CSN Login
Members Online: 3

Is there anything I hate more than getting a scan?-UPDATED

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

No.

Can’t think of much of anything I hate more…
with the possible exception of waiting for scan results.
But I can’t complain too much about the PET I had this morning, considering that the only reason that I get to have regular PET scans involves me throwing a kinda embarrassing tantrum, complete with words like "lawyer" and "sue your  ___".

It’s just that I have a little extra anxiety about getting the scan at this particular facility, because of what happened the first time I had one there.

Everything seemed normal at the start, bit of a drive to the big, fancy, brand-new building (oh really, Group “We Can’t Afford to Pay for Your Scan” Health?), bit of a wait in the waiting room, but no real problems. Then the man came out to take me in for my appointent. We walked down a long hallway, through a door, down another long hallway, through another door, down another hallway, into an elevator, down several floors…ok, so the scanning room is really in the bowels of this place, but that’s pretty normal for radiology stuff, right? Then he escorts me out one last door, and into…the parking lot.

And in front of us is what appears to be...

a taco truck.

1st thought: Oooh, I can get a taco after I get done!  Awesome!

                          .... then I notice the taco truck doesn’t have any windows.

2nd thought:  Oh no! This guy is actually a serial killer who abducts unsuspecting cancer patients and dismembers them in his little silver trailer of horror…after giving them an unnecessary scan. A killer who likes to add insult to injury!

(It is possible that I had been sitting at home watching way too many horror movies at this point in my life).

Guy notices the look on my face, says so they didn’t explain to you that we have a subcontractor who comes once a week with a trailer to do the scans?

Oh.  Feeling stupid (and hungry) now.  Of course I knew that.  Just how dumb do you think I am?
Anyway, it was good to know that I wouldn’t end up stuffed in the trunk of a car in the Group Health parking garage.
But I was sorry I didn't get a taco.

Scan results as soon as I get them, guys.

Lots o' love~AA

PS This was something like my 12th scan.  I am now on first name basis with my tech (cute little guy from Louisiana), know all about his girlfriend troubles and what not.  Being good buds with your scanning tech is possibly not the best sign.

Just got an email from my doc.  All is well, still NED.  That makes 22 months for me now, which in the world of my tumor type, is equivalent to maybe 5 years in normal stage 4 crc.  In fact, something like 80% of people with carcinosarcomas are dead within two years, so this is basically like winning the lottery.  I'm happy, but I'd be a hell of a lot happier if I could share my winnings with everyone here.  Better go tell my kids and husband...I told you guys first!

saussureainvolucrata
Posts: 52
Joined: May 2013

lol --- let's hear a loud "NED" soon!!!

tanstaafl's picture
tanstaafl
Posts: 1015
Joined: Oct 2010

funny one about the taco truck, you might ask if they offer fries ...

---------------------------------

My question is what are the best scan and detection strategies over the long term, given various likelihoods, cost pressures and guidelines.  

We don't like to put all our chips on one technology.  We mostly use frequent blood results with lots of biomarkers, typically monthly for maximum microscopic sensitivity right now, and stretch out the scans.  Doing the rounds for MRI in July, I noticed one hospital now offered a better/pricier diagnostic CT scan over the regular PET/CT package.  Originally, CT with the PET was mostly a low xray intensity overlay with a less fancy CT to locate the PET results.  Not sure whether their CT "extra" is more xray intensity and/or contrast with the less fancy CT (vs newest software and hardware). 

For scanning, we are rotating some, CT (mostly, on a new machine), MRI enhanced for peritoneum and liver scans, maybe the PET/diagnostic CT next year, trying to maximize each technology's capabilities and resolution.

 

janderson1964's picture
janderson1964
Posts: 1830
Joined: Oct 2011

Great story Anna. BTW I think waiting for the results are worse. Especially after the nurse takes your vitals and then leaves you alone in th exam room waiting for the doctor to make his grand entrance. At least that is how it works for me lately.

maglets's picture
maglets
Posts: 2441
Joined: Jun 2006

oh AA that is such a great story! you had me smiling....but then when I came back and read the addenda.....oh joySmile I am so so very happy for you.  Is it not a miracle?? good for you......well done girl

can you please hold my hand on Tuesday of next week?  scan for me and yes there is nothing I hate more!!!! As I look at my own behaviour over the last week I see creeping scanxiety....more and more grumpy irrational behaviour.  Everthing is a threat!!!! what do mean the washing machine is not working!!!1f@$# and on and on

I digress....hold my hand .....dancing around with your family ....that's what you are doing....I hope...

hug.......mags

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

I was a grumpy wreck myself this last week (probably not the best time to try and cut back on my pain pills, in retrospect).  In fact, I highly recommend the use of all available reality-blurring substances in the week prior to scanning, whatever your preference may be (personally I like my Ativan washed down with a really cold Martini*).

 

*KIDDING says Junkie Girl.

 

I'm putting you on my calendar for Tuesday.  Very good thoughts coming your way that day.

jen2012
Posts: 1255
Joined: Aug 2012

Right there with you Mags....hubby is having a procedure tues and my mom is also having surgery...but I'll also be thinking of you!

I just got a call back on my mammo...ugh...probably nothing but if anyone has an extra hand or prayers or positive thoughts...

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

way too much going on.  Many extra positive thoughts and (kind of heathenish) prayers coming your way.

PS I've had a couple of "call-backs" on mammos...never turned out to be anything, so I'm hoping it will be the same for you.

jen2012
Posts: 1255
Joined: Aug 2012

This is my second call back...was just hoping we'd get an "all is good" and not have to think of it again for a year!

Trubrit's picture
Trubrit
Posts: 1712
Joined: Jan 2013

…ok, so the scanning room is really in the bowels of this place,

Glad they took you through the bowels, I mean, very fitting considering your diagnosis. 

So happy to hear you are still NED.  Keep it up!

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

I am totally not above going for the cheap pun, but I have to admit that I didn't catch that one.  Something sub-conscious going on there I guess.  "Bowels" is actually kind of a creepy word.  Makes me think of dungeons and the like.

janderson1964's picture
janderson1964
Posts: 1830
Joined: Oct 2011

That is sooooooooo AWESOME. You deserve it. Go celebrate with your family.

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

and great news.loved your story, now when i walk to the basement of the hospital where i get my scan i will think of the hallways as a big colon...Godbless...johnnybegood

Cathleen Mary
Posts: 645
Joined: May 2011

 

I love good news!!!  So happy for you and for your family. Great story!

Cathleen Mary

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

I know you have your scan coming up soon too.  I will be thinking of you, and hoping for the great results you so deserve.

Big hugs coming your way, girl.

ETA  whhhyyyy does my comment end up in the wrong place half the time??  Anyway. thank you to Cathleen Mary as well!

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

If by "celebrate", you mean collapse in an anxiety-exhausted heap, and be asleep by 9:00, why, that's exactly what I did! Laughing

 

Sheesh, these comments are really out of order!  Oh well, you guys can get a little brain exercise figuring out what goes where.

Lovekitties's picture
Lovekitties
Posts: 2998
Joined: Jan 2010

Love it that you got such great results!

May the good news contniue for decades to come.

Hugs,

Marie who loves kitties

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

Decades...wow.

That is not something I would have ever dreamed possible a couple of years ago.

Now, maybe so.  At least I can certainly have hope!

And hugs back at you, dear lady.

Annabelle41415's picture
Annabelle41415
Posts: 4412
Joined: Feb 2009

That is wonderful news.  You and your family should celebrate big time.  Congratulations.

Kim

Chelsea71
Posts: 1170
Joined: Sep 2012

That's great, Ann.  Wonderful news.  You're family must be very relieved.  Happy for you guys.

 

Congratulations

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

It means a lot to me that you would take the time to comment.

I so wish that you still had your Steve.  Life is just random and unfair.

jen2012
Posts: 1255
Joined: Aug 2012

Great news AA! So very happy to log on and see your post!

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 475
Joined: May 2012

That is exactly where the PET scan is at my hospital (where I work) out the back door in the scanmobile. They come every Tuesday. I guess a lot cheaper to contract than have that big expensive machine.

Congrats on the great results. May you always remain NED! Hope you and family are celebrating!

Sandy:)

Happyhar
Posts: 49
Joined: Apr 2010

Good Ole Ned. Praise the Lord. Loved the Taco truck. I had a similiar trip thru the bowels of the hospital, across a parking lot in a drizzle,up a metal ramp into an 18 wheeler for a PT scan. Ah! Modern medicine.

Sundanceh's picture
Sundanceh
Posts: 4342
Joined: Jun 2009

See below...

 

Smile

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

how about 10,000? Laughing

Big hugs coming your way, bud.

traci43's picture
traci43
Posts: 448
Joined: Jul 2007

My HMO does the same thing, only their trailer looks more like a semi container with 2 pushouts.  I guess you're so radioactive they don't even want you in the building! Wink  The part I don't like is it's really difficult to get a copy of your scan.  I just had my scan done on Tuesday and I won't hear the results until next Thursday.  I hate waiting too.

Congrats on remaining NED!  Awesome news.

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

Isn't there any way they can speed it up?  They give me an info sheet after the scan that says the docs will have the results within 72 hours, and to call if you haven't heard back by then.  It's been a lot faster for me, usually I hear the same day, or no later than the next.  So clearly even with a sub-contractor it can be done.  When they make a cancer patient wait a week+ for results, they are really not looking out for our best interests.

tanstaafl's picture
tanstaafl
Posts: 1015
Joined: Oct 2010

In this globally networked day and age, 24-31 hours should be the normal limit for reports (next day by 5 pm).   After that, I cause trouble.

We always get a CD with the report.  What is annoying, is that some image integrated hospitals are starting to discontinue prints as standard and charge extra, legacy heirloom prices for the portraits, er, prints.  In our case, on top of a 30+% premium for the hospital name, over our usual hospital with a 128 slice CT.   

LindaK.
Posts: 361
Joined: Apr 2013

Great news to share! 

 

Linda

PatchAdams
Posts: 272
Joined: Nov 2011

My PET is done in a parking lot, too.  They put me in a room with  a lot of storage items and tell me to relax for an hour.  Dang cold in that semi, too. 

GREAT news, tho! Congrats!

Mags, I'll hold your hand!  My PET is coming up in October, too.  This will be 18 months since my liver resection and 4 years 10 1/2 months since my Stage III dx.  Anxiety is trying to creep up on me, too. 

I know several of our friends/ old friends are having PET or CT scans in October.  Many no longer post here or cannot post here. Wishing us all GREAT news! 

Patch

ams5796
Posts: 5
Joined: May 2010

Wonderful news! And, you write so well. I really enjoyed your story! But, now I want a taco!

hippiechicks's picture
hippiechicks
Posts: 378
Joined: Sep 2012

Very COOL!! Good news is wonderful to hear .. thanks for sharing!!

Congrats on your continued NED and hopes for many more years!!! WOW ... 22 months girlfriend!!! That is some kind of accomplishmet! Celebration in order for sure!Smile

 

Keep strong!  (virtual high 5!)

Gavin63
Posts: 98
Joined: Aug 2013

That's awesome news & eveyone in this forum would love to hear. Good luck to you on the path of NED forever :) 

Gavin

Kathleen808's picture
Kathleen808
Posts: 2319
Joined: Jan 2009

Yes, my friend, keep that NED rolling!   So glad to hear it!! 

 

Aloha,

Kathleen

maglets's picture
maglets
Posts: 2441
Joined: Jun 2006

gosh i hate to trouble you but can you rebook me for Wednesday for hand holding?  Not only do I have the wrong day mapped out for the scan.....aa I totally lost all my paperwork....my blood orders, my funded CEA request....the whole shooting match. I discovered this this morning.....of course this sent me into complete tizzy!!! I mean obssessing....looking everywhere!!!!! for those papers......gone.....

no no it's fine......there is no such thing as scaniety!!!!Embarassed oh yes there is.......thanks AA.....knew you would understand.....have you come down to earth yet...? oh so proud of you

mags

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

In a strange way, I'm kind of glad to hear that I'm not the only one can't keep things straight.  I'm constantly getting appointments wrong and losing stuff.  My charming husband pointed out to me last week that I'm "not as smart" as I used to be.

Gee thanks, sweetie.  It's amazing what multiple surgeries, chemos, and a ton of pain pills will do to a gal's mental acuity.

Anyway, you are rescheduled!  And I am confident that all will be well.

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

I'm keeping you and Dick in my thoughts, really hoping that the tumor testing comes up with some solid tx ideas for him.

marbleotis's picture
marbleotis
Posts: 527
Joined: Mar 2012

NED is GREAT!!!

And I totally understand scan-anxiety.  Had my scans last week, still NED too. I get most nervous when the machine says, "small breath, and hold it,,,,,,,, and breath".  I am afraid I will expolde.  What a mess that would make on a mulit-million dollar machine.

sky123
Posts: 13
Joined: Nov 2012

Hey, AA, it's me, skypup. What's good enough news to get me to log in? Your NED status! Big paws up to you!!!

annalexandria's picture
annalexandria
Posts: 2325
Joined: Oct 2011

So good to see you here!

CSN folks, sky123 is Skypup from The Colon Club, and a most excellent member of our exclusive gang.

I hope you stick around and visit for a while.  I know how it is, it's hard to find time to really take part in more than one forum, but it would be great to see more of you here.  You could add your doggy avatar, Skypup...that one's a cutie!  

smokeyjoe
Posts: 1428
Joined: Feb 2011

Great news AA....soooo happy for you!!!  

danker
Posts: 773
Joined: Apr 2012

Not only are you delightfully humorous, you are also NED.  That is the best news of all.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network