Sep 26, 2013 - 4:18 am
Hi, I haven't posted in a long time, I have been on vacation and busy with life. Going pretty good, I have been visiting friends all over and only got sick once with a virus. It was bad and left me in bed for a few weeks, but otherwise it was nice to live again. Leaving home allowed me to really get some distance from the cancer situation. I have dealt with it on many levels, but am having a hard time with the physical pain associated with a bilateral mastectomy with reconstruction still lingering.
I am lucky to have had a successful reconstuction and still feel pain, I want to take pain meds, narcotics, and my Dr is putting the foot down. Dr does not understand what kind of pain I have, and I try to explain that it is muscular, mostly in my back and the left shoulder, will go up into neck, etc... and Iapparently I do not seem authentic. At least the oncologist also observed that the reconstruction is often harder than the mastectomy, confirming my challenge. I have a general tightness in my chest that has gotten bad because I have been very emotional, putting alot of pressure on my lungs and all those muscles in there. I am finally getting over anemia, so the genral weakness that I have had for the past 2 years is dissipating.
Dr says I may have fibromayalgia, I do not agree at all, I am just trying to recover the best I can. Doing yoga and swimming and they make me even more sore. Any advice from my pink ladies? How long will I feel so uncomfortable? SHould I just suffer and deal with the discomfort and get off the pain meds? I am an emotional mess and starting to get upset with my Dr for not understanding that I am coping with these pain meds, and have been for over 2 years. Do they just expect that I stop cold turkey? Should I just do that and deal with my new life?
Confused, but doing much better than last year. I went home to see my family and they were all nice, busy living their lives. Mine has become so much different, but I am ok with that. I go to bed early now!