Sep 15, 2013 - 8:16 pm
I had posted this in the previous thread and it was suggested I start a new one. Thank you's to John, Matt and Phrannie for the welcome and the suggestions.
I hate to say it but we've just joined this club too. We are at the beginning and I am on the internet just trying to find out alittle and get famliar with terms and stage some questions. Memorial Day weekend we noticed the enlarged lymphnode. Went to primary for check up on diabetes/heart stent issues he confirmed "ya that looks too big". Sent hubby for ultra sound, then CAT. Next see the ENT. He set us up for needle biopsy. Diagonsis: scc hpv positive. Now we look for primary. Lymphnode tumor about 2.5 cm.
Now we set up for triple endo to find primary but they abort due to a funky stress test and of course has been on blood thinners for a year. Now we finally get a PET and as the ENT suspected, found it in right tonsil.
Now, this week coming up have appt with both the radiation oncologist and the medical oncologist. Have not idea what to expect, they are talking radiation with some chemo.
Surgical removal of the tonsil has been pushed aside for now due to the blood thinners he takes and has been on for over a year. He has a stent in the LAD and surgery would be a tough one.
Staying positive, ENT said we would certainly be planning our vacation five years from now...... Any suggestions? We have acess to some of the best, Dana Farber, Mass General...
So, after our Appts on Mon and Tuesday I will be back with questions and maybe some info to share. And all of you reading this because your in the same boat- my prayers and good thoughts for all you.