Sep 30, 2013 - 4:28 am
Hello dear friends,
I will be moving tomorrow October 1 to a new (to me) house,1/2 mile from my current condo. Yes, that's right my address is changing, please take a note of it. It is very exciting, and feels little crazy, considering health challenges and a full time job. We also did some renovations and will not have internet for a week or more.
I know I promised to give an update several weeks ago. Sorry it has been always something UTI, shingles (again nobody could believe), sciatica …
I participated BELLE clinical trial and was taking a combination of experimental drug BKM 120, a PI3K inhibitor, and Faslodex (fulvestrant) injections from March through July. I developed severe multiple side effects to the experimental drug and was taken off BKM 120 in June. Due to my long recovery from side effects I was moved to placebo group I, however have been remain on monthly Faslodex shots. Two weeks ago I decided to leave clinical trail and continue with Faslodex. My last scan in July showed stable disease and my markers in September are within my normal range (16.5).
I wish everyone good test results, easy time with your treatment and Please, please take care of each other and yourself.
Hugs and Love