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GREAT news today

Ro10's picture
Ro10
Posts: 1471
Joined: Jan 2009

Went to the doctor today and got my lab results.  It was 8 weeks since my last marker was drawn.  It went from 718.2 to 721.  That is the least amount of increase I have ever had in 8 weeks.  Who else do you know that would e celebrating a CA-125 of 721!!!!!!!!

All other labs are good.  

It is just a number, as my Florida doctor keeps telling me.   I am feeling good and have no symptoms.  except that I have been having foot and leg cramps especially at night.   Sometimes as many as 3-4 a night.  That does not help sleep at all.  I tried taking TUMS, but I see my calcium is already high, I added potassium, but my potassium is normal.  The doctor recommended doing exercise before bedtime and drinking Powerade.   So  will try that.  Anyone have any other suggestions.  :) I even tried to bar of soap at the end of the bed!!!!  I am desperate to get a good night's sleep.

We are getting ready to leave for Florida for the winter.  We will leave October 11 to go to Florida.  Then on October 15 we leave for our trip to Australia and New Zealand.  I am really looking forward to the trip.  So I will be off the discussion board for a while.  I don't want my "sisters" worrying about me while I am gone.  I hope everyone does well while I am gone.  You all remain in my prayers.  In peace and caring.

 

Alexandra's picture
Alexandra
Posts: 1260
Joined: Jul 2012

There is a home remedy for leg cramps: unwrap a dry bar of soap and leave it under the bed sheets next to your feet. However silly it sounds, apparently it releases magnesium and helps lots of people. Definitely won't hurt you.

Have fun in Florida and a wonderful trip down under!

ConnieSW's picture
ConnieSW
Posts: 622
Joined: Jun 2012

Wonderful news, Ro.  What a great send off!  Bon voyage and have a most wonderful time.  How long will you begone?  Will miss you.

Ro10's picture
Ro10
Posts: 1471
Joined: Jan 2009

The trip is for 25 days.  Not looking forward to the 13 hour flight from SanFrancisco to Auckland New Zealand, then a 2 hour flight to Cairns Australia.  But once we get there it will be wonderful..   

HellieC's picture
HellieC
Posts: 456
Joined: Nov 2010

Have a wonderful time on your trip, Ro.  Stable results are definitely a cause to celebrate - what perfect timing to get such news just before your holiday.  Australia and New Zealand are wonderful places - I visited them both in 2005 and had an amazing time.  We went to Cairns and snorkelled on the Great Barrier Reef.  I swam with dolphins in the wild in New Zealand.  It was a fantastic trip.  I hope it is for you, too.

We'll be here when you get back, waiting to hear all about it.

Kindest wishes and safe travels
Helen

Ro10's picture
Ro10
Posts: 1471
Joined: Jan 2009

I tried the bar of soap, but no relief.  As I said, I am desperate for a good night sleep.  I did my exercise and drank my Poerade, so we will see what tonight brings!  The doctor said the exercise would release the electrolytes and increase the circulation.  Thanks for you suggestion.

Alexandra's picture
Alexandra
Posts: 1260
Joined: Jul 2012

My mom, who is 68 and has every ailment known to man, swears by Crampex tablets from England. There are some exercise suggestions and cramps prevention ideas on their website too. http://crampex.co.uk/

I don't know if you can buy Crampex OTC in USA, but they are sold from Amazon.com http://www.amazon.com/Crampex-Tablets-Muscle-Cramp-Night/dp/B001RYOQBC and reviews are excellent.

 

Ro10's picture
Ro10
Posts: 1471
Joined: Jan 2009

Thank you for the suggestion for Crampex.  I will look for it at the drug stores.  What I saw on the Internet the main ingredient is " nicotinic acid"  I already take niacin 1500 mg for my high cholesterol and triglycerides, so I am not sure it will help.  I need to read the label on the bottle.  I appreciate you suggestions.  The cramps are better with once or twice a night about 5:00 or 6:00 in the morning, so at least I get 6-7 hours of sleep Before they wake me.

Glad to hear your breasts showed no cancer.  It sounds like it was torture to get those results though.  Hope you are doing well.  In peace and caring.

nempark
Posts: 596
Joined: Apr 2010

Have fun Ro, you deserve it!!!!!

tattooedtxgirl's picture
tattooedtxgirl
Posts: 61
Joined: Sep 2013

CONGRATS, GREAT NEWS!!!

Glad all is looking good..and you are feeling good.

Have a wonderful trip.

 

Crystal

Kaleena's picture
Kaleena
Posts: 1213
Joined: Nov 2009

Dear Ro:

So glad you got good news today.   I hope you can calm those leg cramps!     Looking forward to hearing about your trip to Austrailia and Nee Zealand.   May you have a fantastic time!   I have never been there so you have to fill me in!

Thinking of you!

Kathy

Kathy G.'s picture
Kathy G.
Posts: 116
Joined: Dec 2012

So happy to hear the good news, Ro! And happy that you are happy and excited about your trip. Have lots of great adventures and let us know how it went when you get back!

I was always told to eat bananas for leg cramps, but that ties into the potassium issue which doesn't seem to be your problem...

 

Kathy

Double Whammy's picture
Double Whammy
Posts: 2332
Joined: Jun 2010

Such good news, Ro.  Yes, it seems odd celebrating a CA125 in the 700's but for you it  works.      Keep it up. 

Have a wonderful trip!

Suzanne

Oh, about the leg cramps, have you tried quinine (tonic water)?  I've heard it's helpful.  Put a little gin or vodka in it . . . . 

 

txtrisha55's picture
txtrisha55
Posts: 429
Joined: Apr 2011

I am so glad to see your numbers and that you are healthy enough to go on your trip to New Zealand and Australia, mainly because of New Zealand.  As a kid growing up I loved (and still do) koalas.  Collected everything koalas and wanted to go to Australia. But when Lord of the Rings movies came out and it showed all the landscapes of New Zealand it became my new dream vacation spot.  I am so jealous but happy that you get to have the trip.  Enjoy! trish 

frodolass
Posts: 29
Joined: Sep 2013

I'm happy to hear your news. I'm so envious of your trip! Hope you have a fantastic time.

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I'm happy to hear about your latest numbers and the moving back to Florida for the winter...and the Australian/New Zealand trip....  You are really living high and enjoying life.  

 

As you said, IT'S ONLY A NUMBER!!!!!  That's easier said then done, but keep the faith you'll continue on with good health...visualize this, too.

 

Ro, you're one strong lady, keep the armor on and never give up!!!!  We're all here next to you rooting for you all the way.

 

Hugs

Jan

NoTimeForCancer's picture
NoTimeForCancer
Posts: 548
Joined: Mar 2013

I remember years ago seeing a little piece on TV where someone was holding in their hand some powder laundry detergent.  The soap got warm and the person was told it was from the phosphorus and it was a little 'burn'.  That is why I decided to shove a bar of soap in each sock I was wearing but I  don't know if there is that much phosphorus in soad anymore. 

ENJOY the trip!  and CONGRATS!!!  We celebrate this news with you.

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

Great news...have a great time in your trip!

sunflash's picture
sunflash
Posts: 158
Joined: Aug 2011

Glad to hear you're holding your own.......that IS good news!

Take care and have a BLAST on your trip!! What an amazing adventure!!

Ann55
Posts: 43
Joined: Jun 2013

So happy happy happy for your news and hope you have a wonderful trip!

RoseyR
Posts: 464
Joined: Feb 2011

 

First, congratulations on your "good news" and for feeling so well!  So happy you can go on that trip!

 

As for the leg cramps, try either of the following:

 

A bath, an hour before bed, in a cup of Epsom Salts--high in magnesium.   (You may add to the bath 3-4 drops of an essential oil such as Frankincense, for additional aroma and soothing.)

OR

Ingest 500 mgs of magnesium citrate with dinner.

 

I would frankly favor the bath because the magnesium gets into your system quickly through the skin, our largest organ.  

 

Let me kow if this provides any relief!

 

Love,

Rosey

Ro10's picture
Ro10
Posts: 1471
Joined: Jan 2009

Isn't magnesium citrate what you take for a laxative?  I  remember taking it for one of my colon preps before a colonoscopy!  I would think the pills would have a laxative effects, too.  I will try the Epsom salt baths.  

I hope you continue to do well.  

Sara Zipora's picture
Sara Zipora
Posts: 227
Joined: Sep 2010

Dear Ro 

Enjoy trip, 

we went two tears ago, it was great!

ReCramps,

i had taken Magnesium in packets diluted in water. No too successful, however one I stopped taking Statins, as a preventative chloresterol nightly pill, don't have any heart related issues, so just stopped it after I read article that Statins can cause severe memory as well as neuropathy symptoms, NEUROPATHY , AND CRAMPS MUCH IMPROVED,

enjoy your trip, praying for you and all Warriorettes!

 

sara

Sara Zipora's picture
Sara Zipora
Posts: 227
Joined: Sep 2010

Dear Ro 

Enjoy trip, 

we went two tears ago, it was great!

ReCramps,

i had taken Magnesium in packets diluted in water. No too successful, however one I stopped taking Statins, as a preventative chloresterol nightly pill, don't have any heart related issues, so just stopped it after I read article that Statins can cause severe memory as well as neuropathy symptoms, NEUROPATHY , AND CRAMPS MUCH IMPROVED,

enjoy your trip, praying for you and all Warriorettes!

 

sara

Teresa56
Posts: 10
Joined: Nov 2012

Congrats  Ro,on the great news! You are an inspiration to all of us,especially those of us that have reoccurred.Cancer or no cancer,we are alive and enjoying life...that's what is truly important.Hope you have a wonderful time on your trip.Enjoy every minute of it.

 

imackie48
Posts: 93
Joined: Nov 2011

Ro, I am so happy you are doing so well. I wish I was going to Australia, since I have my relatives there in Melbourne and Sidney. I don't know if I could do the long plane ride, I find it hard sitting fior the 3 hrs flight to Florida. My oldest son who turned 48 had a heart attack in August. Now my husband and son are both recuperating from there stents surgery, they were both in good health, so they thought, neither had elevated cholesterol or HPT, but my son did smoke for a long time, no more now.

I have been trying to stay healthy as they need my help Now, when I was in treatment they were ther for me.

stay strong and positive, I wish I could visit you on one of my trips down to Florida, my granddaughter turned 1 august 30th, we were there to celebrate it.  Ro, in 12 months, I went down 7 times to visit the kids. My DIL works at ST Pete's General Hospital in the Coronary unit, she works 12 hr shifts, it difficult cause she's still nursing Ella who wakes during the night.

take care, and enjoy your trip

Irene 

imackie48
Posts: 93
Joined: Nov 2011

Ro, I am so happy you are doing so well. I wish I was going to Australia, since I have my relatives there in Melbourne and Sidney. I don't know if I could do the long plane ride, I find it hard sitting fior the 3 hrs flight to Florida. My oldest son who turned 48 had a heart attack in August. Now my husband and son are both recuperating from there stents surgery, they were both in good health, so they thought, neither had elevated cholesterol or HPT, but my son did smoke for a long time, no more now.

I have been trying to stay healthy as they need my help Now, when I was in treatment they were ther for me.

stay strong and positive, I wish I could visit you on one of my trips down to Florida, my granddaughter turned 1 august 30th, we were there to celebrate it.  Ro, in 12 months, I went down 7 times to visit the kids. My DIL works at ST Pete's General Hospital in the Coronary unit, she works 12 hr shifts, it difficult cause she's still nursing Ella who wakes during the night.

take care, and enjoy your trip

Irene 

Tresia23's picture
Tresia23
Posts: 75
Joined: Dec 2010

Hi Ro,

Lovely to hear about your improving results and to know you are feeling good. I have a suggestion for cramps which may work. My husband used to get severe leg cramps and we would use a sports liniment which worked quite well and allowed him to get back to sleep at night. I guess any brand that you may have used in the past would be suitable. I also use a product based on traditional Chinese medicine to manage cramps from fibromyalgia. It is called Zen herbal gel. It also comes in a spray bottle. It is amazing even if slightly aromatic. Not sure about interaction of ingredients however in relation to cancer survivors. When you come down to Australia you could talk to pharmacist about that in any discount chemist store or try www.chemistwarehouse.com.au

I hope you have a wonderful and restful holiday. The weather is pretty warm down here this Spring. Not much rain around, but that depends where you are travelling. Best wishes,

 

 

 

 

BarbaraDe
Posts: 18
Joined: Oct 2013

Hi Ro,

 

Congratulations on the good news and on the trip!

I was having very bad leg and feet cramps at night - so bad they would wake me up in such pain and I have to stand on my feet just to straighten the bones out!  I don't get them every night, but when I do get them, they last for a while and hurt so much!!  Just two days ago I saw an orthopedist for my mother and told him about my cramps.  He told me abut the old wives’ tale about the soap at the foot of the bed and said that some people swear by it. He said he found one that people said was even more helpful, though.  He said that before you go to bed, you need to eat one tablespoonful of yellow mustard...not golden brown, but yellow mustard!  He said that over 90% of his patients say it works!  My sister, who takes a holistic approach, read the ingredients on the mustard.  She said it has turmeric in it - something she has been telling me to take since I was diagnosed with cancer - and said that is what helps with the leg cramps.  It was just two days ago and so have not tried it yet.  When I do, I will let you know if it works...but it is worth the try!

Hope you enjoyed your trip!!

Barbara

BarbaraDe
Posts: 18
Joined: Oct 2013

Hi Ro,

 

Congratulations on the good news and on the trip!

I was having very bad leg and feet cramps at night - so bad they would wake me up in such pain and I have to stand on my feet just to straighten the bones out!  I don't get them every night, but when I do get them, they last for a while and hurt so much!!  Just two days ago I saw an orthopedist for my mother and told him about my cramps.  He told me abut the old wives’ tale about the soap at the foot of the bed and said that some people swear by it. He said he found one that people said was even more helpful, though.  He said that before you go to bed, you need to eat one tablespoonful of yellow mustard...not golden brown, but yellow mustard!  He said that over 90% of his patients say it works!  My sister, who takes a holistic approach, read the ingredients on the mustard.  She said it has turmeric in it - something she has been telling me to take since I was diagnosed with cancer - and said that is what helps with the leg cramps.  It was just two days ago and so have not tried it yet.  When I do, I will let you know if it works...but it is worth the try!

Hope you enjoyed your trip!!

Barbara

Ro10's picture
Ro10
Posts: 1471
Joined: Jan 2009

I appreciate everyone's comments.  We made it to Florida and got settled in.  We head " down under". Tomorrow at 8:00 am.  Looking forward to the trip.  It will be a real adventure.

Thank you for all the suggestions for the leg cramps.  I am taking potassium, magnesium, and tonic water.  My primary doctor ordered flexeril at bedtime.  Whatever I am doing has helped that I just get one cramp towards morning.   I hope I do not get them on the plane when I have to stay in my seat.  I have to get up and walk around to relieve the cramp.  It will be a long flight  13 hours to New Zealand.  

I am going to see if you can still buy quinine in Australia.  In the US it is only approved for malaria.  Many people took quinine for years for leg cramps before.  

I'll be gone for 25 days.  You all will remain in my prayers.  I pray that those undergoing chemo have few side effects and the the chemo works for you.  I pray that those who are NED remain NED for a long time.  And I pray for those with recurrences that their new plan of attack works for them.  In peace and caring.

soromer
Posts: 130
Joined: Mar 2011

I'm so glad you have good news to cheer you as you embark on this wonderful adventure. May it be everything you imagine and more.

It's important to walk around not just for relieving cramps, but to make sure you don't get a deep vein thrombosis. A walk at least once every 60-90 minutes. (Hard to sleep then, I know.) Last time I was on a flight of longer than an hour, I wore some knee-high support stockings. They aren't glamorous but they do the job. 

Thanks for your prayers; may the blessings you request for others come back to you.

 

Ro10's picture
Ro10
Posts: 1471
Joined: Jan 2009

I have TED hose to wear.  I also take a daily blood thinner shot, so I hope that keeps the blood clots away.  Thanks for you note.  

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