Oct 13, 2013 - 3:57 am
Here's my resume in short:
Age of 12- Stage 4 Neuroblastoma
3 years of treatments
Age of 17- AML, Allogeneic Peripheral Stem Cell Transplant
Current Status: I'm Thank God, a few years post transplant, and I am Thank God well!
Now for the question:
I know of a few families who were determined to keep the diagnosis a secret. Whether it was out of a desire to protect loved ones or they couldn't fathom the idea of become the takers..... or they didn't want people to treat them differently. Whatever the reason, its their decision.
I absolutely refused to keep it a secret, I didn't want the added pressure of pretending..... in addition I felt that I would need my family and friends to help me through. I was right, I couldn't have done it without them. I also did not want to pass on the opportunity of having people pray for my recovery (they can't do that if they don't know).
I didn't go around telling everyone, but I was not under pressure to put up a facade that everything is just fine when it wasn't. As for being treated differently, you set the tone. If you act normally and communicate your needs and boundaries (ex. If you don't want questions) your friends will do the same. Keep the lines of communication open.
I really want to hear any comments you all have on the issue of telling vs.keeping a cancer diagnosis secret.
P.S. I am here if anyone wants to talk about Neuroblastoma, AML, or just wants to vent about cancer ( I know u gotta keep those spirits up, but every now and then venting is just fine!) Just send me a message and we'll talk.