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PET Results....

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

A scare and anxiety for a few hours, but ended well....

Got my report, and the MD writing the report didn't give me an all clear...

He actually wrote;

IMPRESSION

There is a new small area of hypermetabolic activity within the infratonsillar region of the pharynx as described (another area of the report). This has an undetermined appearance. The possibility of developing small metastatic lesion in this region is not excluded. Recommend direct visualization by ENT exam."

Well if that isn't enough to give you an Ole'S.hit moment... So in other words, he's covering his butt by saying he thinks he sees something new, but I'm not saying it's cancer. but I'm not excluding it either...hmmmphf....

So off to see my ENT and luckily he got me in, checked the report and scan images, along with a scope down the nostrils and a big EEEEE.

All looks good, nothing concerns him....

He has always told me the scans are just tools, he's the expert... I trust him totally....

He suggested that the MD's that read and summarize the scans aren't all experienced in H&N, so they can tend to interpret results differently than he or another H&N MD would.

WooHoo....

Now I gotta excuse myself while I go change my shorts...

JG

CivilMatt's picture
CivilMatt
Posts: 2838
Joined: May 2012

John,

Well OK, this stuff makes me nervous.  I am glad for the second review and the results.

You made me get sick to my stomach (for a second)

Enjoy you day,

Matt

jcortney's picture
jcortney
Posts: 406
Joined: Sep 2012

I was near changing mine as I read your post.

 

whew.............

TracyLynn72's picture
TracyLynn72
Posts: 645
Joined: May 2013

I started feeling a little sick reading this...then it turned around!  :)  WOOHOO for ENTs!!!  So glad you were able to see the expert and he's not concerned with anything.  

Hondo's picture
Hondo
Posts: 5643
Joined: Apr 2009

 

Yep and that is something we all need to remember, the people reading the scan don’t have the last word. I am like you I trust my ENT, she is the best doctor I found in a very long time and I have faith in what she does. Not to say she is very nice looking aswell.  

 

Glad for you my friend

Hondo  

wolfen's picture
wolfen
Posts: 1173
Joined: Apr 2009

What a scare we all just had, not to mention how it was for you! I'm so glad all is well and that the ENT quickly cleared up the doubt.

Luv,

Wolfen

phrannie51's picture
phrannie51
Posts: 3620
Joined: Mar 2012

so I knew this story had a good ending...  Congrats John, on another NED in your pocket!!! 

p

fishmanpa's picture
fishmanpa
Posts: 1104
Joined: Jan 2013

Quit School...why fake it....  

Like P... I saw thngs were good but that had to be an "Oh Sh^$" moment... literally!

Glad to hear the good news!

"T"

 

jtl's picture
jtl
Posts: 419
Joined: Sep 2011

How often are you getting the CT/PET scans?  My ENT has told me many times he can find a problem and the scans are more problematic than most people realize.  I actually get scoped by my RO in addition to my ENT.  I suppose if we look for potential problems enough we will find them.  

debbiejeanne's picture
debbiejeanne
Posts: 2266
Joined: Jan 2010

john, after that huge scare i'm dancing around the kitchen for the good news.  i hope u did a dance as well.  use shout on ur shorts and u'll never b able to tell u had an "oh chit" moment, lol.  seriously, sorry about the scare and praising God for the ENT report!!

dj

donfoo's picture
donfoo
Posts: 1159
Joined: Dec 2012

Easy lesson - we are not licensed ENT so we can really not accurately interpret reading these usually opaque reports. For certain best left to the professional to read and interpret for us and give us the English translation.

I know when I read my read my reports fresh off the printer ahead of the doctors, I ALWAYS tell myself that if it reads scary, not to get upset but ring the doctor fast and tell them to translate. My last one was quite clear to read and understand so that is ok but still might not be good if you read something as good and doctor translates as something not so good.

Even though I have read every report on my own, the better way is to let it filter through your doctor, if you can stand the wait. Embarassed

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Actually my ENT is not a fan of too many scans... This one was oredered by my onco... She is still on the CT at six months and a PET at twelve..., now going into year five post Tx... January 2009 when I was Dx, and June 2009 finished up Tx.

I haven't had any questionable scans that I couldn't decipher myself up to this one... And this one left no doubt that the reading MD thought he saw changes... , or he did, but nothing that concerned my ENT. My ENT whom has been very hands on since his intial Dx that started this ball rolling..

In reality, though I was having some anxiety trying to set in, I was actually pretty certain that it would be OK. My ENT still scopes me every few months, every six months this last scan, so he just gave me the all clear four months ago.

So until I got in and saw him, I was pretty sure I was OK..., but you still have a few doubts.

And we all know, it's not something until they tell you it is...

 

Thanks for all of the thoughts, prayers and well wishes...

John

KTeacher
Posts: 884
Joined: Jan 2011

I usually have false positive not negative.  It's not until my surgeon looks at the scans that something is seen!  But then again, I put the ABI in abi-normal!

Glad you were able to get to the ENT sooner rather than later, it's the waiting that gets us.

cureitall66's picture
cureitall66
Posts: 841
Joined: Aug 2012

Glad you got in to see that ENT as quick as you did to give you peace of mind! Kreg's ENT always told him that through her scopes she does regularly (6-8 wks) she would be the first to see something before a scan would. But, she also enforces him to still do regular checks to his neck himself.

It's all good Bro....I have faith. 

~Cris

fisrpotpe's picture
fisrpotpe
Posts: 1320
Joined: Aug 2010

nice eye's your ent has

btw, i don't save my shorts when they are dirtied like yours

amazing how quickly we depend on a scan when the ultimate certainty is results from biopsy

still the anxiety takes hold and brings us to bent knee's.... why because our shorts are full...... Laughing

sleep well

john 

luv4lacrosse's picture
luv4lacrosse
Posts: 1376
Joined: Jul 2010

A visual with human eyes are the best. News sounds great, no go drink a Corona and fish!!

Good for u my friend

Mike

sin9775's picture
sin9775
Posts: 191
Joined: May 2013

I am so glad your roller coaster ride ended well.  Wishing you many more years of NED!

~S~

cadharose's picture
cadharose
Posts: 51
Joined: May 2013

This stuff is SCARY, isn't it? I've had a couple such incidents so far in this odyssey that I'm on. I get a scan and someone sees something in it, and says something about it ("area of activity" that "needs to be watched" or what have you) that SCARES me to DEATH. And then in the end...my doctor tells me it's nothing and she's not in the least concerned about it. And then I can exhale. It's like being dangled over a cliff and then pulled back again.

I'm so happy for you that it turned out to be nothing. That is always a such a relief.

katenorwood
Posts: 1808
Joined: May 2012

John,

I have all my reports.  (written)  And no I'm not a MD.....no white coat.  But still it's nice to have someone you trust with your life (literally) explain the why's and how comes.  I'm so happy to hear your in the clear my friend !  A bottle of cold beer on me, and some fishing time for you is my RX.  Hugs sent !  Katie

Grandmax4's picture
Grandmax4
Posts: 578
Joined: Dec 2011

I'm gonna have to put you in a time out if you ever do this again~~whoa, my heart was thumping for a few seconds..awesome, that all is well!!

jthornsbury
Posts: 39
Joined: Feb 2013

Was worried there for a minute but glad to hear that all was resolved! 

 

Jon

catfish_58's picture
catfish_58
Posts: 109
Joined: Feb 2013

Glad you got the all clear,I can't even imagine what i would do if I was told that.But glad to see your all clear 

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

............are the fish!  Congrats Big Man!

Greg

hawk711's picture
hawk711
Posts: 525
Joined: Jan 2010

Hey Big Boy, glad to hear that all is good in Florida.  Had a scare myself for a return of the big C, but turns out to be ORN and issues that I can handle. 

I'm always glad when a friend gets the "all clear" statement.  Keep up the good work here and keep enjoyin life.

Best to you and yours,

Steve

Laralyn's picture
Laralyn
Posts: 433
Joined: Apr 2012

Hooray for the good news when you got scoped! :-)

I'm still in the "let's keep an eye on this" phase from the hot spot on my last PET. In a month and a half, I go back for the second follow-up and probably another PET.

The whole thing has made me wax philosophical about the concept of "living with uncertainty" because even when your doctor says, "The odds of it being cancer are almost zero" you still have that little voice in the back of your head, right?

So keep telling that little voice that the guy who's the expert says it's all fine. And congrats! :-)

michdjp's picture
michdjp
Posts: 189
Joined: Sep 2011

dear John,

i held my breath while reading your post but in the end you made me laugh. Thank goodness alls well.  

So glad to hear good news.

michelle

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

You all are the best...., it means a lot knowing that you all have me covered...

John

hwt's picture
hwt
Posts: 1835
Joined: Jun 2012

So glad you didn't have to sleep on the preliminary report and got in to get the official word. Happy it worked out for you the way it did and best of all for the good results :-)

jim and i's picture
jim and i
Posts: 1569
Joined: May 2011

You sure have a great ENT to get you in right away and to relieve your fears. Thanking God all is well.

Debbie

Noellesmom
Posts: 1275
Joined: Aug 2010

Next time, please make the leading line " I am okay but..."

Gee whiz.  I almost turned off the computer rather than finish reading something I didn't want to hear!

Glad everything turned out well, John.

D Lewis's picture
D Lewis
Posts: 1521
Joined: Jan 2010

I guess all's well that ends well. Sorry to hear that the scan results were concerning. Happy to hear that the ENT found no evidence.  Scanxiety sucks.

Deb

Jan Trinks's picture
Jan Trinks
Posts: 451
Joined: Apr 2009

John:

 

I was scared too when I read the first part as haven't been on in a couple of weeks; but oh so glad everything turned out well!  Whew!  That's like my best friend's husband a couple of weeks ago right before Labor day.  Follow up ct scan showed spot on lung with minute growth since ct scan in May so ordered a needle biopsy however they got him ready for it and the pulmonologist doing it said,  "wait a minute when he read it and then compared the two scans and apparently when they read the Aug. scan they misread the parameters so he was fine and didn't need biopsy after all and follow up pet was good too.  So he's released for 3 months.  Glad you're doing well.

 

Jan (Basketcase)

sonyk728's picture
sonyk728
Posts: 102
Joined: Jun 2011

You have given me and so many others so much support. What a great attitude on your own PET results! You are too positive not to beat this crap. 

Ruben and Jude's picture
Ruben and Jude
Posts: 152
Joined: Apr 2013

My heart sank when i began reading your post; and immediately lightened as i read on.  Thank God your results are good. You restored my faith in good things happen to those who deserve it!

God's continued blessings on you.

Jude

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