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I'm going back in!

foxhd's picture
foxhd
Posts: 1871
Joined: Oct 2011

Results are in from latest scan. My remaining tumors have been shrinking from the IL-2! I will be readmitted on the 30th for round #3 of IL-2. Still some issues with bone mets but we will deal with that later if they remain. I look forward to the treatment. I don't look forward to miserable side effects.  I'll be out of circulation until at least thanksgiving. Who wants to come and visit? I'll need someone to rake leaves! I probably won't feel good again until the snow flies. My post Il-2 skin peeling and redness will be a hit on Halloween. Can't wait. I think that for the next week and a half I am giving myself a green light to eat, drink, and party too much. Just more fun and games. See, there is life with cancer. Sometimes we have to look a little harder.

 

There have been many new people on board. Sorry about that. But here is a brief synopsis of my past couple years.

I have been very strong and fit since always. March 2011 brought me a radical nephrectomy. By oct. 2011 I was loaded with mets. I began the clinical trial of MDX-1106 in dec. 2011. I responded beautifully and was nearly cured until a few new mets developed in june 2013. I then began with the IL-2 in july 2013. Results are above.

To everyone. Keep looking for the right treatment. Don't take the first suggestion from your Dr. It may limit future options. There is plenty of information out there now. Read and learn. Choose carefully. Good luck to everyone. We can do this. FLY. Fox loves you!

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

Shrinking! What a tremendous sound to that word!!!! You still make smiles Fox!

Couldn't be happier with the news. Sorry you have to return to the hell chamber though. Wouldn't it be nice if they could just put you out for the duration?

Anyway, we'll be with you vicariously and sending back to you all that good karma you so graciously give to us. You know we love you!

Gordon Charles's picture
Gordon Charles
Posts: 91
Joined: Jun 2012

A man who walks the talk... what can I say but you're an inspiration!  Be sure to write when you get work!!!

DMike's picture
DMike
Posts: 237
Joined: Nov 2011

Way to go Fox! I'm so happy for you. You'll do well on the next 2 cycles. You are obviously a great candidate for immunotherapy. 

I'll be pulling for you.

--David

Alexandra's picture
Alexandra
Posts: 1198
Joined: Jul 2012

There is no such thing as "party too much". Go nuts! I'm not good at raking leaves, but if you need an experienced leaf blower, PM me. Wink

Lov ya!

 

Baaa-bs's picture
Baaa-bs
Posts: 50
Joined: Jun 2013

Looks like you've hit on the right drug for you. Shrinkage!!!!! Awesome. Good luck to you. Big hugs and prayers to help with the shakes.

rainsandpours's picture
rainsandpours
Posts: 92
Joined: Apr 2013

Proud of you Fox! You've got a strong constitution:)

 

Will you start a new "Live from the Cuckoo's nest" thread while you're in there?  I need something to motivate me while I'm in the hospital too.

 

Best of luck to you, and best wishes xoxo

angec's picture
angec
Posts: 621
Joined: Mar 2012

FOX!  This is AWESOME news! I am so glad that it seems to be helping!  Party all the way through and don't look back.  It is a pity the stuff doesn't work on bone mets but I thought you already had radiation on them.  Did it not work? Sorry for the memory not working.  In any case, it is good news and i hope this puts this C word on the back burner one day soon!  Love ya!

AprilandChuck's picture
AprilandChuck
Posts: 95
Joined: Feb 2013

So glad to read the news! Go get them Fox you got this! Shrinking is an awesome report! So excited for you! Lots of huggss and well wishes as you step back into side affect hell..but its going to be so worth it!

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

Go Get em Tiger!  Bring back some great news!  God knows we all need it!

Eims's picture
Eims
Posts: 409
Joined: Feb 2013

fox you are the ultimate warrior....go get em xxx

foxhd's picture
foxhd
Posts: 1871
Joined: Oct 2011

But not to seem invincible, I will admit that I am scared. IL-2 is hard. Passing away is not in my plan. But I do hate thinking about how sick I will become with IL-2. But you know what? Bring it on. Ask Tex if he would trade places with me. We NEED to fight because only the accumulation of data will find the solution. I am amazed at the amount of people who won't attempt a clinical trial. Try that first. Then you are part of the solution. Not a byproduct. I'll tell you that trials are available. Search them out. Accept approved drugs only when necesary. They will always be there but so far they haven't become the cure.

donna_lee's picture
donna_lee
Posts: 392
Joined: Feb 2009

All my hugs sent cross country.  Let's hope #3 series meets the challenge of the cancer cells and we can lift your arm as the winner of that round.

No Harley riding on US 101 this weekend...it's raining here in southern Oregon.  

Good Luck.

Donna

TillieSOK's picture
TillieSOK
Posts: 232
Joined: Jul 2013

Fox, you ARE the warrior!  And now that you know what to expect, it won't be so bad. (Yeah, listen to me...I've never gone through it.  Easy for me to say, huh?)  You have done it before, and while it wasn't fun...it sure as hell wasn't fatal.  You are a hero in my eyes and I say a prayer for you every day.  You are the man with the machete, cutting through the jungle, in order that the rest of us will have a clearer path to travel.  Hugs!

NanaLou
Posts: 67
Joined: Oct 2011

I am so glad to hear this news. I know you are dreading it. But it doesn't last that long. You just got to make it through it. When I went in I would be focusing on the things I would be doing a week out of the hospital. That is about the time I started to feel normal again. If you keep this up You will get to go back a thrid time like me!! It is rough stuff. But I'd do it again in a heartbeat. Keep it up. Prayers headed your way.    

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Nancy, no-one could have failed to be impressed with the way you handled IL2 and to be utterly delighted with how it's treated you - particularly with your having, like me, a very unfavourable high sarcomatoid component. 

Likewise, we were knocked out by the way John took it on (even allowing for the inestimable asset of having the lovely Alice at his side).

However, true to what we've come to expect, what a display of courage by Fox!!!  This is a strong man who says he was "broken" by his earlier experience on IL2 and yet he's got the grit to go back for more! He's a tough guy and still he's not shy of saying he's scared!  No wonder we're the crew who are changing the numbers.

As Fox says, we need folks to commit themselves to trials (when appropriate - so far all the adjuvant trials looking at preventing recurrence have been an almost complete waste, other than that if they hadn't been tried we wouldn't have known!!) because it's a major source of discovery and progress, albeit far, far too slow.  I'm working on trying to get back to a status that would enable me to get into a trial, should there ever be one that accepts a heavily metastatic sarcomatoid chromophobe case who's now had to be taken out of a first line TKI treatment.

Here's to Fox getting a total response to HD IL2 - if anyone ever earnt the right to it, it must surely be him.

foxhd's picture
foxhd
Posts: 1871
Joined: Oct 2011

Nana, this will be my 3rd week of IL-2. A week off, then #4. I'm amazed at how you could recover in a week. I don't think I felt like myself until 6-8 weeks after discharge. So weak. Mentally drained. I am fine now but I wondered if I would make a comeback. I began to feel like our old friend Paula who admitted she just couldn't do it anymore. I  relied on my comprehension of the process and the fact that I believe that I can recover from anything if it doesn't kill me first. And I'll admit that at times I worried it might kill me. What is most amazing to me is that I could only handle 6 doses the first time as I was on the verge of insanity and have never been that sick before. (give me a nephrectomy any day). The second round I was hanging in until my physiology dictated the end. I expect the liver and kidney complications will determine the number of infusions this time also. There will be no mental or emotional issues. Now that I know what I'm in for. The biggest worry I had the second time was when I could no longer urinate. Dialysis is not my definition of fun.

Courage? I think not. I have been given the 2 biggest opportunites at curing kidney cancer. MDX-1106 and IL-2. I am incredibly fortunate. I will not squander the chances I've been given. What a shame that would be to me, my family at home, and here. Desparate may be a more fitting description of me. I want to live. I've realized that the only short term goals I have are doing well with my treatments. I am thinking long term goals. 5 year plan at least to finish up my projects. I have no plan B in the works. If the IL-2 is a failure, then new plans will be made. All my eggs in one basket? So., I'm committed and going for it. No other thoughts in the way.

Adjuvant trials. I guess there are some who have had several years of benefits. But nothing curative. Having been offered a votrient trial in the beginning just didn't sit well with me.  But trials are the basis of research. I have always been very pro-trial. I encourage that anyone offered a trial choose carefully. It may mean changing doctors and clinics. Not everything is offered everywhere. We enter trials to contribute to science,research, and recovery. To find the cure. Do what is right for yourself and family first. Find a way to stay alive. Let science learn from that.

. It bothers me when new people come here in a panic. Then after a few posts we never hear from them again. I don't know if that reflects their character or not. I wish they would hang around for a while. We all share in the joy or misery experienced. They look for information and compassion then drop us like a blind date gone wrong. We have made strong friendships here. Friendships that would not have happened if we were next door neighbors. Sometimes it takes a while. I know that I am now slower at welcoming new people. Sorry. I'm hoping new friendships become self generating.

Tex, I'll keep on moving forward. I am doing well despite mets that are getting tougher. But I'm clear cell. Not sarcomatoid or chromophobe. I do have a greater chance for response. (there is a survivors guilt there too.) So I entirely commit to doing well. Just as I expect everyone on this board to do. I have no more right to good health than you or anyone else. No fighter has ever won by taking a dive. I'll follow your lead. In the meantime I have this week to enjoy living. I've got plans for golf, motorcycling, beer and pizza. My granddaughters say, "Poppy, you are squeezing me too hard!" Maybe someday they will get it.

 

 

DMike's picture
DMike
Posts: 237
Joined: Nov 2011

I am a big believer in trials. They are our way forward, no doubt. BUT I have been told numerous times by my insurance company that they will not cover trials. Now, how does someone who is not independently wealthy get involved in trials without insurance?

I know if you can find a trial at NIH, they cover everything, but they are an exception. Living in Mississippi like I do, I'll have to travel to participate in any trial. I'm not one to give in to many things but this is one time I'm close to saying enough. I made myself a promise when this all started 2 years ago that I would not leave my wife bankrupt. I enjoy life and want to keep on living but I will keep that promise.

I had to go out of network (insurance) for IL2 treatment. Even though we had the treatment reclassified as in-network, just about every charge that came through was billed at the out-of-network rate and we had to appeal all of them. 5 months after treatment we are still dealing with incorrect charges. This takes a toll mentally and emotionally. Money isn't everything, I totally get that, but it takes money to exist in this world.

I don't mean for this to sound negative or like an attack on trials, it's just another viewpoint. I encourage everyone to participate in trials. I still keep up with what's out there. I wish I could participate.

Fox, I hope I didn't rain on your parade. That's the last thing I would want to do. I'm so very happy you are getting another round of IL2. You'll do well. Nancy is showing you the way forward.

By the way, I'm back putting in the miles on my bike and enjoying life. My next scan is on Thursday. I'll move forward from there!

David

 

 

 

srbelle1
Posts: 123
Joined: Jul 2013

I applaud your grit; I think it a bit harsh to judge those who for one or another reason, choose not to do trials.

i understand that progress on treatments is made through these trials yet not everyome will choose participation. This does not mean that they are either selfish or lack courage.

my husband is not at this point but he certainly could be facing this choice; as a breast cancer patient 22 years ago, my gyn referred me to a private oncologist so that I would not be steered into any trials. Thankfully, in my case, this was never an issue and I am a long-time survivor (breast cancer never gets cured).

i needed to get my 2cents in and I think this is such an excellent information resource.

wishing you the best!! Sarah

foxhd's picture
foxhd
Posts: 1871
Joined: Oct 2011

srbelle1, I've made no commentary about people enrolling in trials or not. Specifically, I said, "Do whats right for yourself." There are numerous variables affecting ones treatment. There is no judgement what so ever. Do what is right  for you. Todays kidney trial drugs include the anti-PD1. It has been the most effective drug to fight kidney cancer to date. Many more indications are being found. Including, melanoma,colon, prostate cancer and more. This category of drugs wasn't available 22 years ago. There is no comparison. Every news article re: new cancer treatments includes the anti-PD1 immunotherapy drug. It will cure many people. It is nearly side effect free. Thank you for the best wishes, Sarah.

David, maybe living in southern new england affords greater opportuniy for clinical trials. The large drug companies like Bristol meyer squib fund the studies. Not personnal health insurance. Charges are only for things like office visits,some blood work, etc. Most insurance doesn't cover clinical trials anyway because the drugs used are not approved by the FDA. Where I live, I can be in Boston or New York in 2 hours. Dana Farber, Sloan Kettering offer trials. I am at Yale New Haven where the MDX-1106 was offered. I don't know what is available in Ole Miss.

srbelle1
Posts: 123
Joined: Jul 2013

my apologies for misunderstanding; 22 years ago, the experimental treatment for aggressive breast cancer was stem cell transplant. I had 3 friends who underwent this, at their expense since insurance wouldn't cover "experimental". 

There was also a lot of mixing and matching different chemos. As I mentioned, I bucked medical advice and went with no chemo (cancer was not in the nodes) so trials would have never been offered to me.

it is too soon to know what and where my husband's kidney cancer will go and what treatments he will be offered. For now, after nephrectomy, lumbar surgery and cyberknife radiation will be it with frequent scans.

again, my apologies for misunderstanding and my gratitude for sharing your treatments. Sarah

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

They really did break the mould when it came to you Fox, you are one of life's trail blazers. I can only imagine how tough this is going to be on you, but you are made of strong stuff! We will all be keeping you in our prayers. 

 

Djinnie xx

NanaLou
Posts: 67
Joined: Oct 2011

Just to be Clear. I didn't fully recover after a week. I started to feel myself. Meaning my mind wasn't scrambled. I was still very tired and not able to get up and do much of anything. I was able to get up and get my girl ready for school and on the school bus. Then come in the house and take a nap. I could not stand up for more than 15 or 20 mins without my hands swelling. The first few days home I did nothing but sleep. I think the recovery was easier the second and third time around. Because I knew what to expect. I can't say which treatment was the hardest. Each had it's own problems. You did it once you got it this time. Best wishes and prayers headed your way!

Nancy    

foxhd's picture
foxhd
Posts: 1871
Joined: Oct 2011

Sarah, you are right. I don't think I would be excited about stem cell transplants. Drugs were designed to kill cancer by what is essentially poison or limiting capilllary growth. The concept of using our own immune system is more recent. Although  mega doses still require a watchful eye. I could not have imagined just how sick the IL-2 could make me. Fortunately it is temporary.

Djinnie, I'm no trailblazer either. Opportunities have been presented to me and I am going with them. I'm lucky to be in the right place. The biggest message here is that it took several consults before I found the right dr. and clinic to take care of me. I've realized that this search for the right care is like buying a car. No dealership wants to send you to another dealsership. They want you to buy their car. Even if what you really want or need is just down the street. Seek and choose carefully.

Nana, I guess the IL-2 treatments can be so variable to ones tolerance. I'm glad your recovery got easier. Mine was defintely harder. My Dr. tells me that she expects it to be even more difficult this time in. I met a guy who just finished his second round of IL-2 and he was already going to the gym within a week. I get skin peeling in sheets. It gets very tender and raw. He had a little dusting of dry skin. I'm hoping my response reflects the effectiveness of the treatment. In any event, BRING IT ON!

garym's picture
garym
Posts: 1651
Joined: Nov 2009

If its hard on you it has to be hard on the mets, I can see them peeling away layer by layer and they don't like pizza and beer so no recuperation for them afterwards.  YOU ARE GOING TO ROCK!!!

GSRon's picture
GSRon
Posts: 1167
Joined: Jan 2013

Fox, you are one tuff Hombre..!   And glad to hear all that suffering is paying off..!!   Just think of the celebration you will have on Turkey day this year..!!  Go man Go..!!  

Ron 

angec's picture
angec
Posts: 621
Joined: Mar 2012

Fox, after reading you comments about the effects being different for everyone, that is understandable since we are all individuals. But, I was wondering if they use the same amount for everyone or do they give higher doses for some?  Like when our friend Paula went in for her anti pd-1l, or whatever it was. She had a very high dose and it gave her alot of side affects. I know her treatment was different than yours, but you essentially did fine with your treatment, and only quit when it stopped working.  Does everyone get the same amount of IL-2?

 

In any case Fox, I hope the time goes fast and the doc is wrong! I hope you do not have it worse this time!  I wonder why she said that?  Maybe it will be just the opposite and you will be on your toes sooner! That is my wish for you!  Sending lots of love and good thoughts!

foxhd's picture
foxhd
Posts: 1871
Joined: Oct 2011

Ange

 

Posts: 657
Joined: Jul 2012

I am so glad that you are back Fox and you got a free chemical peel too. Rest up.

Here's what I found about the IL-2 dosage. It also has a built-in calculator.

http://reference.medscape.com/drug/interleukin-2-proleukin-aldesleukin-342203

Metastatic Renal Cell Carcinoma, Metastatic Melanoma

600,000 International Units/kg (0.037 mg/kg) IV over 15 minutes q 8hr x maximum 14 doses, THEN  9 days of rest, then a maximum of 14 more doses

Retreatment: evaluate after 4 weeks, advisable only if tumor shrinkage & no retreatment contraindications

 

, Here is a repost from Alexandra.

Limelife50's picture
Limelife50
Posts: 409
Joined: Nov 2011

Enjoy your ride and good luck hope you are up to toughing out yet another round.

angec's picture
angec
Posts: 621
Joined: Mar 2012

Thanks Fox! It sounds like an awful lot! Wow! No wonder so many reactions!  Overload, but well worth it!  I feel so sory for Alex too. I read she has recently had a recurrence! It stinks!  I hope she gets the treatment she needs sooner than later!  You all are an inspiration to me! I have grown immensely in many ways, just from reading your posts.  Everyone take care and keep living!

 

Todd.... have you seen the book called "Saving Normal"?  It is interesting...  All my best!

faithlou's picture
faithlou
Posts: 38
Joined: Jan 2013

Fox,

Glad to hear that you're able to move forward with IL-2.  Tip: lotion, lotion, lotion and more lotion.  Start lotioning before, during and after treatment.  Though difficult treatment, this is the best shot next to trials that some of us have.  So, you go guy.  You do it all!  And thanks for sharing your experiences.  I have moved on to Votrient with mid day nap side effects. Laughing  Doing well so far.  MRI Oct 8th.  You know, we are fighting for survival here.  We have no cure for this yet.  With RCC stage 4 and mets, I am to the point that I will try any drug or trial, with in quality of life reasoning, that has a chance of keeping me going.  I am happy to have that opportunity.  Actively waiting on the cure!  I worked 6 hours yesterday.  I am taking my grandson to the fall festival tomorrow. yeahhh!  I am not finished and will not go gently into that good night.   I'm just say'in.

CoolCoolCool

Lou

todd121
Posts: 515
Joined: Dec 2012

You guilted me into posting when I wasn't going to...Lol. Came here in a panic, and then haven't been around for awhile.

I hope that you continue to get benefit from the IL2. I'm rooting for you Fox.

On my side, I'm still on the Everolimus adjuvant therapy trial. My side effects were pretty mild. The first 3-4 months some fatigue and nausea and very minor mouth sores, which cleared up. It all cleared up for what seemed like 2-3 months. I've been on it for nearly 9 months now. My scans have been clean so far NED. I'm due new scans October 16th. My blood tests have been good. Last test my creatinine was up to 1.83 (normally in the 1.6 range), but my doctor seemed to think I just hadn't drank enough water that morning.

The fatigue and nausea have returned the past 2 weeks and I"ve been having some annoying twitching in a muscle in my neck and also some really bad anxiety and depression at times. The anxiety has increased to the level of panic attacks today and last Friday. The anxiety and depression may have nothing to do with the drug.

I pop in once in awhile and read what's going on with you guys, but I rarely post. I'm hoping I stay NED, but afraid I won't. My stage 3a tumor is still worrying me 11 months afterwards. I'm afraid I'm not doing all I can lifestyle-wise to stay healthy. Still eating pretty much what I want and not exercising, working too much, and having occasionally a little too much to drink. I'm too stubborn to change my life I guess. A bit worried if it comes back, I'm going to blame myself.

This is where I am.

I hope you sail through this round and it does you a world of good. I wish everyone here the best. This cancer SUCKS. We all deserve to be healthy.

Best wishes,

Todd

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Todd, good to hear from you and to know that your scans continue to show you NED. 

I take it that it's still just educated guesswork as to which trial arm you're in and you don't actually know you're on the drug?  If you are on Afinitor, it's good to know the side-effects are so bearable.

Now for the pep talk! 

"Still eating pretty much what I want and not exercising, working too much, and having occasionally a little too much to drink. I'm too stubborn to change my life I guess. A bit worried if it comes back, I'm going to blame myself."  

If it were to come back, perhaps you should blame yourself? Living a healthy lifestyle is the one contribution within your power to make in the team that's trying to keep you healthy.

What's more, you're still having anxiety and panic and depression at times!  Please remember that until depression is at severe levels, anti-depressant drugs are actually less effective than exercise.  What's more, the drugs have side-effects and exercise doesn't!  Bottom line - take better care of yourself!                        

NanoSecond's picture
NanoSecond
Posts: 515
Joined: Oct 2012

Todd,

I don't want to pour salt on a wound, but please explain to me how else you think it should work?  You say, "we all deserve to be healthy", a sentiment we all share around here.  But how can we be healthy if we don't eat healthy?  Do you really think that just taking an unproven drug (for adjuvent therapy) can restore one's health?  How, exactly, does that work?

Tex rightly suggests some more exercise. But I believe that if improper nutrition is dragging your body (and mind) down more exercise (alone) will be mostly futile.  I would rather put the primary emphasis on getting your diet right to begin with.  I am sure that advice is not a surprise coming from me.

Fatigue is adding to your depression (no matter what the actual source might be).  But you can address fatigue by diet and exercise.

If you want to feel (and really be) healthy you do have to do more than remaining complacent in your old habits.  If the fear of graduating to stage IV does not provide adequate motivation - then why are you still in that clinical trial?  Why did you even start on it in the first place?

srbelle1
Posts: 123
Joined: Jul 2013

Todd:

i am reasonably new to this board and am here because my husband has kidney cancer.

if it does not offend you, may I ask your age? The more I learn about this disease, the more I realize how past habits impact and have made some changes in my own lifestyle.

drinking too much after having a stage 3 diagnosis sounds odd to me; without really dating myself, I will say that we are part of the "me" generation, if it feels good, do it. You probably get my drift. 

My husband has struggles with cigarettes and I finally blew up, let all of his family and friends know so that he understood how outraged we are in fighting for him while he selfishly smoked, KNOWING what effect smoking has on kidney cancer.

i mean you no disrespect but why would you drink too much? 

Sarah

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Please don't run away and hide now Todd - it's good to have you looking in again.  I stand by what I said, but I didn't envisage you getting such an instant drubbing from all quarters Laughing

I hope you'll continue to contribute here but I do also sincerely hope that you'll give due thought to the messages you're getting and that, even allowing for our hobby-horses, you'll believe we genuinely have your best interests at heart.

angec's picture
angec
Posts: 621
Joined: Mar 2012

I have to laugh!  Poor old Todd!  We love you so much that we are pointing our fingers at you and scolding you to get you in shape!  I cracked up at seeing Trevor's last post above! He is right though, who would have thought that we would all get on the band wagon and get at ya?  HA!

In all seriousness, I hope all things turn out ok. It is normal to get depressed and worried over your health. Over drinking now and then, i guess it can easily happen. But now that you know you can help yourself a little more, I hope you decide to take to heart what both Neil and Trevor have written!  They don't only suggest a better lifestyle, they surely live by it!  You don't really want to blame yourself if you get worse. You owe it to yourself to treat your body better! ;)

Keep coming back to the boards Todd, especially when you are down and depressed! I am sure Gary's jokes will give you a good laugh.  Did you read the one with the little leaguers? It had me rolling!  Check it out!

NanoSecond's picture
NanoSecond
Posts: 515
Joined: Oct 2012

Todd,

I solidly endorse Tex's last sentance.  We all only have your best interests at heart.  It certainly is not anyone's intention to add more stress or cause for further depression.

However, I was must confess to reading between your lines. I felt that you might just be sharing your latest info so that many of us might offer some additional moral support.  I know you intellectually understand the importance of a healthy diet and exercise (as you said as much).  The only question is how best to do it.

Regardless, please accept my apology if my post offended you.  I actually can talk about lots of other things that have nothing to do with diet or nutrition.  Just don't get me started about flying.  It's my particular passion (just as motor-sickles are to Ron and Fox, amongst others).  But since starting on Sutent I am now grounded by the FAA - so that is the one topic that depresses me the most.

todd121
Posts: 515
Joined: Dec 2012

I just got around to coming back and reading again. Wasn't offended, because I hadn't seen the replies until later. Lol. But still not offended.

Someone asked my age. I'm 51.

As far as drinking goes, it's really a pretty occasional thing.

I know what to do on diet and exercise, and I know it's important, but for whatever reason having trouble doing it regularly. I do it in fits and starts. I get busy at work, forget to shop, or have something going on, run out of food at home, or find myself off somewhere with friends or family and end up eating somewhere the choices aren't the best. It's all excuses, but it's what is happening.

I live alone. I find it a real challenge shopping and cooking for one person.

It's absolutely true. If having the cancer possibly come back isn't motivation enough to quit, for example, eating sugar, what would be? I can't answer that. I think eating has been how I've been managing my stress for awhile.

Thanks to Texas for the advice on the anti-depressants. My onc sent me to see a psychiatrist today about the anxiety, and sure enough he wants to put me on an anti-depressant. I haven't started it yet. He did also advise me to exercise.

Thanks for the advice everyone. I know you have my best interest in mind. I'm already pretty hard on myself, but I'm just as stubborn as I can be in some areas and this has been a life-long problem for me.

Todd

 

Limelife50's picture
Limelife50
Posts: 409
Joined: Nov 2011

I buy those 2 pound bags of ready to eat lettuce from Sams Club i also get me eggs ham and turkey and other veggies and then i put it all together to make salads to eat for my lunch during the week.I also bike any where from 50 to 100 miles a week and i still have all of my hair and very little if any grey hair and i am 52  years of age and sorry but  considering the three cancer surgeries i have endured i still look better than most guys my age.Now for the dark side i also just love that Miller Lite beer for which i usually drink maybe anywhere from a 12 pack to at times a case a week and what can i say i am pretty Damm Happy.I think sometimes its all about perspective and how we veiw ourselfs.Hey Todd just a quick question have you ever seen the movie called Shawshank Redemption if so their is a quote Morgan Freeman makes during that movie,well i will let you figure that out.

todd121
Posts: 515
Joined: Dec 2012

I did see the movie. Can't remember the quote.

With regards to hair...mine's been gone since I was in my early 20's. I saved a heck of a lot of money on shampoo and haircuts. :)

I have thought about getting a bike. I think that needs to happen soon. I live in a beautiful hilly area and there's a nice place to bike nearby.

To everybody else that were giving me heck, I've gone on 3 walks in the last 2 days and I joined the gym right next to my office today so it's convenient to stop in for an hour after work a few days a week. My dog really liked the walks. Can exercise work almost immediately? Because I feel better already. We've had gorgeous weather here.

I decided it was that or anti-depressants. The box of anti-depressants is sitting on my coffee table to remind me to decide what I want to do: take pills, or eat well and exercise.

Todd

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Sure can, Todd.  Good for you and good for your dog too! Congratulations on making such a fine start. Stick at it and it becomes its own reward.

Alexandra's picture
Alexandra
Posts: 1198
Joined: Jul 2012

Limelife, help! The only quote I remember: "Andy Dufresne, who crawled through a river of $hit and came out clean on the other side".

Though most of the time I feel like Andy still on this side, I don't know what it has to do with the diet...

Todd, the guilt trip your friends are laying on you fades in comparison with what my mom puts me through every morning on the phone. She is 68 and a health nut. Stay strong! If a cookie makes you happy - have a cookie. Life is about living, not over-analyzing your every move to delay recurrence.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

"Its time to get busy livin' or get busy dyin'"

One of my all time favorites too!!!

foxhd's picture
foxhd
Posts: 1871
Joined: Oct 2011

I'm re-entering the world of IL-2 this morning. Let's see, I forgot what I like best. Is it the psychosis? diarrhea? vomiting? No. Maybe the sleep deprevation or loss of ability to urinate? Or is it going all week without eating? Just can't choose my favorite. This time I'm bringing my own soft toilet paper and bottled water. Someone mentioned depends for those unexpected departures. I am going to consider this. Now I remember. It is the water weight,skin redness and massive peeling that I miss most. Oh well. I really won't complain. I'm getting chances for survival that so many others never get. So, au revoir my friends. I'm not likely to post for awhile. I'm going to do the best that I can. Total committment. I'll provide an update when I feel able. To everyone, Please do well. Focus on the positive. We can do this. FLY. Fox.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

You are the very definition of "Get busy linin'", sending as much positive energy your way as I can muster!!!  Pizza and beer on me as soon as you're ready.  ROCK ON!!!

GSRon's picture
GSRon
Posts: 1167
Joined: Jan 2013

Go Fox Man...!  Hang in there... dream something nice this time...  And kick Cancer butt..!

Ron

srbelle1
Posts: 123
Joined: Jul 2013

sending you the best wishes and perhaps, your expectations of the bad effects will lessen their impact.

post when you can..., positive energy from CA

angec's picture
angec
Posts: 621
Joined: Mar 2012

Fox, sorry for all that you will suffer! It is brutal!  It is tough!  It is not fair to have to endure all of this! Cancer stinks!  But I know you are tough and I know you are keeping the cure in front of you at the end of the line! Do what you can and stop when enough is enough! I am praying it is not as rough as it can be, and you get a break this time!  But so glad that your mets are shrinking and the treatment seems to be working!  You have been given another opportunity to kick this thing to the curb!  Here is praying they find a real cure for cancer, one that is a piece of cake, not more torment!  Will be praying for you and thinking of you daily!  Love you Fox!  And, in your honor, I will have my husband play some guitar while my brother will do two miles on his bike, sipping bear and eating pizza! ;)

DMike's picture
DMike
Posts: 237
Joined: Nov 2011

Good luck Fox!

faithlou's picture
faithlou
Posts: 38
Joined: Jan 2013

The best for me was the synchronized vomiting and diarrhea.  Tongue Out  Wet ones is a good item to take with you.  Best of luck! 

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