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Avastin

JessicaWoodson's picture
JessicaWoodson
Posts: 6
Joined: Sep 2013

Any of you ladies taking Avastin for maintenance therapy??? My Dr wants me to start using it and im scared. Im tired of the IV's.  

seatown's picture
seatown
Posts: 266
Joined: Sep 2012

Hello -- Just wanted to let you know I've been on Avastin since March 2013. Don't know if it would be considered "maintenance therapy." I was diagnosed with primary peritoneal cancer (PPC) about 14 months ago. You probably know that PPC's treatment is the same as for ovarian cancer. I had Taxol/Carbo chemo last year; then this Feb., surgery turned up some positive biopsies too small to see on a scan. So in March I went back on Taxol/Carbo with Avastin added. Ended the Taxol/Carbo in May but have remained on Avastin since March & am told to expect to continue it until Dec. Taxol/Carbo made me lose my hair all over again & caused the usual problems--neuropathy, etc. But I've had no problems with Avastin only, except excessive mucus in my sinuses/nose. My oncologist said most people tolerate it well, though there is a risk of a rare serious side effect: intestinal perforation, if I'm remembering my terms right. My CA 125 number has descended from approx. 2800 upon diagnosis to within the normal range early this year. Right now it's at 15; expect to perhaps get a new number when I see the oncologist tomorrow.

As far as IVs go -- I have a port & the Avastin takes only about 1/2 hr, so I find it much easier than the several hours on Taxol/Carbo.

FYI, I've been blogging details of my Avastin experience at

www.CaringBride.org/visit/CaroleSeaton

Good luck!

JessicaWoodson's picture
JessicaWoodson
Posts: 6
Joined: Sep 2013

Will check out the site. Was nervous about having to take it...My CA125 is a 3. I didnt think I would need anymore meds but your response made me feel better. Thank you.

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