Sep 05, 2013 - 8:06 pm
Here we go.....
Firstly, very grateful to have found this site for information sharing....many thanks to all of you. It really does help tremendously to have your input.
My husband will soon start radiation treatments of 200 rads per session for 6 weeks. He had 29 neck nodes removed, one of his tonsils and a large tumor removed from his tongue, replaced with a flap. The doctor is advising the use of a feeding tube which he is very resistant to since he despised having a feeding tube while in the hospital. Of course, nutrition is key here. We did ask the doctor if it was possible to have it later rather than sooner (if need be) as he would like to just try it on his own. What opinions do you have to offer on this? Any point of view is welcome.
I am learning more and more each day which has proven a necessity. I was surprised and saddened to learn that being WAY under informed by the medical professionals is much more the norm than not. My husband and I both felt we had been completely blindsided by the surgery and recovery process without much preparation for it all. ... Not that there was much of a choice, mind you, but it would have been a little easier, or at least better prepared if we had just had a clue what was coming at us.
I imagine that I will become a regular on this site since we are a bit on our own with all of this. Our kids are across the country and we do try to spare them as much as possible too. I will try to add a photo of us later. It is nice to see who you're talking to.
Thanks in advance!