Sep 18, 2013 - 9:33 am
If any of you might remember 6 mo ago I had great results from my PET after starting Erbitux and resuming Irinotecan. All but one lesion showed no activity and that one was smaller and less active. After 3 more mo of the same weekly treatments I got the results my last week scan yesterday. Many new and reactivated lesions in the liver, paraaortic lymph node, new lymph node near the pancreas, new numerous spots in the mid peritoneum and omentum fat. Needless to say, not very good news.
My onc said there is a new test he just found out about and I will be the 1st he has ordered it for. It uses original biopsy tissue to assay for 200 different enzymes, receptor sites, proteins, etc to determine if a some of those sites will be sensitive to certain drugs and therapies. A week or ten days to get results, then he will check to see if I can fit into any clinical trials here in Fort Worth or over in Dallas where several new trials are being done.
This is my 5 yr anniversary since diagnosis of stage IVb and I'm no quiter. Still no pain, never any serious ill feelings from the Folfiri, Folfox, or Erbitux regemins that total over 112 sessions of infusions. I've always held on to hope, prayer, faith, and the will to survive, but at the same time I know that cancer kills. I'm ready for whatever comes next.
Please don't say you're sorry about the bad news. I've already survived much longer than expectations and more chemos than my onc has given to any one else. I just wanted to pass on this new test he is talking about and get responses from anyone else who has heard of it or had it done.