Sep 05, 2013 - 11:36 pm
I'm looking for anyone out there who is a survivor or also currently going through treatment.
I'm 34 yrs old and was diagnosed with Neuroendocrine Carcinoma poorly differientated. It is the very aggresive kind of neuroendocrine cancer. Main tumor was found in the cecum with mets to a lymph node and liver. I am responding well to Cisplatin/Etopisde every 3 weeks. Going in for my 6th round next week. Latest CT scan showed no cancer in cecum or lymph nodes and about 70% shrinkage in the tumors in my liver. I'm curious to hear of what others treatment has been as my doctor it worried about the amount of time I have been on Cisplatin. In addition, the cancer is so aggresive that a specialist at MD Anderson, Dr. Yao said I will need 3 addition rounds of chemotherapy after there is no evidence of cancer.
Any help would be greatly appreciated!