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Needing Prayers, Pockets, & Good Vibes

wolfen's picture
wolfen
Posts: 1196
Joined: Apr 2009

My friends,

Just wanted to give you an update on my daughter, Johnnybegood(Colon Forum). She had her long awaited CT & the results were as we feared. Since being off chemo for 2 mo. to promote healing of her Hand & Foot Syndorme, her largest lung mets have all grown. So she will be restarting the dreaded Irinotecan. It is effective in tumor control, but deadly to her as side effects go. She has been on it before, but had to stop because of the severity. As an unwelcome surprise, she has a new tumor on her liver. This will be addressed, possibly with RFA following the next CT in a couple of months. This will be her third liver surgery. She is so tired, short of breath with chest pain, & despondent with this news, but she remains strong in her faith that God will carry her through.

I am the same ol' me, dazed, confused, & saddened at what has happened to my wonderful family. Can write no more as I cry.

Luv,

Wolfen

CivilMatt's picture
CivilMatt
Posts: 3020
Joined: May 2012

Wolfen,

I am sorry for your daughter’s condition.  I have read about the side effects of the drug and hope she tolerates it best she can on this go around.

Good thoughts and prayers and pockets filled with hope.

Matt

j4mie's picture
j4mie
Posts: 218
Joined: Sep 2013

Wolfen. Please know that you and your family are in our thoughts and prayers, hoping your daughter stays strong and continues to fight hard.

Jamie

phrannie51's picture
phrannie51
Posts: 3791
Joined: Mar 2012

to hear this news.  Stupid stupid cancer!!!  Your daughter is so damned strong....and I know who she inherited it from....the apple doesn't fall from the tree.  As I've said so many times before, I wish we all lived closer to one another at times like this.  I'm praying that her Drs. figure out a balance for her.....a way to keep the tumors in check as well as the side effects.

You've seen your share of tragedy this year, sweetie.....I'd give anything to take some of the load.  If you don't still have my phone numbers, tell me and I'll send them again....I'm pretty much always catchable.  You are now tucked deep into my pocket.

Love,

p

TracyLynn72's picture
TracyLynn72
Posts: 732
Joined: May 2013

I am so sorry to hear this.  You and your daughter are in my prayers.  God has a plan, and most of the time we can't understand it...but everything works together for His good.  I hate, hate, hate cancer.  

debbiejeanne's picture
debbiejeanne
Posts: 2535
Joined: Jan 2010

oh dear karen, my heart simply breaks for you when i think of all the sorrow you've had to face this year.  i wish so much that i was close to u so i could give u a hug when u need it or to b a shoulder to cry on so u didn't have 2 cry alone.  i always keep you and your family n my thots and prayers and there you will stay!!  i will send y a pm and include my phone number.  you can call me ANYTIME!!  unfortunately, i won't b home tomorrow until evening.  my sister is having brain surgery to fix an aneurism and i'll b at the hosp w/her.  i think i will b home by 5 tho.  her surgey is at 7:30 and expected 2 take 5 - 6 hrs.  karen, if there is anything i can do for u from here, u just name it and considerate it done.  God bless u and ur family.  i'll b thinking and praying 4 u all.

(cyber hug) i hope u can feel it...lol.

dj

Hummingbird3's picture
Hummingbird3
Posts: 67
Joined: Aug 2013

Dj...read your post while replying to Wolfen...I will be praying for your sister tomorrow.  Hope all goes well and she has full recovery for a very long and healthy happy life.  Lifting you up also!

hugs,

christie

debbiejeanne's picture
debbiejeanne
Posts: 2535
Joined: Jan 2010

christie, thank you soooooooo much!!  i greatly appreciate all prayers. 

God bless,

dj

Sunshine60
Posts: 75
Joined: Apr 2013

Wolfen I am so very Sorry to hear this news.  I. So. Hate. This. Disease.....know that you and your daughter are in my prayers; and pocket.  I hope they find something with fewer side effects that help stop the tumor growth.  Keep us updated and continue to come to the site --- we're here for you!  <3

Hummingbird3's picture
Hummingbird3
Posts: 67
Joined: Aug 2013

Wolfen,  know your being thought about and prayed for.  So much we don't understand about this life we are dealt.  But one thing I stand confident knowing is that God is so much bigger than all of this.  I pray you and your daughter cling to that Hope, feel sustained by His endless Grace and held my his outstretched arms so Big!  

Praying the treatments treat your daughter kind and each day there someone in here life that passes that brings her that moment of peace with compassion and understanding.  Keep us posted...hope you can rest easy.

Christie

phil 4:13 I am able to do all things through Him that gives me the strength to do so!

I wanted to share this with you and your daughter..whether we find ourself On the other side, in the middle or just beginning a journey...be proud of these steps!!  Know you've got this this!  

Wear that crown

 

josh r.
Posts: 200
Joined: Oct 2010

Wolfen,

Our thoughts are with you and your family as are our p[rayers. josh r.

hwt's picture
hwt
Posts: 1973
Joined: Jun 2012

Prayers for both Karen's daughter and DJ's sister.  My heart goes out to you.

Candi

debbiejeanne's picture
debbiejeanne
Posts: 2535
Joined: Jan 2010

candi, thank you very much.  your prayers are greatly appreciated!

God bless.

dj

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

All coming your way....

Have faith, believe and hang in there....

My prayers,

John

donfoo's picture
donfoo
Posts: 1283
Joined: Dec 2012

I am so sorry to hear the bad news. Your faith in God offers the strength necessary to see you through the coming days. Wishing the most comfort to your family during these hardest of times. don

Grandmax4's picture
Grandmax4
Posts: 585
Joined: Dec 2011

to stomp my feet and yell "not fair", instead, I simply say your family is in my prayers.

 

Debb, I'm prayin g for your sister too

 

fishmanpa's picture
fishmanpa
Posts: 1120
Joined: Jan 2013

Always...

"T"

debbiejeanne's picture
debbiejeanne
Posts: 2535
Joined: Jan 2010

thank u to those who prayed 4 my sister!  GOD ANSWERED the prayers!!!  pam's surgery went great!  took 2.5 hrs (less time than expected) and she did fine.  the aneurism had leaked some so it was more complicated than planned and its a good thing they did the surgery now.  she's n a lot of pain but they're trying to get it under control.  she will only b n the hosp 2-3 days depending on how well/quick she recovers.  I've been praising and thanking God all day!!  God is GREAT!!!  He really does listen AND answer!  again, thank you for praying!

God bless,

dj

Hummingbird3's picture
Hummingbird3
Posts: 67
Joined: Aug 2013

Dj....praising right long with you.  I hope today has found you sister pain free and close to being home.  thanks so much for the update. I was going to message you this evening.  

Hugs,

christie

debbiejeanne's picture
debbiejeanne
Posts: 2535
Joined: Jan 2010

christie, thank u sooooo much!  i stayed at the hosp with her last nite.  she is do'n better this am and is coming home!  thank u sooo much for caring!  i greatly appreciate it.

God bless you,

dj

nick770's picture
nick770
Posts: 195
Joined: May 2012

so sorry to hear the news Frown  Do you know if she might qualify for a clinical trial? I'm using Rigosertib for lung mets

wolfen's picture
wolfen
Posts: 1196
Joined: Apr 2009

You don't know how much it means to me to have each of you "in my corner", especially since this corner is so very lonely now.

DJ, I'm so glad your sister's aneurism was caught in time & repaired successfully. I know they can burst anytime with devastating results. My dad died with an abdominal aneurism way back in '77. He used to joke about feeling hs heart beating in his stomach, but never sought medical help for it. I got your PM with TN, but don't want to intrude until your sister is feeling better. Dang! A thousand times, I've wished we all lived nearer.

Phrannie, I remember having your TN in my wallet when Ron was so sick, but have mispalced it, so will PM you with mine, also.

Nick, I don't think she has ever broached the subject of a clinical trial with her onc. I'm so glad the Rogosertib is having very little side effects & appears to be working. It's so hard to know how these drugs will affect difeerent people.

I know each of you has been there, but I sometimes feel I'm in this deep, dark pit & no matter how hard I try to climb out, the dirt just keeps falling back on me. Don't let "them" kid you when "they" say losing your spouse gets easier with time. I actually feel a little worse than I did a few months ago. It gets to where I just don't want to climb anymore. I have always tried to be a positive person(despite what you read in some of my posts) & have refused meds for depression & anxiety before(for all these years while my family has been ill), but am seriously thinking of talking to my once a year doc. I am exhausted most of the time from lack of sleep. Sometimes the ol' ticker beats so hard, I'm afraid I'll have a heart attack, & no one here to help me. Sounding like a paranoid ol' lady, now. Just need some kind of hope to cling to so I can climb out.

Luv,

Wolfen

 

katenorwood
Posts: 1853
Joined: May 2012

Being strong for so long for so many takes it's toll Karen.  Never ever feel like you have to be brave 24/7.  I hear alot of the same words coming from my Father about Mom.  It's been almost 3 yrs., and he feels the same way.  So no time doesn't necessarily heal all wounds.  But my friend you have to take care of you now.  Take some time to breathe if just for a few moments at a time.  I'm glad to hear you will address some of this with your primary.....never makes you weak !  You are an amazing woman with whom I feel in awe of.  Many warm felt thoughts and hugs being sent your direction my friend !  Katie

phrannie51's picture
phrannie51
Posts: 3791
Joined: Mar 2012

talk to your Dr. about some anti-depressents.....They don't take the pain away....but I think they do make it a little easier to bear....my mom was ademently against taking them, no way Jose.....but even she did, but just for a while....maybe five months.  Enough time to help boost her out of the deep dark hole.  She never got back to the "who" she was before my dad passed, but she did manage to find a balance for her life, see some light again.  You've got much  more going on with your daughter's illness it's not surprising that the hole is so steep and impossible to climb out.  My heart breaks for you.  It isn't any wonder that all this depression and anxiety is starting to play havoc with your body. 

A pill isn't going to fix anything, but they may give you what you need to get your feet under you.

p

 

 

debbiejeanne's picture
debbiejeanne
Posts: 2535
Joined: Jan 2010

karen, if caring could make u better, u'd b brand new w/all the careing u have here.  it just breaks my heart that u r so sad.  i can only imagine what every day must b like for u.  i continue 2 pray for u and ur family.   please call me when u want to talk.  i'm here when u need me!

God bless you!

dj

dunedintech's picture
dunedintech
Posts: 68
Joined: Apr 2013

Very tough times. Stay strong and our thoughts along with positive vibes are with you all from Singapore.

Hondo's picture
Hondo
Posts: 5868
Joined: Apr 2009

We wonder why bad things happen to good people and the answer sometimes is just not there. But God knows His children and He knows what we go through every day, suffering, pain, depression, disappointment.  At my lowest point when I was down on the floor in pain and it was as if my very life was being squeezed out of my body and my prayers to God for help was going nowhere. All I could do then is to hope for death to come and get me out of this mess; but it was right then at the lowest point of life I knew I was not alone. It is hard to explain but in the deepest darkness of my life Satan was trying to block my prayers but God heard me and I knew He was there, I was not alone. I don’t know why but He gave me the strength I needed to get up and to keep on fighting. We don’t know why bad things happen to good people but we do know that God watches over those who put their faith and trust in Him. My prayers are for you and your family that no matter what happens here in this life we will all meet in our Masters home one day.

 

God Bless

Tim Hondo

cureitall66's picture
cureitall66
Posts: 868
Joined: Aug 2012

Thinking of you and your family and passing along good thoughts. Sorry to hear of the news. Stay positive.

jim and i's picture
jim and i
Posts: 1659
Joined: May 2011

So sorry to hear this. You are deffinately in my prayers.

Debbie

Crazymom's picture
Crazymom
Posts: 300
Joined: Nov 2011

prayers your way.  I have gotten a lot of comfort from your post over the lasts 18 months.  I know it is hard and wish there was some way to help.  You are in my prayers.  Ann

catfish_58's picture
catfish_58
Posts: 124
Joined: Feb 2013

Sending prayers,Hope all goes well for you and your family.

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