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Cancer Treatment Centers of America, anybody?

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

Hey Team,

I am considering going to Cancer Treatment Centers of America.  I especially like that they integrate naturopathic medicine with conventional treatments, and they seem to be a little more personable.  I am starting to feel like part of an assembly line at my current cancer clinic.  Are any of you being treated at CTCA, been there, love it,  hated it and left? I'd love to hear from folks who are not in the TV commercials.

icemantoo's picture
icemantoo
Posts: 1593
Joined: Jan 2010

Just use Google and read a few of the posts that are not self generated and make your own decision. It is a for profit business catering to the wealthy and well insured.

Icemantoo

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

I am well-insured but not nearly wealthy-- not even close. I will Google, but just judging by that, I'm not a good candidate.
I just thought of something..... I was, in fact,  sitting in a room full of wealthy people and high level government officials when the director of CTCA announced they were opening a facility in my city. I didn't realize it at the time but it shows their target audience is not me.

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

Cherry-picking patients who will probably have the best outcomes, credit checks, misleading statistics, excluding patients in survival data... no thanks. And I'm sure I can find a good acupuncturist elsewhere.

TillieSOK's picture
TillieSOK
Posts: 245
Joined: Jul 2013

They turned down treatment of my sister because she was on Medicare and not wealthy.  They will only accept patients that have at least a 95% chance of total remission.  They only want "good commercial material"....they don't care about the actual patient.  My niece works at one as a dietician and she verified that they only want to "treat" people who can be "cured" easily.  They are smoke and mirrors and strictly for profit.

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

That is one big cancer sham. Anything for money.

icemantoo's picture
icemantoo
Posts: 1593
Joined: Jan 2010

I did some more goodling and the founder of the company is affiliated and sponsers many of the lobbing groups sponsored by the Koch brothers and supporting the tea baggers.

 

Icemantoo

srbelle1
Posts: 123
Joined: Jul 2013

in the first week following my husband's diagnosis, this place was one of my many calls and was told they didn't accept Medicare.

That was it for me; a part of the Tea Party, Koch brothers????? Oh, wow!

sarah

donna_lee's picture
donna_lee
Posts: 415
Joined: Feb 2009

Upon Dx in 2006, I was grasping at straws.  CTCA would be more than happy to set up an appointment with me, run tests that had already been done, and see what they could recomment.  And this would have been after traveling from Southern Oregon to Phoenix, AZ, getting a motel room, renting a car, etc. etc.  Then go home and come back for treatment later, if they could do anything.  And I do remember them saying that I had good insurance.

I went with radical surgery at Oregon Health Sciences University for the Stage IV in the kidney, liver, and nodes. They felt they removed all sites and because there were no active sites, I didn't fit into a trial and they didn't want to use any of the other drugs that were approved at that time.  Yes, the cancer appeared two more times in nodes, which were surgically removed.

On the flip side, a new member at our support group here, was living in Phoenix when she was diagnosed.  As an RN, she knew what she was going through and chose CTCA. I think she was satisfied with the center, but made some other changes in her life and has come back to Oregon to finish treatment and be closer to family.

It's your body, your choice.Good Luck

Donna

 

Bettie7752
Posts: 14
Joined: Oct 2013

There was a guy I knew from AL who went to the Cancer Treatment Center in Atlanta and he wasn't rich, but I guess he had great insurance. He finally died of lung cancer, but he did not do any better there than he would have done anywhere else. His family was swayed by the commercials.  To me, it is a rotten group of people who take advantage of others' suffering. y'all have really educated me a lot in the few days I have been on this site. 

Thanks. 

Bettie

gatorbob
Posts: 20
Joined: Oct 2013

May I remind IceManToo the purpose of this site is to assist those fighting a horrible disease to find someone who might help make their journey a little easier!!!! It is NOT a place to air your political point of view!!! To do so is a slap in the face to all those seeking help and all those trying to give it. There are plenty of sites dedicated to that. Find one!!!!

As an aside......the term"teabagger" is street talk for Child Molester.A bad lable to assign to anyone when "you knoweth not where you speak".

BC

mrs_blkjak's picture
mrs_blkjak
Posts: 87
Joined: Apr 2013

Even if I disagreed with Iceman's politics, I don't think his intention was to bring anyone down. When you are dealing with major health issues, I think it's important to know the priorities of your providers. For-profit and aligning yourself politically with controversial allies may make some people rethink using your services. If their concern is about money (ie making sure they only provide to wealthy and those with good insurance), some might rethink using their services. it's good to have all the information when making decisions. 

MeMeJoy
Posts: 68
Joined: Apr 2013

Thank you. I don't think Cancer cares what anyone's political position is and I  don't remember reading that this is a site that is strictly for any political ideology. Also, not only is your definition of the term teabagger correct, but bluntly, it also means: A male that **********************************Edited because I never meant to offend by providing a definition ***************. This act is known as "teabagging". Therefore, by calling someone that name you are essentially calling them a sexual offender or making some judgment regarding thier sexual preferences. Just because someone vulgarly and incorrectly used that the term a few years ago in a grotesque and failed attempt at humor, doesn't mean it is ok. Do people really think it's ok to make light of sexual assault? Do we tolerate this behavior in other areas? I think not... I do not mean to offend anyone with this and will delete if asked. However, if people are going to revert to name calling then perhaps they should know exactly what the terms they use mean. Also, I am in no way am defending CTCA or the Koch brothers - I know nothing about them.

srbelle1
Posts: 123
Joined: Jul 2013

someone asked about the cancer treatment centers; they are all over tv advertising their services.

iceman shared what he knew of those treatment centers and it was helpful to know. Teabagger is not about child molestors; the Koch brothers' ownership of a "business" that purports to offer treatment to stage IV cancer patients but does not accept the really serious cases nor Medicare is very relevant and not political.

srbelle1
Posts: 123
Joined: Jul 2013

someone asked about the cancer treatment centers; they are all over tv advertising their services.

iceman shared what he knew of those treatment centers and it was helpful to know. Teabagger is not about child molestors; the Koch brothers' ownership of a "business" that purports to offer treatment to stage IV cancer patients but does not accept the really serious cases nor Medicare is very relevant and not political.

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

I don't think Icemantoo meant "teabaggers" in a sexual or vulgar sense.... he meant Tea Party supporters, right?  And if CTCA is a money syphon that is not the altruistic organization that it makes itself out to be, and does not truly lend to improving all our lives, yet takes our money for the purpose of supporting political causes-- be they Republican, Democrat, muskrat... I don't mind the mention of it.  I have now done my own research, as well, but I wanted to hear from my forum friends, because that is what we are here to do.  We are here to inform and support each other.  Someone else may have these same questions and may gain knowledge from our responses without participating in the conversation.

**Steps down from soapbox**

Carry on!  Anybody else have experience with CTCA?

mrs_blkjak's picture
mrs_blkjak
Posts: 87
Joined: Apr 2013

Pointing at you Phoenix! It's good to know what you're paying for and what the priorities of your providers are. I would feel the same no matter what political alliance CTCA has. And while the word teabaggers may have another meaning, context is important. I try not to be offended as much as possible!

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

What SHE said Mrs Blkjak! Laughing 

 

mrs_blkjak's picture
mrs_blkjak
Posts: 87
Joined: Apr 2013

Sorry Pheonix!

MeMeJoy
Posts: 68
Joined: Apr 2013

I agree that context is important and I too think people get too offended too easily. I also agree that you should know what you paying for and who you are signing those checks for!! I looked into CTCA in the spring and for the same "for-profit" reasons decided to stay away, same for my family members that have/had cancer.

Truth is - the term never had a another meaning until someone made a bad joke - KNOWING full well what they were doing.  Just because someone calls someone else a derogatory name and then says - "oh I only meant to offend you because of some other quality I dislike about you," doesn't make it ok.

Context is important - just as "There is a time and a place" - and this is niether in my opinion. I just don't think it's ever ok to go out of one's way to be rude and call people names just because one can ...not sure why thats a bad thing...

ok Im done now lol

 

As a side note -  I am niether a member of the Tea Party or Republican Party.

icemantoo's picture
icemantoo
Posts: 1593
Joined: Jan 2010

I will try and stay more relevant. I have been worked up the past few weeks about so called patriots and how particularly obnoxios they are and how damaging I and many others believe they are to the country. Discovering that the founder of CTCA and the Koch brothers who I fear are likewise dangerous had a fundraising connectiion together just got me a little worked up.

I should of stopped where I started off with suggesting that the reader google the hits for CTCA that are not self generated and that would have been sufficient. Checking the founder of CATC on Wikepedia just made my blood boil.  From now on I will try and act apoitical which fortunately I am not.

 

Really I will try to tone down my politics.

 

Icemantoo

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

Phoenix,

Robin, Smart Patients Coordinator, recently responded to a question about CTCA on Smart Patients.  Included in her response was the following: "Cancer Treatment Centers of America has no particular expertise in renal cell carcinoma, which is a very unusual cancer in the way it behaves and responds." 

 

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

Got it Alice.  Thanks!

gatorbob
Posts: 20
Joined: Oct 2013

For the sake of reason I'll opt out of this discussion. IceManToo ends his post telling us he will leave his political opinions off the forum! That's after he spends his first comments with the same stuff! Again,this NOT the place for that commentary! Grow up......or Shut Up!

To the 'Lady with the cold,wet nose',I wish you luck and peace! You will find a successful treatment.Don't give up on Winship yet!!

BC 

 

 

srbelle1
Posts: 123
Joined: Jul 2013

ENOUGH!

todd121
Posts: 612
Joined: Dec 2012

Todd

TillieSOK's picture
TillieSOK
Posts: 245
Joined: Jul 2013

Take your anger and please direct it toward your cancer and your recovery!  This is truly NOT the place to be calling names....and don't think for a minute that we didn't catch the "to the lady with the cold, wet nose" reference.  You don't call ANY woman on this forum a b!tch, no matter how graciously you put it, and not get called on it!  None of us need this crap!  Iceman too is one of the most informed and helpful people on this forum and would never use a phrase in a vulgar or hateful manner.  And just of general information, I had never heard nor read either of the "meanings" of the phrase "teabaggers", so I guess I must really be naive.  I cannot un-read those descriptions now, however....thanks a lot.

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

I am with you there Tillie, I think I much preferred naivity!

 

Djinnie 

 

MeMeJoy
Posts: 68
Joined: Apr 2013

I'm sorry if I offended you.  I mean that with all sincerity. I honestly never thought someone would be offended more by the definition of a word than the actual usage of the word. I tried to I explain it without being crude. As you can see I edited it out of my comment, if someone is curious they can look it up for themselves. I will say that I have asked around and it isn't exactly a new phrase - been in use since at least the 70's, and not in reference to a political group...

Also, I agree that calling a woman  that name, no matter how subtly, is disgraceful. We should all be civil enough to have a coversation without reverting to name calling....that was the whole point of this chaotic nonsense in the begining I think....

I had a lot more on here about teaching kids right from wrong when adults sling mud quicker than a child making mud pies and choice and ownership of ones actions and ... a lot of other topics... but I will leave it at, " I am really sorry if you were offended by my post. I never meant that. I never meant to be combative either."

-Guess thats the problem with typing instead of talking, a lot is lost.

 

 

 

 

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

No worries MeMe! ...Definition or usage, are all the same to me I had never heard of either. I am in Europe though so there is no reason for me to have come across it!  It has put me off my Earl Grey for a bit though!Smile

Djinnie x

 

 

MeMeJoy
Posts: 68
Joined: Apr 2013

Earl Grey.....I actually lol-ed !!!!! Good one!

TillieSOK's picture
TillieSOK
Posts: 245
Joined: Jul 2013

No problem...I wasn't offended....just "shocked" that I was unaware of its meaning.  I consider myself well read, was married to a military man, and have worked for a hard rock radio station, and I had never heard that.  We are all here to conquer one thing and to learn all we can about that thing, and I don't think we need to waste our energy or our anger on "something else" we have no control over, to the point of fussing with one another over a misspoken word.   Just my humble opinion and probably worth what you paid for it. ;)

MeMeJoy
Posts: 68
Joined: Apr 2013

I can see your point! And value your opinion. I just have always felt that sometimes you have to stop turning a blind eye.... It's not really about Iceman ya' know? It's about respect. Just because people don't agree doesn't mean they can't show a little respect to one another. Especially here. I know I'm not an official member of "the club" anymore but one thing I liked about this site in the begining was that I felt everyone was welcome. I would hope other "noobs" feel that way too.

icemantoo's picture
icemantoo
Posts: 1593
Joined: Jan 2010

Can't make everybody happy.

 

I guess I will go back to limiting my advice to Kidney Cancer where it belongs.

 

Icemantoo

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

Putting politics to one side, I would just like to say that there is no one  on this site more supportive than Iceman. He has been posting since 2010 and there are many of us who are grateful that he gives up his time to give us the benefit of his advice. He is always one of the first to offer his support to new members!

Above all else we should treat each other with respect!

 

Djinnie

AprilandChuck's picture
AprilandChuck
Posts: 95
Joined: Feb 2013

Oppss read late 

gatorbob
Posts: 20
Joined: Oct 2013

Didn't get the text you sent! Just the notification.

BC

Alexandra's picture
Alexandra
Posts: 1245
Joined: Jul 2012

Teabagger actually has several meanings. One definition is that of someone who works or is in a low economic status, while some have used the term to describe the activist group the Tea Party. It's obvious from the context that's what Iceman meant. It is also the term for a fun and safe sexual act where a man lowers his balls in another person's (male or female) mouth. I don't know what street GatorBob lives on, but this term has nothing to do with child molestors or violence and it is not derogatory.

I can't believe how one purist noob managed to turn a free discussion of treatment options into a disgrace worthy of Jerry Springer.

Speaking of CTCA - it's a well-known fact in the cancer community that they cook statistics, only accept patients with perfect insurance and excellent prognosis. I have no personal knowledge of them outside of many discussions on other boards.

 

MeMeJoy
Posts: 68
Joined: Apr 2013

 

Who are you to determine what is and isn’t derogatory? Are you a Tea Party Member? If so then my apologies, you have more of a dog in this fight than I do.

 

de·rog·a·to·ry

 diˈrägəˌtôrē/

 adjective: derogatory

 1.  showing a critical or disrespectful attitude.

 

So, calling someone any name after you have been told that it is offensive is....well offensive and means you are doing so in a derogatory fashion. And though I am not a Tea Party member, I’m pretty sure they have been quite vocal about how offensive the term is....That said any further use of the word to describe them is done so with callous disregard for common decency. When any group stands up and says "Hey that’s not cool" the collective WE should stop for a moment and think before we speak and not condone those comments which clearly mean to disparage others. I also don't find homo/hetero/bi/any other sexual, racial, sexist, religious, disability, etc. slurs acceptable -  and certainly not here.

 

Also,  I'm sure that the college girls (and others) that are, often times drunk and therefore unknowingly, subjected to this act as a form of assault at parties, wouldn't like to be refered to as teabaggers. Nor would the guys who are subjected to this, often unreported, form of locker room bullying/prank/assault. Think it doesn't happen? Think again!!! 

 

By all means if this is your idea of "fun and safe" personal time then of course you should not be offended by the term. More power to you Alexandra - you go girl -  Drink that Tea!!!!

 

Never in my wildest dreams would I have imagined that one would be vilified for saying that a CANCER website was NOT the place for political ideology or NAME CALLING! You gotta be friggin' kidding me!!  I don't have the energy for this anymore...

 

srbelle1
Posts: 123
Joined: Jul 2013

ENOUGH!!!!

 

Meme, this is a forum for kidney cancer NOT sexual definitions or mores.

MeMeJoy
Posts: 68
Joined: Apr 2013

Now thats rich!

How is it that no one here can seem to concede that name calling is wrong??? I am truly astounded that I am the one in this situation that is being attacked!! Now it is funny!!!!! lolLaughing And makes the state of the world make SO much more sense!!!!Surprised

dhs1963's picture
dhs1963
Posts: 373
Joined: May 2012

In context, it was clear (to me at least) that Ice was insulting members of the tea party political stanse.  Not making a sexual reference. 

Ok, politics do not belong on this board, but sexual things even less.  I want the board to be safe for work.

 

And Politics do belong when it impacts cancer -- funding for the National Cancer Institute / NIH is ok.

 

MeMeJoy
Posts: 68
Joined: Apr 2013

Funding should be there!!! 

 

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Hey what do you mean no sex around here.. Darn that is half of my schtick. No one has ever commented to me before. I have openly flirted with most of the women here and apologize to those I have missed. So let's get back to fighting cancer.. Oh and more sex... Ron

AprilandChuck's picture
AprilandChuck
Posts: 95
Joined: Feb 2013

Lol :-)

Bettie7752
Posts: 14
Joined: Oct 2013

Well, Ron, I am the one who is naive. I thought the photo you posted with your red, white, and blue flag colored hair was just a nice attempt to show empathy for me with my Votrient messed up hair. Now I discover that it is just an attempt to flirt with me and the other poor ladies. LOL. Well, keep it up because your antics make my day. 

Take care,

Bettie

PS:  I keep trying to post my picture, but y'all keep rejecting it. 

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Ron, happy to see you have your priorities straight!  Life is too short not have a little fun.  I'm diggin' your style...way to lighten the mood of this thread!!

And for what it's worth, I have gotten some of my best advice from Iceman.  He and I are on opposite ends of the political spectrum and we will never agree on most things political, but, I have the utmost respect for him and his knowledge of RCC.

Sindy

FreeStyle
Posts: 1
Joined: Oct 2013

Everything aside.  I don't think it costs anything to give them a call.  Like them or leave them.  I would not count anything out.

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

I may just go ahead and call, but if they start talking credit checks and the like, I'm outta there.

dhs1963's picture
dhs1963
Posts: 373
Joined: May 2012

I am very happy with my medical team at NIH.  But, I have thought about going somewhere for a second opinion.

Cancer center of america is not the only one focused on money.  Financincg medical care is a nationwide problem for all but the rich.  MD Anderson requires you to prepay if they do not like your insurance....there have been articles about that. 

I would be more concerned with cooking the books.  A good cancer treatment facility should take all people regardless of potential outcomes.  With the adv.  I have seen, and the numbers quoted, it is clear to me that they cherry pick.  I would be a good candadate for them:  Solitary Met RCC:  claim stage four but better outcomes.

THe bottom line, though, is that in USA, medical care is a business.  Sometimes, it is a non-profit, sometimes, for profit.  That is a fact.  If a for-profit can streemline such that they get better outcomes for less money while making a profit, great.  But, is CCA doing that, or just making it look like they are doing that?

Minnesota Girl's picture
Minnesota Girl
Posts: 115
Joined: Jul 2011

Phoenix - I don't get on the site much these days, so I just saw your post and am not familiar with your story. Are you actually in Phoenix? I have an RCC specialist in Scottsdale that I really like. Send me a private message and I can share his contact info.

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