Oct 16, 2013 - 10:57 am
I'm 61 yrs old however am a world ranked show jumping rider. I was showing horses in mid July of 2012 and just stopped speaking. I took 3 aspirin thinking I was stroking out. I continued to ride 2 horses then called 911. Aug 1 I had brain surgery and refused complete removal of the tumor(about 80% removed) which would have rendered me left side paralyzed and speechless. 8 weeks of radiation and 75 mg of Temodar while getting radiation then went to 400 mg. that landed me in the hospital with dangerously low platelets. 300 mg kept me bedridden with locked up joints. 200 mg is the magic number for me. No side effects other than mild joint pain. I have not stopped riding and showing. The largest effect is the mental anguish and despair I feel at 2 am when Dr Google leaves me with no hope. Im horrified that the bottom line is "luck" as to our survivability times. I will continue 5-28 schedule with Temodar but if that fails me I c no exit nor options. I decided to gamble and add HGH injections to my regime of vitamins and medications. I also took the HPV shots just in case it's a herpes based cancer. i am confused as to y the cancer returns after being traumatized by surgery and radiation. My only answer was herpes virus. I take generic Valtrex every day which is the prophylaxis for herpes outbreaks. I have a health degree and have 12 MDs in my immediate family. I want to b my own advocate and b aggressively proactive. I use conventional treatment and have obviously added pretty daring but not dangerous treatments. These different treatments are based on sound science theory. I'm not going to litigate myself so I have everything to gain and nothing to lose. I hope my gamble works but I know it's no harm no foul. I feel physicians r terrorized by lawsuits so we must do our homework and not just do the norm. The norm states at best we have 5 yrs. not good enough for me.