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Is 12 weeks too soon

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

I'm 12 weeks post-op, radical neph.  Procedure was laparoscopic, with largest of the incisions being about 4 inches.  I recovered without incident and am feeling good.  I'm going to Cedar Point this weekend.  For those of you who don't know, Cedar Point is the Roller Coaster capital, with the biggest, fastest coasters in the states, if not the world...I'm talking bad a**!!  I just wonder if 12 weeks is too soon to be riding coasters.  I'm going to call my doctor, of course, and I'm sure he'll advise against riding the big ones, but just wanted to see what you guys would advise.  Surely all my innards have been secured with scar tissue by now, don'tcha think?!

icemantoo's picture
icemantoo
Posts: 1528
Joined: Jan 2010

Sindy,

 

No.

 

 

Icemantoo

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Ice...could ya elaborate?  I mean, you're not usually a man of few words Wink.  No, it's not too soon or no, my innards aren't secured with scar tissue?  Would you be riding the coasters 12 weeks post-op?

garym's picture
garym
Posts: 1651
Joined: Nov 2009

the smaller ones and work your way up, my guess is you'll find out pretty quickly if you're ready or not.  I had a full lap as well and I'm pretty sure I could have done it without issue at 12 weeks, but we're all different.

Eskimo lily's picture
Eskimo lily
Posts: 43
Joined: Aug 2013

i know we are all different but our surgeon told us that even though the outside may look fine and look healed, it takes a full 6 months for everything on the inside to be fully healed too. Mom had a radical open nephrectomy and she has sutures on the inside that take the full 6 months to dissolve once things have healed properly.

obviously you can feel and see how its healing on the outside, but you can see and feel what is exactly going on inside...if that makes sense??

AprilandChuck's picture
AprilandChuck
Posts: 95
Joined: Feb 2013

You had a major organ removed your body is not done adjusting! Wether you realize it or not things are still shifting and finding their new permenant home..go have fun but please stay off hugh g force rides..such as rollar coasters and a few other things! Huggggsss

Gordon Charles's picture
Gordon Charles
Posts: 91
Joined: Jun 2012

The problem I see is that if you decide part way through a coaster ride that things aren't going well, how do you suddenly stop?  They like to make the first drop a doozie and if your insides say "UNCLE" you have to endure the whole rest of the ride.  The old saying: "You only live once" can be seen either as a call to adventure or a call for sensibility.  Have fun!

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

When I was in my prime, in perfect health, trampolining and competing for my University Judo team, you wouldn't have got me anywhere near the gentlest of coasters - guess I must be some kind of wimp!!

izzycohen
Posts: 64
Joined: Aug 2013

I'm 8 weeks post surgery today, 9/25, and I feel good enough to do Cedar Point.  Good luck.  Have fun.

GSRon's picture
GSRon
Posts: 1218
Joined: Jan 2013

Well I wish I waited longer for my first big bike ride. I now have a nice hernia from ripping things open. Ron

Darron's picture
Darron
Posts: 221
Joined: Jun 2013

I like the take no prisoners attitude, life is for the living; but in this case, I think you should wait until next season. If you have a problem, it could be a big problem very easily.

enjoy the park, but hold on the rides.

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hi Twinie, 

I know you love to 'grab life by the horns' which is the best way to live, but I think in this case you need to be cautious! You only have ONE real opportunity to allow your body to settle and heal properly, you have ENDLESS opportunities to ride the big roller coasters. 

It is great to hear you are making such a quick recovery Twinie! Whatever you decide I hope you have a great weekend:) 

 

Djinnie x

 

 

 

dhs1963's picture
dhs1963
Posts: 373
Joined: May 2012

Best case scenario is you are sore for a few days.  Worst case is things move around inside.  Those rollercoster put a lot of G's.  I went on a rollercoster 8 months out, a regretted it.  I used to love rollercosters....but I will never step on one again.

Fortunately, my daughter is now old enough to not need a parent on the rides.  But now, I need to pay for a friend to come.

 

I just can not imagine a good outcome.   (12 weeks out, I was feeling pretty good, and started coaching again.  I swear I tore a mucle, and have not been the same since).

 

 

foxhd's picture
foxhd
Posts: 1901
Joined: Oct 2011

to respond. Because I want you to go have FUN! But my physical therapist experience says NO! First if there is any weakness in soft tissue healing, it will be prone to hemmorrage from the G-force. Second, you have to have some degree of hematoma left in there. It will be contained and slowly resolving. To disrupt that process may lead to risk of the necrotic cells being distributed throughout you abdomen. How can that be good? Go to the park. But buy a beer and sit on a bench and enjoy the others riding the coaster. Maybe you will end up peeing your pants just like them anyhow. Now if that's not fun, then what is?

BDS's picture
BDS
Posts: 95
Joined: Aug 2012

 

Are you nuts! I had to wait a year until I could jump out of a perfectly good airplane. BDS

 

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Thanks all!  I read what each of you had to say and value all of your advice.  Knowing me tho, I was pretty sure I would throw caution to the wind and ride the coasters, regardless of what everyone said...cuz that's how I roll (I have a bit of rebel in me).  That was until I read what fox had to say.  He pretty much had my attention when he started throwing words around, like, prone to hemmorrage, hematoma and necrotic cells.  Sounds like you know what your'e talking about, fox, so thanks for chiming in. 

I called my doctor and was given the green light but I think I'll heed the warnings posted here and follow a bit more of fox's advice and have a beer instead.  I'll ride plenty but stay away from the biggest and baddest.  Cedar Point's HalloWeekends have begun and I hear it gets pretty scarry after dark, so I can't promise I won't pee my pant's.

Hope you all have a safe and happy weekend!

Sindy

Oh, and by the way, I was wrong...I'm 16 weeks p/o.  How time flies!!

NanoSecond's picture
NanoSecond
Posts: 527
Joined: Oct 2012

Gee Sindy,

If you want to get your adrenaline flowing just wait until it's time for your first set of CT scans. It's called scanxiety and you don't get to escape it.

It's just one of the many perks of club membership around here.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

RCC is its own little roller coaster id'n it?

GSRon's picture
GSRon
Posts: 1218
Joined: Jan 2013

Aw Neil... ya had to tell her..??  J/K.. yes that can be a bit of a tough time for some of us.. but again, with all you know, you should be OK...  However those follow ups can give a lot of relief when they come back all clear...

Be Well All..!

Ron

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Thanks for the heads up, Neil!  Fortunately, I haven't had to deal with that yet.  As far as I know, I won't be having a CT, just chest x-rays, in December.  Seems odd to me but that's what the doctor said...chest x-rays.  Not sure how soon before the appointment date scanxiety will set in but, I'd can think of so many other ways to get my adrenaline pumping...

GSRon's picture
GSRon
Posts: 1218
Joined: Jan 2013

Ah Twinie Gal.. someone will quickly correct me if I am wrong, but if you have CC RCC then an X ray is not the way to go... 

Be Well All..!

Ron

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

You got my attention, Ron!  What should I do?  My doctor is not an oncologist, rather a urologist.  Not just any urologist tho, he's the leading kidney transplant specialist in Oklahoma.  He is the one who confirmed my diagnosis and performed my rad neph.  And he is the one who will dictate what scans I get and when I get them.  I told him I'd like to be folowed by an oncologist and he said when he releases me from his care, 1 year post-op, he will refer me to one.  So, until then, I'm at the mercy of Dr Samara. 

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

"It's called scanxiety and you don't get to escape it."

Neil, I see people (particularly those who really have nothing to worry about) saying things like this this all the time.  I've often felt inclined to comment and haven't but you've expressed it so succinctly and unequivocally that I feel constrained to do so now. 

It's nonsense to say you're bound to feel anxious - it's a choice we each make for ourself.   On this particular forum, on kidney cancer, I don't think there can be much doubt that I have a lot more to worry about than anyone else.  However, I never have a moment's "scanxiety". 

I'm actually keen to have scans and thus to know what's going on - so that I can know what I'm going to have to square up to and figure out how best to handle it.  I've been having frequent scans of various types for two years now, most of them CT scans with full contrast.  The last two CT scans I've had were 11 weeks ago and 3 weeks ago and I'm just about to have another one.  As you know, I had an emergency procedure a couple of weeks ago to stent my biliary blockage and prevent my imminent death by bilirubin toxicity and liver failure.  This morning I was slotted in before the front of the list for an emergency Doppler scan for what everyone thought looked like a DVT (I'm glad to say that there's no sign of a clot, the probability being that new peritoneal mets are obstructing my lymphatic circulation - not that that's much of a matter for celebration but at least we don't have to get into an additional problem of clot removal to clear the decks before we can attempt anything else).

I don't suffer from fatigue at all, despite seldom getting much more than two hours sleep a night recently (due to pain) but I am in a fair amount of pain most of the time. However, I don't have an anxiety problem and I never lose sleep because I have a scan coming into view!  I'm not going to gain anything by worrying about what a scan will show and it's possible I'll actually worsen the outcome by indulging in futile negative thoughts - so I don't do so - anxiety isn't an ailment you're saddled with, it's a process which you do to yourself.

NanoSecond's picture
NanoSecond
Posts: 527
Joined: Oct 2012

What can I say Tex?  You are undoubtably one of the most remarkable individuals I have ever been inspired by.  I don't really understand how you do it - but do keep it up - for all of our sakes.

I really wish I could master your ability not become anxious about these things.  But, you see, rather ironically I just got back from my very first MRI of my brain.  And I would be outright lying if I claimed that I was not anxious about hearing what the results are going to be (sometime tomorrow).

However, like you, I refuse to let my fears or other petty concerns overwhelm my life.  Whenever I read your posts I get renewed energy and strengthened conviction to go forward fearlessly.

Thanks!

 

 

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

I hope your scan comes up perfect Neil.  Funnily enough, it was decided this morning that my upcoming scan will take in my brain also (and descend a bit lower too).  

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

and the answer...hell yes!  Too soon for coasters!  I rode two (not the biggest or the baddest) and I was done.   I might even go so far as to say it was too soon to walk around an amusement park for 13 hours.  I was so unbelievably sore...from head to toe.  I blamed my soreness on age till my 28 year old daughter called me the following day to say her every muscle hurt.  Guess age really is just a number...so much for my excuse, huh?!  At any rate, I had a great time and can't wait to go again when I can ride without worries.

mom2two
Posts: 48
Joined: Aug 2013

Is your profile pic of you or your 28 year old daughter? If it is you, Wow you look great! Laughing  Take care!

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Mom, you're very kind!  I actually have two 28 year olds (hence twinthings), but the profile pic is me, taken a few months ago.  I'll be 50 in 2014 and am looking forward to it!!  YOU JUST MADE MY DAY!

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