Sep 09, 2013 - 4:29 pm
I am 44 and have been getting regular ultrasound follow-ups for a fibroadenoma left breast on the diagnonal from the armpit to the nipple. I went to a high risk breast facility and they said it is a classic fibroadenoma meaning the ultrasound features were classic and revealed no clues that it might not be a fibroadenoma. It is the shape and size of a slightly larger vitamin E capsule. Ove three years it has not grown at all so they said no need to biopsy. I asked well when do you biopsy and they said if it appeared suddenly. To me it did but I also was working out and lost some weight and developed my pec muscles so I thought maybe it was there all along. What is more disconcerting to me is that below this adenoma, there is a larger, smooth area that feels about 2 cm wide by 1.5 cm high but thinner like 1 /2 an inch. No one can feel it. There is similar feeling tissue in the other breast but much smaller and it seems less large after my period. The doctor said that it is connective tissue that is fibrous hence the term fibrocystic that is common around an adenoma. It has not gotten any larger, but I feel it move against my rib cage, meaning it is not fixed. Now no one can find it on ultrasound. I am thinking of having the adenoma (sm one) removed but my doctor says they don't do that if it is stable and not growing. My gyno who said it was a fibroadenoma now says it could be a phyllodes. I told my breast doc and he said no that is so rare. QUESTION: do phyllodes tumors always grow ? or do they stabilize at 2-3". Whatever I have has not grown over three years. Obviously, I need to go to a facility that has more experience w phyllodes like John hopkins and if anyone else knows a good facility in the NE- I am in New York, that would be great. Since no one can feel the area that I feel below the adenoma and near the rib cage nor can they find it on ultra sound then maybe I need an MRI. I appreciate if any one has information to share about their experience of symtoms and getting diagnosed because that is the stage that I am at. Did you get diagnosed w an MRI, US, etc. could you feel it, how did it feel? Where do these tend to be located in the breast? deep in the breast? Did you do just a core biopsy or is full excision the way to go? I read that this type of tumor if malignant bypasses the lymph nodes and goes straight through the circulatory system. The doc did a lymph exam and said the lymph nodes felf normal. Thanks for reading this and to anyone who takes the time to answer. Thank-you for sharing and best of luck to everyone.