Sep 01, 2013 - 10:59 pm
I came into this forum only after receiving my treatment of 20/33 radiation
and 2/3 of chemo/cisplatin and I am glad to read what am I going to expect
during and after treatment. Thank God, its never too late.
On 24 Jan 2013, I had a left mandibular surgery (15 hours) which I lost my jaw
bone and 5 teeth. I had my biopsy, CT scan and MRI done on Aug 2012 which
was benign and the scan mentioned tumor was 4.5 by 3.8cm. My ENT did not
mention a word “C” to me. My doctor then told me to get the surgery done
and make a date for my surgery on 4 Oct 2012. He later refer me to a plastic
surgeon who will reconstruct my jaw bone using my left leg fibula and also my
thigh skin to reconstruct a flap to form my ‘gum’.
As I already book a holiday in China on 8 Nov 2012 and also for my Standchart
marathon on 2 Dec 2012, I decided to postpone my surgery. That was really
a big mistake I made. My surgery was scheduled on 24 Jan 2013 and prior to
that I have had another CT scan and MRI done on 16 Jan 2013. The tumor
has grown to 6.5 by 4.8 cm then but still no mentioning of “C” on the report.
Only after the post histopathology report, then it was mentioned maglinant
and Stage 4. I got stumbled. I lost another 2 teeth prior treatment while with
I am now 4 mths after treatment and had my CT scan on 6 Aug 2013. My RO
says no sign of the beast and also ask me to exercise more due to the fact that
I still has tight neck and fluid retention around the dissection area. I am back
to my routine and exercise 6 days a week, ran about 40 to 50km every week.
Still has dry mouth and ordered fm Amazon XyliMelts and Oasis spray for dry
mouth where I can’t find in Singapore. Ears still has the ringing sound which
now I am immune to it… haha. My taste buds all back during the5th week
post treatment but I still can’t take ****y stuff, it really burns. I love ****y food
but for now I have to avoid them. Every morning when I woke up, my left side
of chin till down to the dissection area is stiff. Need to do some jaw exercise
and it gets better. Thanking everyone here for giving their valuable experience
which I somewhat anticipate what’s going to happen next during my time of
treatment and post.
God Bless everyone here.