Scans Tomorrow and Scared to Death
PET scan, and all docs tomorrow. I am scared to death. Please pray.
Sandy
Comments
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scan time
Sandy,
Welcome to the H&N reality check or as it is known “Scanxiey”.
Rob got the full meal deal and along with that comes a likely NED. If this is the first scan it may show some hot spots which are par for the course and not cancer.
If I had known about the scan earlier I would have asked God to watch over Rob when I was saying Sunday grace.
Keep the faith,
Matt
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two ferCivilMatt said:scan time
Sandy,
Welcome to the H&N reality check or as it is known “Scanxiey”.
Rob got the full meal deal and along with that comes a likely NED. If this is the first scan it may show some hot spots which are par for the course and not cancer.
If I had known about the scan earlier I would have asked God to watch over Rob when I was saying Sunday grace.
Keep the faith,
Matt
SKIFFIN TOO!
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sandy & john, i'm saying
sandy (rob) & john, i'm saying prayers 4 u and look forward to hearing both danced w/NED!!!!
dj
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Prayersdebbiejeanne said:sandy & john, i'm saying
sandy (rob) & john, i'm saying prayers 4 u and look forward to hearing both danced w/NED!!!!
dj
Prayers all around for clean scans!
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Prayersdebbiejeanne said:sandy & john, i'm saying
sandy (rob) & john, i'm saying prayers 4 u and look forward to hearing both danced w/NED!!!!
dj
Prayers all around for clean scans!
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Don't Worry - Easier Said Than Done!
I will certainly not tell you not to be scared to death about the scan. My brother's first scan is not until November and I get totally freaked everytime I think about it. Having said that, I have read enough on this site to say that the liklihood of anythilng being remiss at this time is pretty slim. Try to concentrate on that and pray, pray, pray. Adding you and your husband to my prayers today.
~S
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Prayers For YouSkiffin16 said:Prayers Coming...
I'm sure you guys will be good to go...., but sending a few prayers your way for added assurance...
You can return the favor, I have a PET scan first thing tomorrow morning...
John
I will be adding you to the prayer list tonight also. Good luck!
~S~
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I'll be tucking Rob into
my pocket....you, too John....you two can swap fishing tales
. I surely know the feeling you're having, Sandy....I was hanging by my claws from the ceiling for a week this last time....but I know the scans are going to be great and you'll be dancing in the kitchen in just a couple of days.p
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Good thoughts....
Good thoughts coming your way....
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Hot spots still showingcureitall66 said:Good thoughts....
Good thoughts coming your way....
Everything went well. Did not get NED or Cancer Free yet.
He had 2 very small nodes light up. So small that they can not even do any guided sonograms to get to them for FNA. To small to even think of cuttingout.
Going back to tumor board on Monday next week but they think it will still resolve itself and antoher PET in Dec.
They figure his cancer is probably gone because they say if he still had cancer he would not be doing this good. He would still just be lingering.
John prayer for you NED tomorrow and we plan to be there in 3 months.
Sandy
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sandy, i'm sorry that yourobswife87 said:Hot spots still showing
Everything went well. Did not get NED or Cancer Free yet.
He had 2 very small nodes light up. So small that they can not even do any guided sonograms to get to them for FNA. To small to even think of cuttingout.
Going back to tumor board on Monday next week but they think it will still resolve itself and antoher PET in Dec.
They figure his cancer is probably gone because they say if he still had cancer he would not be doing this good. He would still just be lingering.
John prayer for you NED tomorrow and we plan to be there in 3 months.
Sandy
sandy, i'm sorry that you didn't get NED news. i'm glad the hot spots r so small and i will b praying that they r nothing more than left over radiation. pls continue to keep us posted and we will continue 2 keep u and rob n our prayers!!
dj
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NEDs Coming Your Wayrobswife87 said:Hot spots still showing
Everything went well. Did not get NED or Cancer Free yet.
He had 2 very small nodes light up. So small that they can not even do any guided sonograms to get to them for FNA. To small to even think of cuttingout.
Going back to tumor board on Monday next week but they think it will still resolve itself and antoher PET in Dec.
They figure his cancer is probably gone because they say if he still had cancer he would not be doing this good. He would still just be lingering.
John prayer for you NED tomorrow and we plan to be there in 3 months.
Sandy
I am sorry that you did not get the total thumbs up today. It sounds, however, that the doctor is pretty sure that all is well. As a side note, my brother had originally been told that he was going to get his first scan in October (he was done July), now to avoid the very thing that Rob is going through, it was decided that November would be better for the scan. Apparently it is not uncommon to still have spots cooking three months post tx. So try to relax, put it all out of your mind (as much as you possibly can), and enjoy life!
~Shawn~
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more waitingrobswife87 said:Hot spots still showing
Everything went well. Did not get NED or Cancer Free yet.
He had 2 very small nodes light up. So small that they can not even do any guided sonograms to get to them for FNA. To small to even think of cuttingout.
Going back to tumor board on Monday next week but they think it will still resolve itself and antoher PET in Dec.
They figure his cancer is probably gone because they say if he still had cancer he would not be doing this good. He would still just be lingering.
John prayer for you NED tomorrow and we plan to be there in 3 months.
Sandy
I feel really bad you could not get a definitive all clear ala NED. Be happy this case goes for review at tumor board as it will get a lot more opionions on how to evaluate and plan forward. Much better than not having it looked at so much.
Im' sure they are false positives. This happens often when the first post tx PET/CT is done too closely. Allowing 12 weeks is considered safe for low false positives. I did right at 12 weeks post.
Hang in there!
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Wishingrobswife87 said:Hot spots still showing
Everything went well. Did not get NED or Cancer Free yet.
He had 2 very small nodes light up. So small that they can not even do any guided sonograms to get to them for FNA. To small to even think of cuttingout.
Going back to tumor board on Monday next week but they think it will still resolve itself and antoher PET in Dec.
They figure his cancer is probably gone because they say if he still had cancer he would not be doing this good. He would still just be lingering.
John prayer for you NED tomorrow and we plan to be there in 3 months.
Sandy
they could have said NED right now, but it's there and that news will come soon. I've kept y'all in my prayers and I just KNOW that he is fine!!!
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Well crap on the waiting some more....robswife87 said:Hot spots still showing
Everything went well. Did not get NED or Cancer Free yet.
He had 2 very small nodes light up. So small that they can not even do any guided sonograms to get to them for FNA. To small to even think of cuttingout.
Going back to tumor board on Monday next week but they think it will still resolve itself and antoher PET in Dec.
They figure his cancer is probably gone because they say if he still had cancer he would not be doing this good. He would still just be lingering.
John prayer for you NED tomorrow and we plan to be there in 3 months.
Sandy
tho I'm sure they are hot only from treatment....it is much more fun to get a full fledged NED. I can't tell you tho, how many people have passed through here with tiny lights at the first scan that are gone at the second scan...just that there have been a few of them. I'm quite certain tho, that had they been very concerned about them, he'd be getting another scan sooner than Dec.
p
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Waiting gamephrannie51 said:Well crap on the waiting some more....
tho I'm sure they are hot only from treatment....it is much more fun to get a full fledged NED. I can't tell you tho, how many people have passed through here with tiny lights at the first scan that are gone at the second scan...just that there have been a few of them. I'm quite certain tho, that had they been very concerned about them, he'd be getting another scan sooner than Dec.
p
Right there with you on the waiting game. I have a PET early December. Wishing you had gotten the full blown all clear on first go round. Sounds like you'll meet NED just in time to celebrate the holidays!
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Scanxiety
We can all relate. Stay strong and good things will happen. Prayers and good MOJO headed your way.
Best
Mike
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