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Kidney tumor 3.7 partial nephrectomy

Hmtwncali's picture
Hmtwncali
Posts: 6
Joined: Oct 2013

I'm 39 yrs old male   and they found a 3.7cm lower pole tumor  on left kidney.. surgery is some time next month.. They say it's slow growing. They are doing the robotic procedure.. What does that mean anyway.. So 85 percent it's malignant.. What happens after surgery .. Please you guys help me give me advice, what am I looking at.. I'm kinda freaking out .

icemantoo's picture
icemantoo
Posts: 1507
Joined: Jan 2010

Hm,

If things go as expected the bad news is that it is probably malignant and the good news is that you can tell people that you had Cancer and that you are now hopefully free of it for the rest of your life. The surgery and recoovery are not fun, but at 3.7 cm you are very lucky considering how big the tumor coulld have been before it was discovered and that is serious stuff.

In the hospital a couple of days, on the couch for another week a few more weeks slow go and at 6 weeks you shoule be back to regular actiities except for the strenuous stuff.

 

 

 

Icemantoo

 

Hmtwncali's picture
Hmtwncali
Posts: 6
Joined: Oct 2013

Thank you... My diverticulitis has to completely clear up then i get scheduled for the surgery.. Do u know what therapy I'll prob be dealing with after ?  

todd121
Posts: 555
Joined: Dec 2012

The bad news for those of us with kidney cancer, is there is no treatment after nephrectomy. That's also the good news in a way...

They have not approved adjuvant therapy drugs for kidney cancer. Once this tumor is gone, most people just hope it doesn't come back.

The size and location of your tumor make it likely that it will be Stage 1 (less than 7 cm in size, and didn't gain access to the blood supply or grow out of the kidney). Stage 1 has a pretty good success rate with getting rid of the cancer. The odds are better than 90% you won't have it come back (if you're stage 1).

There are some adjuvant therapy drug trials going on. You must start these within something like 20 weeks of having your nephrectomy, so if you have any interest you have to investigate them soon after your surgery (there's some testing before you can start). Many on this board (dare I say most people on this board) are against participation in adjuvant therapy trials. A few of us have chosen to participate. I'm finishing my 36th week on a trial next week and have 18 more to go after that.

I hope all goes well with your surgery. Are you getting a radical or a partial nephrectomy? Where is the surgery getting done? A robotic assisted laproscopy means they make a few small incisions and use tools inserted through these incisions to do the surgery (they have a camera and the inflate your abdomen with air to separate the tissues). The hope is less cutting makes for faster healing and maybe even less chance for infection. In my case, I ended up with a pretty big incision anyway, because they had to remove the entire kidney intact. The tumor was in the middle of my kidney.

Take care and keep us up-to-date.

Todd

cran1's picture
cran1
Posts: 128
Joined: Mar 2013

Compared to the fear of realizing I had kidney cancer the lap partial was easy. Hang in there.

Hmtwncali's picture
Hmtwncali
Posts: 6
Joined: Oct 2013

How was your recovery?  And how are u doing now? 

dhs1963's picture
dhs1963
Posts: 372
Joined: May 2012

Surgery is hard.  It is very invasive.  And recovery takes a while and hurts.  I still hurt 15 months later, but that is me.

Post surgery, the only action probably will be scans to make sure nothing else is happening.  Stage 1, if a low grade, is often cured by surgery....95+% of the time.

 

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

Everyone is different after the nephrectomy. My husband (one putt) is a stage 4/grade 4 clear cell patient. He had a full right neprectomy on November 1, 2011, and his recovery was quick with little pain, though his doctors made pain medicaton available if and when he needed it.

His nephrectomy was followed by IL-2 treatment at the beginning of January 2012. He often states his neprectomy surgery was a cinch in comparison to the IL-2, sentiments Fox would probably mirror.

Good luck to you.

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

yep cran1 i am with you on that!!!  i had a radical with open surgery and sure look you have to get through it and you will....

eims x

Septemberzoe
Posts: 43
Joined: Sep 2013

I also had a partial nephrectomy laparoscopically with the robot...my tumor turned out to be 3.5 cm...pathology showed it to be clear cell stage 1 grade 2...I totally agree with cran1...the fear and shock of having cancer for me was so much worse than the surgery. I was in the hospital for 3 days and had some trouble with nausea from the anasthesia but I rested a few weeks at home and returned to work after 3 1/2 weeks...good luck Cali! You can do this.

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

You WILL do this.

Hmtwncali's picture
Hmtwncali
Posts: 6
Joined: Oct 2013

Thanks you guys .. feel a lot better.. This website is awesome 

jknorth's picture
jknorth
Posts: 44
Joined: May 2013

Was out of the hospital in 40 hrs and driving my car within like 4 days and didn't fill the pain killers prescription. The constipation thing sucked for a few days as gut felt kind of bloated. Don't know whats next now as my next follow up is in early Dec with the same surgeon. The worst thing now is the five scars are like a half inch each and won't go away and kind of embarrasing if your going to the beach for instance. One looks like a second belly button. Oh well. Besides all that I have zero symptoms or anything that would suggest this ever happened right now. Just the anxiety of that next checkup and its something that will get more grand on the scale of things soon I'll bet. I got helpful info reading this site as well, good luck. Still perplexed how we get this damn thing in our body.

bcbigb
Posts: 31
Joined: Sep 2013

i had a 15cm tumor removed 3 weeks ago and i am feeling pretty good already .tests results in on monday.tumor, kidney and lymph nodes removed,take it easy for first week and go at your own speed.good luck and my thoughts and prayers r with u.

brian

Vivaldi
Posts: 19
Joined: Jun 2013

I have been in your shoes, well, like most people here.  Those stats are pretty scary, I was told 90% chance it was cancer, and my grandfather and father both dying of kidney cancer.  I was four months from "discovery" to a partial nephrectomy and six weeks waiting for the pathology.  You don't even spend that time thinking it is anything other than cancer.  They refer to you as a cancer patient, your file says RCC, but until that tumour is in the hands of the pathologist, there is still that ten percent or fifteen percent chance it is something else, like an oncocytoma.  Even with my odds, my family history, I got the lucky break and mine was an oncocytoma.  Until the pathologist says it is cancer, there is always the chance it isn't.  I wish for you the same lucky break I got, yes it is hard surgery, mine was open partial, but my six months is in ten days, a scan is scheduled and other than an interesting scar and an occasional blobby middle it is just a memory now.  All the best with your surgery, keeping my fingers crossed for you.

elpasorudy's picture
elpasorudy
Posts: 78
Joined: Jan 2013

I was diagnosed with a 2.5 cm soft tissue mass in July. Had surgery Oct. 16, a partial nerpherectony, done robotically. I chose to have mine done at the Moffitt Cancer Center due to the experience of the doctors there. It's a two-hour drive from my house to Moffitt, but was worth the inconvenence. My local urologist has done only 40 nepherectomies versus 100s by my Moffitt doctor. The pain was pretty well managed: the worst of it was cramping for two days from the carbon dioxide gas pumped into your body. I am sore today around the five incisions, and it hurts to move from sitting to standing and vice versa.  I have not used pain medication since the night of Oct. 18. Got home yesterday afternnoon. I am 67 and overweight, but I have been working out regularly for the past two years, doing 3 to 4 miles on the treadmill six days a week. I think that helped with the surgery. Will get my pathology report in a week.

TillieSOK's picture
TillieSOK
Posts: 232
Joined: Jul 2013

Rudy, where are you in FL?  Hang in there, drink lots of water, eat lots of veggies, cut down on the salt, continue to exercise as you can tolerate it, and you will get through this.  Be sure to let us know when you get your path report.

NanoSecond's picture
NanoSecond
Posts: 517
Joined: Oct 2012

Sorry Tillie but that advice about eating "lots" of veggies is rather suspect.  Veggies (and fruits) are certainly OK in moderation. But they are all carbohydrates and it is the carbs that need to be limited - especially if you have cancer.  The best advice remains: to eliminate all sugar(s) as much as feasible.  Most fruits are just bags of sugar - and the sugar in question within them is usually mostly fructose (the name fructose comes from "fruit sugar") which is the absolute worst thing for any of us.  In additiion we need to cut out cooking in or consuming ALL vegetable oils.  These omega-6 oils are polyunsaturated fats that can weaken our immune systems and promote internal inflammation.  We should all try to eat more fish and seafood (to increase our omega-3's) while cutting down on all breads, pastas, and grains.

For a more detailed explanation of what truly is an optimum healthy diet for cancer sufferers - and why - just email me at: n.feldman@videopost.com and I will respond with a 65-page document that explains the latest science and research behind these and other important dietary recommendations.

elpasorudy's picture
elpasorudy
Posts: 78
Joined: Jan 2013

Tillie, I live in Cape Coral, which just across the river from Fort Myers. Are you a Floridian also? Thanks for the advice; I'm taking lots of water.

 

TillieSOK's picture
TillieSOK
Posts: 232
Joined: Jul 2013

I'm in Lehigh Acres, just across the Caloosahatchee! Hi, neighbor!!

i might be wrong, but I was told by a NP who worked with cancer patients for several years, that you need to eat 5 servings of veggies a day, plus 3 servings of fruit, and about 4 ounces of protein, plus LOTS of water, avoid sugar, starches, carbs, etc.  The servings are NOT supposed to be huge servings...about fist sized.

NanoSecond's picture
NanoSecond
Posts: 517
Joined: Oct 2012

Hi Tillie.  Yes, I know what we have been led to believe.  Unfortunately, much of it is not supported by what the latest science actually demonstrates.  I have spent the last year trying to decipher what, exactly, should be considered the "healthiest" dietary guidelines for cancer patients.  I have based most of my research on looking at normal and abnormal cell metabolism along with the very latest lab research.  Much of it recently presented at the AACR (American Association for Cancer Research) during their annual conference and in other peer-reviewed sources.  As a result I have prepared a 65-page document explaining, in detail, both the science and rationale behind what I call a "proper" diet for cancer sufferers (or those wishing to help prevent getting cancer in the first place).  In addition, it explains what I personally have doing during my clinical trial of n=1 by following these precepts during the past year.

In particular, I have been taking Sutent at maximum dosage (@50mg/day) and have had no significant side effects in over one year and counting.  In addition, all of my bone lesions have shown either continued shrinkage; stability; or only new bone growth.

If you are interested I am happy to provide a copy of my document.  Just send me an email at: n.feldman@videopost.com and I will respond with it attached. But be prepared for a few shocks to what you may have been led to believe as being healthy eating.  To begin with, you might want to read this, as it summarizes many of the things that I have since come to understand the hard way:

http://www.businessinsider.com/13-nutrition-lies-that-made-the-world-sick-and-fat-2013-10?op=1%252F%253FIR%253DT%2F%3FIR%3DT

NanoSecond's picture
NanoSecond
Posts: 517
Joined: Oct 2012

Forgot to add.  Your NP's advice makes no sense.  Veggies and Fruits are carbohydrates.  So, if you are to avoid sugar and carbs you can't possibly also eat 3 servings of fruit (made up mostly of fructose and glucose plus water) a day.  And those veggies should not have starch which means no corn, potatoes, rice, etc.  The point is - you need to think through these kind of recommendations to see if they even make sense.

I am all for veggies - if they are the green, leafy variety.  Still, there is nothing magical about them.  Grass-fed meats provide all of the essential vitamins, minerals, micronutrients, and fats (essential for digesting several of the key vitamins) in a single package.  But guess what?  By themselves, veggies can not do that by themselves.  In particular there is no vegetable that will provide vitamin B12, for example.

Regardless, more important to consider are other highly unhealthy substances that we have been told to consume.  In this regard I am referring to all the vegetable oils that are being used for cooking, including olive oil.  These oils can be oxidized by heating them.  When oxidized, they release free radicals which can result in damage to DNA and other critical cell components.

Finally, there really are no such things as a "heart-healthy" grains...

Minnesota Girl's picture
Minnesota Girl
Posts: 115
Joined: Jul 2011

 

I was in your position about two and a half years ago. I've had irritable bowel for years and had a particularly bad attack. My GI ordered a CT to check for diverticulitis. No divert - but kidney cancer instead!! My tumor was small, like yours, and I had a laparoscopic procedure. Two years later I am happily cancer free!

 

A big challenge was getting my system up and running again after surgery. I waited five days for the 'poop fairy' (as it's been called in these pages) to make her first visit. That meant I couldn't go home, nor could I keep anything down.

 

So, if you have a history of gut troubles, I suggest you talk with your GI and the doc doing your surgery to see if they have any special recommendations for your recovery. As soon as you can, get up, get moving and drink plenty of water. Keep it up when you get home.

You are allowed to kinda freak out. But, as others have said, we're all proof that life goes on!!

 

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