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Got into my room (Update spoke with surgeon)

herdizziness's picture
herdizziness
Posts: 3389
Joined: Apr 2010

A couple of hours ago, they came took blood pressure, temp and left.  Have'nt seen anyone since.

 Doing great when first woke up, was in great pain as the epidural wasn't in place they were sticking all kinds pain killers in IV. The anesthesiologist showed up and moved it annd INSTANT pain relief!!!  But fell back to sleep with all the added pain killers hitting my system started working so spent a couple extra more hours in recovery.  Feeling great like normal with no pain!

Did non-step flatuance  when I sat on toilet seat, was worried so that test to leave the hospital is already done.

thank you,

Winter Marie

UPDATE: Spoke with the surgeon today who by the  way was shocked that I greeted him from down the hall as he started to enter my room, as I had been walking.  He was "You look good, you look really really good", well heck ya, you cut that tumor that was hurting me out, of course I'm doing good :).  I asked him about the tumor, he called it a "large mass" and and he said that it wanted to come out of the colon even without surgery it was coming out of the confines of  the colon.  I now feel VINDICATED in insisting on the surgery :)!

Thanks all for the encouragement s!

Winter Marie 

Dyanclark's picture
Dyanclark
Posts: 248
Joined: Apr 2012

Sounds like you are doing pretty good.  Looks like food will move normal thru digestive track so maybe tomorrow you can get some gourmet jello.  Nice to hear from you.

 Hugs from George & Dyan

 

 

Trubrit's picture
Trubrit
Posts: 1334
Joined: Jan 2013

How wondeful to hear from you so quickly after your surgery.  It sounds like you are doing great considering what you are going through. 

Isn't it wild that farting becomes so important.  I walked and walked after my colon resection trying to come up with one. They wouildn't let me eat until I had. 

I pray you will continue to recover well. 

I am so happy to have heard from you.

Momof2plusteentwins
Posts: 439
Joined: May 2012

So glad you got surgery after all you went through. Isn't it funny that us cancer folks love to hear the word surgery. Hope your recovery is easy on you.
Sandy

lp1964's picture
lp1964
Posts: 839
Joined: Jun 2013

I wish you a speedy recovery and long term benefits from the surgery. 

Laz

geotina's picture
geotina
Posts: 2047
Joined: Oct 2009

I am so happy you got your surgery.  Sounds like it went well so rest up and get your strength back.  

Love and Hugs - Tina

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

get some rest and try not to be the hero yet(you alredy are one) thanks for the update...Godbless...johnnybegood

LivinginNH's picture
LivinginNH
Posts: 1271
Joined: Apr 2010

 

Well now, what wonderful words to hear from you this morning - "NO PAIN!"   Smiles all around today!  :)

Annabelle41415's picture
Annabelle41415
Posts: 4207
Joined: Feb 2009

Sounds like everything went well.  Glad your pain is relieved.  Hope your recovery goes well.

Kim

Lovekitties's picture
Lovekitties
Posts: 2898
Joined: Jan 2010

So very glad to hear from you so quickly after surgery.  Sounds like you are doing very well.

Hope that you will continue to be pain free and have speedy recovery.

Hugs,

Marie who loves kitties

danker
Posts: 730
Joined: Apr 2012

Me too!

annalexandria's picture
annalexandria
Posts: 2184
Joined: Oct 2011

I'll bet you shocked the surgeon!

I'm so glad that you pushed and got this surgery done.  It's a good reminder that we have to advocate for ourselves sometimes.

Keep us updated!

Hugs~AA

WinneyPooh's picture
WinneyPooh
Posts: 318
Joined: Jul 2009

Did the install an iliostomy or did they reconnect so you can go normally and was this your first surgery down there close to the rectum or had you had others, they left my tumor in this time and placed a stint with hopes of opening it up and killiing the cancer with chemo, so far i have had one treatment of the new drugs, my white blood count is really low, constant fevers, pain when i eat, touble passing stool. The last treatment i had yesterday, i had a sever allergic reaction, had to stop treatment, 

this is one of the first times in 4 years that i have been fighting this cancer that i am really afraid of what the future may hold.

Penny

herdizziness's picture
herdizziness
Posts: 3389
Joined: Apr 2010

Right there with you girl in that worry department.   This is first one in sigmoid area, the last one was on right side colon where they removed I think 18 inches on that side. They did not have to give  illiostomy.  I haven't asked the surgeon how much he removed on this operation (I forgot to yesterday and haven't seen him today). I'm mostly worried because this was a new primary that right after 2nd liver resection in the end of May, spread new tumors to it and so in May had three tumors removed from liver and here in September have three more back in the liver.

i would have gone with chemo, but since this new primary spread cells so fast and pain was so great I went with having it removed first.

have you talked with them about removing tumor?  What were their thoughts about? is it because of the palliative care thing, or is something more pressing that made them decide to go with the stent?  I felt that since the spread tumors were far slower growing then the new primary, I wanted the new primary put FIRST AND FOREMOST and let's do the chemo on the slower stuff in a few weeks!

Winter Marie

LindaK.
Posts: 301
Joined: Apr 2013

You sound so much better, glad that thing is out of your body.  Keep up the good healing, you'll be home in no time!

Linda

janderson1964
Posts: 1531
Joined: Oct 2011

Well done!!!!!!!!!!!!!!!!!

Trubrit's picture
Trubrit
Posts: 1334
Joined: Jan 2013

When will these Doctors clue in to the fact that we, the patient, often know what is going on with our bodies and to listen to us? 

I'm SO SO SO glad that you pushed and got the surgery, and now, look how well your doing; up and about and impressing not just the  surgeon but us too.

Keep up the good work, and we'll be keeping up the love and support. 

traci43's picture
traci43
Posts: 420
Joined: Jul 2007

Thank goodness you stood up for surgery!  And thank goodness for epidurals!  Hope you're back home recovering soon.  Traci

Chelsea71
Posts: 1168
Joined: Sep 2012

You never cease to amaze me.  You really are quite something, WM.  Thanks for the speedy update.  Wasn't expecting to hear from you for another day or two.  Keep up the good work.  Hope you get home soon.

wolfen's picture
wolfen
Posts: 1176
Joined: Apr 2009

Just really GREAT news which we can all use. I'm so glad someone listened and that your recovery is going super fast.

Luv,

Wolfen

danker
Posts: 730
Joined: Apr 2012

Glad to hear all is going so well.  Are you now NED?  Hope so ! Good Luck!!!

herdizziness's picture
herdizziness
Posts: 3389
Joined: Apr 2010

I still have three tumors in lung and thorax area, and three new tumors in liver.  But hey, one less colon tumor isn't too bad!

Winter Marie

relaxoutdoors08
Posts: 516
Joined: May 2011

So happy to hear success.  Now sending positive thoughts and my prayers for healing as you prepare for the fight step by step. We are here with you.

NB

Cathleen Mary
Posts: 529
Joined: May 2011

You really are incredible!!!  Wishing you the best.  You taught us all a bit about advocacy.

Be good to yourself. Heal well.

Hugs,

Cathleen Mary

thxmiker's picture
thxmiker
Posts: 1202
Joined: Oct 2010

Wooo Hooo!  Beat the dragon down!

 

We are praying for your speedy recovery!

 

Best Always,  mike

smokeyjoe
Posts: 1428
Joined: Feb 2011

Glad you got that dang tumor out that was giving you soooo much grief.    I'm not understanding about you saying it's a new primary that is causing the mets??   With being diagnosed Stage 1V are these not part of metastatic disease.    I questioned my onc. about this one time and he told me I have microscopic systemic disease that tumors could pop up anywhere in my body ...... basically cells floating through your entire body, it's basically about them finding a place, taking root and growing.  

herdizziness's picture
herdizziness
Posts: 3389
Joined: Apr 2010

The tumor that was removed is a New Primary Colon Tumor, is that, a brand new colon tumor, not a metasitis from the original colon cancer, but a brand new type of colon tumor.  This one will also have to be tested for KRAS as it is of new origin and they told me it could be KRAS mutant and not KRAS wild like my original colon tumor, so I'm hoping this one is also KRAS wild, but since the Irenotican and Erbitux didn't work on it, it's possible that it is KRAS mutant.  

Because of new primary, the mets to the liver could be from old or new primary colon tumor.  Don't that bite.  It's like starting all over again.

Winter Marie

Annabelle41415's picture
Annabelle41415
Posts: 4207
Joined: Feb 2009

I'm glad that they are least testing for the KRAS.  It would be shameful if they treated you with something that wasn't going to work.  You are your best advocate and I'm glad that you are taking charge.  You have been through so much lately and I'm just so glad that you have been relieved from that big tumor that was hurting you. 

Kim

smokeyjoe
Posts: 1428
Joined: Feb 2011

I cannot believe how this tumor popped up and grew to a sizeable mass without showing up on scans!!!   Do CT scans not show what's going on in your colon??   Ya drink the contrast, what's that supposed to do?    Maybe only a colonoscopy would show something like this....sheesh.   Makes you wonder how long ago it started growing before it gave you grief.    I read somewhere, on some article regarding K-Ras mutant cells,  apparently in this one paper I read, their belief was that some tumors that tested K-ras wild  actually contained some K-ras mutant cells and that contributed to treatment failure .....  

herdizziness's picture
herdizziness
Posts: 3389
Joined: Apr 2010

it showed up once, in October 2012, so know I've had it at least since then, every scan since, even the one done on the Friday before surgery showed it had disappeared, so it spent at least a year growing (it had to start before it showed up the one time).  The colonoscopy was the only thing that showed the tumor still existed and had increased in size, the doc could not get the scope around it.  My oncologist said that this happens more times then you would think, that with all the mess in the stomach it is easy for tumors to "hide".  Colonoscopies for me every year now!!

Winter Marie

smokeyjoe
Posts: 1428
Joined: Feb 2011

Wow....just wow ..... so much for relying on scans!!!     Check out coloncans post .... about personalized cancer treatment and Kras wild .... it may lead you to that article I saw regarding K-ras status..... 

Goldie1's picture
Goldie1
Posts: 250
Joined: Sep 2011

Haven't been on here for a little while and playing catch up!  Just wanted to say, thinking about you and sending some good vibes!

Take care,

Ellen

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