which still came out good (still shows the two small masses which haven't changed). Since then I gained a few more pounds. I get fatigue near the end of the day. However, the GYNE/ONC called to say that my PAP had abnormal cells. They ended doing the other test which was negative.
At my mammogram in May, I also got called back in for a spot on my right breast (I had a biopsy done on my left breast in 2004 which was negative). Went back in and they indicated i was ok.
Recently, I have been starting to get what I call "achy bowels" and the pain near my rectum. This is how my whole ordel happened back before I was even diagnosed. This is what is concerning to me because it is the same thing that happened at my recurrence. I get the lower back (Achyiness), along with the bowel achiness (sort of like menstreul pain) Not really pain - just an achy feeling. I think this is what is causing me to feel fatigue. I do have a high tolerance to pain. When I do take motrin, I feel so much better and I realize I must have been in pain. But now it it affecting my mood. I am much more irritated easily. I am usually a very happy smily person. But I can't take much now. I am taking motrin now several times a week now. Also, I am getting sweats like breaking a fever at various times.
I just asked my PCP for blood test to test for thyroid problems and also to take a CA 125 (even though it wasn't an indicator for me). However, the PCP only tested one of the thyroid tests and it was ok. My red blood cells (HCT) were just past the normal range but no one said anything about it. My CA 125 was a 10.4, before I believe it was a 3. (It was 21 after my second surgery when first diagnosed). I feel like something is going on but that tests won't find anything. I do want a PET Scan. Maybe this can say whether or not there is anything active. The two small masses did have an SUV reading of 2.4 and 2.1, but hadn't changed but that was back in 2010 but I haven't had one since.
I do have an appointment with my new doctor on November 15th. I don't want to call there because I only get to talk to the RA and she seems to make her own diagnosis.
I feel like I am whining, but I am tired and then I do get depressed because I feel like I can't do what I used to do becasue I feel so tired. Don't get me wrong, I still work full time and do some volunteer work. It is just that my energy level is zapped big time. (like taking naps in the middle of the day).
Thanks for listening. I think I just needed to get it off my chest.