Sep 26, 2013 - 9:17 pm
I had tonsil cancer in 2007, and had the neck disection, chemo, and radiation. I'm now 51 (yay - I made it!) Cancer free still! However, last summer I started having a sore throat and difficulty swallowing. Finally started throat dilations in April. Today was my ninth one. The last was 7 weeks ago, and I have since lost all progress made that time. The doctor went as far as the equipment will go last time. About 3 weeks ago, I had to have my meds changed (for the 3rd time), because the pills are too big. Then two weeks ago, I started losing my voice - and it is completely gone now. Went to a different ENT, and found out the radation scar tissue is messing with my vocal chords, causing my airways to be blocked. The GI doctor encouraged me today to get a PEG tube. He has concerned about me choking on my meds, dehydration, and lack of nutrition. I like eathing - even drinking water - it is just to painful - and a bit risky.
I'm upset (okay - pissed) about the whole thing. But, the feeding tube... One positive thing I am already looking forward to is NOT having to swallow my pills. I really stress over that. The dilations will still continue, so I can still have ice cream, shakes - the good stuff!
Anyone else out there with these kinds of issues, so many years out?
ANy feeding tube advice. I'm sure they will go over it on Monday, but still anxious.