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Terry's nails during and after chemo (ABVD).

Bill_NC's picture
Bill_NC
Posts: 109
Joined: Jan 2013

Did anyone developed Terry's nails during and after chemo (ABVD). My Liver function is normal, my blood sugar is normal, but I still have that brownish color stripe on the upper side of the nail, My oncologist say it maybe from chemo, but not sure if it will go away. Any input about the matter is greatly appreciated.

Rocquie's picture
Rocquie
Posts: 483
Joined: Mar 2013

Good to hear from you and I hope you are doing well. I did not have Terry's Nails but rather Beau's Lines. I got a whitish stripe across the nails for each chemo. It is caused by damage to the nail matrix as a result of the "Red Stuff", "Red Zinger", whatever you want to call it. (Adriamycin). By the end of my chemo, you could count the lines, like the rings of a tree, to see how many treatments I had. They have now completely grown out.

Perhaps your nails are similar. Chemo caused so many bizarre little side effects along side of the biggies.

Cheers,

Rocquie

 

Bill_NC's picture
Bill_NC
Posts: 109
Joined: Jan 2013

Mine is growing inward instead outward. It just bugging me, and I am embarrassed by the way they look, and absolutely I won’t paint my nails Smile

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1045
Joined: May 2012

I too am delighted to hear from you Bill. 

Two of the abvd drugs routinely cause "nail discoloration," without further specifying what "type" of discoloration it is (I've never heard of "Terry's Nails" before, but even 'Terry' has some claim to fame now !    I can see Terry at a cocktail party, 

 "Actually, I'm the Terry after whom 'Terry's Nails' is named. And who might you be ? "

My toenails all turned purple by around the third infusion, and still are discolored today, four years later.  They also became 'grainy' for a long time, and would crumble apart for the first year or so.  Conversely, my fingernails never discolored. I guess if I went to the comedian Rodnery Dangerfield's doctor, he would look at them and say "Wear socks."  I am not aware of anything else that can be done for them.  Watch your nutrition, obviously.  That is, if I may mimic my wife, "Eat your vegtables."

The first few months after I finished infusions, my beard started coming back in. First, both sides of my face.  Then, my facial hair stopped growing ne one side of my face, but not the other. This lasted a few weeks.  Then, the sides reversed: Facial hair would grow on the other side, but NOT on the side it had been growing on.  Within a few months after that, it began to grow normally on both sides.  I mentioned this to my family doctor during a visit one day and told him I was going to ask the oncologist about it.  His reply was: "The oncologist will just say that he has not the slightest idea what is going on."  He was right.  Some of this stuff is just inexplicable, but not medically hareful, either.

After facing stage 3 lymphoma, as long as our biggest concern remains discolored nails, we are indeed blessed.

Bless you man,

max

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I know I am known for Bulls#*t stories, but this one is true. I even posted about it way back when. I noticed after chemo treatments for a long time when I went to the bathroom to take a leak, it was bubbly. I haven't had chemo for over 3 years, but guess what? Still tiny bubbles. The people that answered my post no longer post except for maybe one of them. Even had an on going thread with Dixie girl about it. She was a wise cracker as well. LOL. For the people that came on recently Dixie girl{ BETH} is no longer with us. Couldn't find anyone else with the tiny bubble syndrone though. Never had any problem with my nails. John 

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
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Joined: May 2012

John,

T.M.I.  !!

Bill_NC's picture
Bill_NC
Posts: 109
Joined: Jan 2013

Thanks All for the reply, Ironically my toe nails never discolored. Also Max I believe your toe nails discoloring is due to the Rituxan added to your treatment. I did not have Rituxan in mine.

sureshwani
Posts: 23
Joined: Aug 2013

Bill same is the case with me.

I had to to undergo 20 radiations to my Abdomen Area after finishing 6 cycles of ABVD. . Since my disease was Bulky in the abdomen.I finished my Radiations on 26/9/13. I am recovering from the side effects.i.e Diahorea. I shall be undergoing blood test for two to three months then a  scan. How are you doing?

Regards

Suresh

Bill_NC's picture
Bill_NC
Posts: 109
Joined: Jan 2013

Hi How are you, I have my first CT scan after the treatment in Dec 10, 2013. so far I got DR visits for twice for blood work only. Hope and pray GOD that evereything is OK. I am just bother by a fatty lump under my left ARM wher the surgery for Biopsy was preformed. 

Why you getting radiations. I thought ABVD will take care the nodes on it's own. Hope you doing well.

BlessedinPNW
Posts: 14
Joined: Oct 2013

Max, your posts cracked me up!  And I agree, some of this stuff is just plain inexplicable.  I have the nail thing on both my finger and toe nails.  Not sure if I can come close to John's 'tiny bubbles' side effect, but the strangest thing for me was that my 'always have been' very large tonsils just disappeared after RCHOP for an abdominal tumor.  Ever heard of that one?  Yeah, me neither.  Anyway, thanks for making me laugh today!  

Toni

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1045
Joined: May 2012

Toni,

An RN at a hospital told me the weirdest chemo side-effect I have ever heard of: She insists that she knew a female patient on chemo, which caused one of her eyes to permanently change color.  That is, one eye (but not the other) changed from blue to brown, or brown to blue (I cannot recall which).

Other than my "facial hair" experience (described above), I still have one other odd sensation:  My biopsy was under my left armpit. But my RIGHT armpit, in the exact same area, often feels cut and swollen, as if it contained swollen nodes. My onc has felt both areas numerous times, and says that there is absolutly nothing swollen or abnormal present, one tiher side.  But, my surgeon told me that the region he cut for my biopsy extraction was virtually identical to the area on women that he has to cut to do breast cancer biopsys, and he told me that there is a  nerve bundle there,  and that quite often the region never returns to normal in feeling .   But even that does not explain the feeling on BOTH sides. My onc says it is just some sort of neurological oddity.

Keep smiling,

max

Shoopy
Posts: 210
Joined: Jul 2013

WOW!  I have complained about "phantom swollen node feelings" to my doctor in  the past.  In fact, as I sit here typing this I have the sensation just under my right jaw and near my right thigh along the groin.  Occassionally, I get them in my underarms.  I can never feel a swollen node and neither could the doctor.  

The groin feeling, he explained, is probably because they did a needle biopsy there and probably nicked a nerve.  The other places he's told me are probably "in my mind".  Now that I think about it...the feeling in the neck is directly above where I had the node surgically removed along my collar bone.  It's completely plausible that it could be a similar situation to what you're feeling and caused by another nicked nerve.

Makes me feel so much better to hear someone else experiences these "phantom feelings".

Karl 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1045
Joined: May 2012

Shoopy,

About a year after my treatment ended, I felt a "lump" in my throat.  It bothered me a lot (emotionally). Since I was only about a week away from an onc visit, I waited.  He felt the area and said that they were non-lymphatic glands, and absolutly nothing to be concerned about.  One of the biggest reliefs of my life, for certain.  And to repeat:  I routinely have "swollen" feelings under both arm pits, mostly after physical activity (like raking the yard).  The onclologist has felt these areas several times while they were botherning me, and said there was nothing there at all.

Similiarly, I had my gall bladder removed when my port was taken out, four years ago.  The pain that I had in the gallbladder is still there -- it never changed, although the whole gall bladder is gone.  It is just one of those things. After tissue has been cut or damaged by disease, I guess there is no reason to expect it to ever feel "normal" again . Amputees often report that a missing leg or foot will itch or hurt. I guess it is a similiar phenomenon.

Bless your upcoming SCT .

max

Bill_NC's picture
Bill_NC
Posts: 109
Joined: Jan 2013

Wow Max, I got my biopsy on the left side too. Although I finish my My ABVD 4 months ago my Oncologist still have not order CT scan until 6 months after.

I am still feeling like I am holding a newspaper under my left Arm where the biopsy cut took place, he checked it and say nothing to worry about but I am still bothered by it.

I also checked with other oncologist opinion he recommended to go for PET scan 4 months after the chemo is over. I am not sure who to believe anymore.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1045
Joined: May 2012

Bill,

My manner of deciding these things is as follows:  If one of the doctors is an attractive female, believe that one .Cool

max

Shoopy
Posts: 210
Joined: Jul 2013

However, I have found that the female oncologists aren't exactly attractive.  It's the PAs and NPs that are far more easy on the eyes.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1045
Joined: May 2012

Shoopy,

You are so correct. The NPs and RNs are soooo fine where I go for treatment  !!  But, I guess I am in treatment heaven, since most of the female docs are very attractive also.  To be fair to the women readers, I guess most would say that the male doctors are attractive also. If not, they make $400,000 a year, which renders them attractive nonetheless !

Bill_NC's picture
Bill_NC
Posts: 109
Joined: Jan 2013

Both oncologist I checked with are Men , they are good enogh to take to Halloween parties. :)

 

BlessedinPNW
Posts: 14
Joined: Oct 2013

Yep, changing eye color definitely ranks up there in the weirdest side effect contest.  And phantom swollen nodes has got to be disconcerting at best.  But that you still have gall bladder pain after having it removed is not something I'd wish on anyone.  If I still had the same pain I had prior to having mine removed I'd have called it a life a long time ago. ;)

Toni


 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1045
Joined: May 2012

Toni,

I was run over by  a car years ago: Eighteen fractures, caved-in chest (what trauma surgeons refer to as a "flail chest") , displaced sternum, leg nearly torn off (kneecap found in my pants leg; femur ripped completely in two midway down, and broken again at the hip socket), twenty-five days in ICU.  I was awake and unmedicated when a trauma doctor thrust a chest tube into my right side.   Two years learning to walk, with trauma-induced ossification of the hip, two wholly collapsed, untreatable discs in my back.  A therapist was doing range-of-motion therapy on my arms in ICU while I was on a ventilator (and hence could not speak).  She did not know that both of my scapulars were broken (the docs thought that only the left one was broken at that time), and she pulled the scapular apart while I watched, such that my right shoulder is higher now than my left.  Abdominal trauma left me with a hiatial hernia and horrible reflux.  The docs thought at the time that I had liver failure, but it was actually just out of wack due to severe bruising.  My  blood gases were so messed up that the head of respitory therapy told me later that my 02 and C02 levels "did not indicate life."  I have had two more severe auto crashes since.

I went for a chest x-ray a year later, and when the tech saw the film, he carried it around the office, showing it to coworkers.

 And then advanced lymphoma and six months of abvd, with ALL of the side-effects thrown in for good measure.  Following that, a little gall bladder pain is hardly noticable ! The last time I felt normal or OK was 26 years ago.   I say to my gall bladder scar:  Bring it on baby !  Gimmmie what you got  !  This song is what I say to a mambie-pambie little gallbladder incision:

http://www.youtube.com/watch?gl=DE&hl=de&v=vIFsQbM3ofY&app=desktop

I am just thankful to be above-ground and cancer free,

max

jimwins's picture
jimwins
Posts: 2002
Joined: Aug 2011

Max, I'm thankful you're here too - even after all you have been through and now you look like a black and white cat ;).

 

 

 

Rocquie's picture
Rocquie
Posts: 483
Joined: Mar 2013

Seven Nine Lives!

BlessedinPNW
Posts: 14
Joined: Oct 2013

Omg Max, you have given new meaning to 'defy the odds'!  I am humbled.

toni

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1045
Joined: May 2012

A cheshire cat, no doubt !  My basic, most fundamental feeling is thanksgiving.  My kids need me in this ugly world for as long as I can hang in there  !

To borrow Shoopy's line, "I plan to live forever, and so far it is working ! "

illead's picture
illead
Posts: 503
Joined: Aug 2012

I knew you went through it but think this is the most gruesome account yet, know you could probably write a book!  I hope to see you in foreverland.  Bill and I are planning on being there too.  You're the best!  Becky

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1045
Joined: May 2012

illead,

I was on a local radio station for "Amazing Survival Stories"  --before I got cancer.

I think I have another 10 or more years in me. I have been totally cancer free for four years, which is a very positive thing.  My issues are mostly orthopedic at the moment. I show some signs of early Parkinson's, but that is not officially diagnosed yet.  My doc said I would have to follow up on that with a neurologist if things get worse.  Maybe they won't.  I still want to get a bike and tour the country, Easy Rider style.  I am only 57 now, but people say I look 75.  People just need to realize how much stamina and endurance is within them, if they have spirit .  I am blessed !  

Many EMS techs have told me that when they get a call regarding "ejection" from a motor vehicle crash (such as I had), they do not expect the person to be alive when they arrive, so I have beaten the odds.

I have a good vibe about Bill -- he will be fine.  We will stay in touch .  

I had a buddy die about two months age after 13 years with prostate cancer .  I took him to the cancer center for most of his treatments during his last cycle.   Because I used the same center, he once said to an infusion nurse regarding me, "This guy is one of your success storys !"  I told him in reply,  "YOU are the success story ! You have been doing this for 13 years !"   Most of those were good years.  But, the last six months or so were ugly -- very.   I remember this song in his memory.  It is so deep.   I used to play guitar, and am hoping to begin on bass soon, if my fingers will cooperate.

The song might have meaning for you.  Anyone out there facing anything: Know you can beat it !  Laugh at it, and it will leave you alone . Disease is a coward and a punk .

 

http://www.youtube.com/watch?v=FrkEDe6Ljqs

max

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Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

Nice to see you in fine form as usual max ;) glad everyone is doing well. I may be back in the chair soon but th jury is still out. What the heck, kinda missed the nursing staff anyway. I'll keep y'all posted, I haven't posted much lately but I'm always keeping watch on the forum. Take care and be well everyone 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1045
Joined: May 2012

Aaron,

What does "in the chair" mean, big guy ?  I hope not what I think....

max

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

I won't know for sure until next month but it's not looking good. Hopefully it's localized in the neck so possibly it can be dealt with with radiation and rituxan. We shall see

ThisisLife's picture
ThisisLife
Posts: 98
Joined: Jul 2012

Aaron,

I'm sorry to hear that it might be back.  I'll be sending you lots of good vibes.

Shar

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

Hi Aaron,

 Gosh...I sure hope it's not back. I'll keep you in my prayers. Let us know when you find out for sure. Best wishes...Sue

(Follicular NHL-stg3-grd2-typA-Dx 6/10-age 63)

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