Oct 06, 2013 - 6:22 pm
Well since the scan on September 13th, things have been getting harder. Dick started on Regorafenib on Tuesday and he only took it for 4 days and now we are in the ER. I am asking you how to deal with the pain. I know that is a very open question but fortunately for Dick his pain centered around his 2 surgeries and then diarrhea and anal pain (not to down play that pain at all). This new pain is hitting around 2 in the morning and they have already upped his meds. He is on Percecet but I get a low dose. He does have growth in the lymph nodes and the node on his adrenal glad but he has not been on treatment in a month.
The question is when do people get the patch? Do people manage to get pain under control and have some good days? Dick's pain is very bad at night and then for the past few days he is OK during the day and then pain meds around 9pm and then it gets worse and worse as the night goes on and gets to a level 9. We are walking for a few minutes and then he tries to lie down and then he might sleep for an hour. So we are at the ER and we need help with pain. We are interested in quality of life once pain meds start. We have not given up on treatment but we do need to get the pain under control.
Thank you .