Oct 10, 2013 - 3:34 pm
i was diagnosed with stage 4 peripheral t-cell lymphoma unspecified in May 2013 after a year of suffering with nasal congestion that did not respond to frontline and secondary treatments. I also had a small rash on my left temple that was originally diagnosed as sarcoidosis, but turned out to be part of the lymphoma. The sub category has been defined as non hepatosplenic gamma delta t-cell lymphoma. I have completed 5 of 6 rounds of CHOP with etoposide and am preparing for an autologous stem cell transplant At the university of Nebraska medical center.
I have been unable to find much information about this cancer, especially good news. if you have experience with this cancer, good or bad, please let me know. I am interested in symptoms, treatments, struggles and triumphs. I am the head of household for a family of 5 and want to find the best possible treatment and approaches to deal with this, regardless of the out come. I have to help my family as much as possible with a succession plan!
Thank you so much in advance!