Sep 18, 2013 - 3:12 pm
Hello survivors, I recently had surgery (sept 4) a partial glossectomy (TORS) and a left neck dissection. My surgeon at Vanderbilt meticuously collected slides of tissue from either side of the tumor, below it and several other places and found no evidence of cancer in any margins any where else on the tongue. He removed the one tumor that had SCC in it and 15 others nodes from level 2,3,4,5 and none had any evidence of SCC. He is reviewing the path slides himself to determine what the plan of care is now. I have researched quite a bit and wonder what experiences some of you have had with IMRT. TOMO, Proton therapy? I am leaning toward the TOMO therapy, but unsure I understand the nuances. I have also decided I will refuse cistplatin, carboplatin etc as I have a compromised immune system and believe it would kill me. I am considering targetd therapy like Erbitux. Any positive experiences with this? I have worked in Hospice for many years and have witnessed a lot of suffering and outcomes. I am not afraid to die but do not wish to suffer for what ever time I have left. Quality of life is important to me. Thanks for your feedback and support in advance to a newbe.